Discussions By Condition: Medical Stories

Reoccuring Pancreatitis-PLEASE HELP

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • February 4, 2011
  • 05:58 PM

My daughter has been in and out of the hospital now for going on 2 years now. She is 18 years old. She has horrible abdominal pain just below her rib cage, she sometimes gets nausea and vomits, and sometimes dirrhea. When I take her to the hospital, sometimes her pancreas levels (amylase and lipase) are through the roof. One of her last visits her levels were over 9000. And yet sometimes her levels don't even go up. Sometime her levels will be extremely high, and within 3-4 days they are normal and she goes home. She has been tested for gallstones, crohn's, stomach migraines, blood diseases. She has had scopes, ultra sounds MRI's and has even swallowed a camera that went through her entire digestive system. There is no rhyme or reason to when these occur. She has been on all types of diets. Non-fat, gluten free, non acidy, no raw vegetables, no dairy, and fat free. There were no changes to when the occurrences take place. She has been tested for drugs and alcohol everytime she is admitted. She has been in the hospital now for almost two weeks. Her levels were not up when she was admitted and the doctor tried sending her home on Saturday of last week and she complained still of a lot of pain so they took her blood and her levels were then up. The hospital does not know where to go from here, and they said that they have exhaused all of there means. But I know that my daughter is not the only child in the United States that is going through this. PLEASE HELP

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2 Replies:

  • I know of a 17 year old boy that is dealing with the exact same thing. You aren't alone.
    Anonymous 42789 Replies
    • February 22, 2011
    • 08:01 AM
    • 0
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  • I was 17 when I had my attacks. Now I'm almost 20. I still get them. Not as bad. First they told me it was constipation, which it clearly wasn't. Then I was told it was pancreatitis. Once I stopped drinking coffee, smoking, consuming alcohol, eating greasy food it seemed to clear up. On occassion, though, I will still get an attack seeminlgy unprovoked. Drinking LOTS of water is key too. If hers is the chronic form, unfortunately, it is incureable. Be super careful what she puts in her body & pain management are the only solutions.
    Anonymous 42789 Replies Flag this Response
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