I hope someone can help me. I am now 66 years old, have suffered since I was in my 20's with fatigue and muscle pain, but during the last 4years have developed severe bone pain, skull pain and pressure, difficulty breathing and pounding heart. My feet and ankles feel sprained almost constantly. I have had Hashimoto's for years and take Synthroid, which was upped when this last flare occurred to 88's. I have MVP, and started throwing extra beats, in the 1000's after this, and was put on Sectral. I have been told I have Paget's (not), hyperostosis, which could not cause the head pressure and pain, occipital neuralgia, for which I received 2 cervical epidurals and injections into the occipital nerve (ouch) which didn't help. Bone scans of body show increased activity in joints, spine, and head, but no diagnosis or help. Had parathyroid tests, which consistently come back elevated, from 80-120, but blood calcium is normal. 24 hour urine showed kidneys were secreting calcium and cortisol, was give 1 dexamethasone and repeated, and cortisol was suppressed - nothing said about calcium leak. Was told to take HCTZ 12,5 to control it, but stopped after a 6 month course. Meanwhile the pain is so severe. Read Sally Pocholak RN posts, and am getting B12 shots, which help the depression somewhat. Went to NYC doctor who wants me on injected methotrexate, 10 mg. prednisone, Lyrica, Fosomax, and says I should have parathyroidectomy and surgery on neck for occiptal nerve pain. So many meds - all without complete history and tests. Frightened and don't know what to do, but bone pain is so severe and ribs, hips are so sore that iI is difficult to stay lying down in bed. My head pressure is so bad that I feel that I will pass out. I am not a neurotic woman, but I feel myself falling apart and am sure that whatever is wrong will finally kill me. Don't have problems with kidneys, but do have small kidney stone. Can anyone help me? Have been told over years I had MS, MG, fibromyalgia, chronic fatigue, autoimmune disorders, and have tried eveything, but now I am becoming almost phobic about meds. Please help me.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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