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recurring swollen glands and body aches

Posted In: Medical Stories 8 Replies
  • Posted By: lwebberjj
  • January 29, 2009
  • 08:48 PM

For three and a half years I have suffered with recurring "spells" of swollen glands in my neck, followed by fatigue, body aches all over, irritability, low grade fever and then eventually a sore throat. About half the time I also have one or two canker sores in my mouth. The spells last about 5 days and occur about every eight weeks or so. On the 3rd and 4th day I usually end up in bed all day, too tired and sore to move around. I have seen a rheumatologist, infectious disease dr, allergist, tested neg for HIV, tons of blood work. I only show inflammation when I'm having the spells and all other tests are normal except for low iron. Any ideas?

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  • I have the EXACT same symptoms. I get them every three days after my period. Then I take steriods and it is gone two days later. I have been on the steriods for about two years. No doctor has given me a diagnosis. I wish someone knew...
    Anonymous 42789 Replies
    • December 7, 2009
    • 03:19 AM
    • 0
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  • I have the EXACT same symptoms. I get them every three days after my period. Then I take steriods and it is gone two days later. I have been on the steriods for about two years. No doctor has given me a diagnosis. I wish someone knew... It was suggested that I take steroids also, but prefer to stay away from them. I'm thinking it may be hormone related and plan to do some research.:confused:
    lwebberjj 3 Replies
    • December 7, 2009
    • 05:46 PM
    • 0
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  • I found out that it might be takyatsu disease. It is a condition where the carotid artery in your neck constricts...
    Anonymous 42789 Replies Flag this Response
  • I found out that it might be takyatsu disease. It is a condition where the carotid artery in your neck constricts... Wow, that's an odd one. I hope you are doing well. Are you being treated? Thanks for the idea. I will check with my doc. Researching on-line I have some of the symptoms but not all. We will see.
    lwebberjj 3 Replies Flag this Response
  • I also have the same symptoms exactly, but usually at random times and they hit me all at once and are gone in one to three days... It used to be much worse and put me out for a week but now it comes in short spells... No one has found any diagnosis for me except that it is "some sort of virus". Its been going on for over a year now and is really starting to worry me...
    Anonymous 42789 Replies Flag this Response
  • I have these same exact symptoms. It occurs randomly, but maybe if I tried to recall things I ate, activities I did, etc. I would notice a pattern, but I didn't think of it until now. It usually lasts a couple of days with my throat being swollen and some discomfort when I swallow. Other aches - especially in my lower legs - occurred this last round.
    Anonymous 42789 Replies Flag this Response
  • What incredible luck! The story of my life: Up and Down extremes of luck, I wish I could benefit from. Maybe this time. Imagine myself, seeing doctors for 5 years over the slow increase in these same symptoms. In addition, my larynx is nearly swollen closed, causing me to lose my voice periodically. My chest and abdominal muscles are sore all the time from the violent bouts of coughing. Sometimes it feels like I have broken something in my throat or jaw from coughing. I am male, 50 years old, repeatedly tested for all these things, but coming up clean. No allergies, but an ENT doctor swears I have sudden onset severe allergy syndrome, I just don't test out as being allergic to anything they know of. Chlortrimeton allergy medicine helps by in addition I have developed a severe cough, from deep down, like I have something in my lungs that won't come out. My family doctor has given me steroid shots that help for a week or so, to reduce inflammation, plus it reduces the cough trigger. My throat is never that sore or raw anymore, like I have developed calluses in there and the doctors don't see raw spots or lesions. For the first 4 months of the last 6 months no doctor tried to culture any disease material from me, until they gave up and sent me to the Health Department Tuberculosis Clinic, they have them everywhere now. At the TB clinic I learned a great deal and they tested my sputum for contagion and found nothing. Skin tests and Chest X-ray have been negative for TB so far. They can't seem to explain the fever or swollen lymph glands & larynx without immune response to a disease. Nobody has tested me for Pertussis, whooping cough in all this time. On the CDC website, Pertussis was listed in the number one position for concerns of the CDC. Still, the new doctor believes all these symptoms may be caused by GERD, acid reflux. I am taking ranitidine and controlling my diet to reduce gas and reflux, but I don't think that is the correct diagnosis either. I am doing it to just help them convince themselves to move on to some other cause. I am tired most days and coughing so hard regularly that I am not very productive in my life, not being able to work at the office job I had. I cough so hard that my vision blurs, my hearing turns off and is replaced with a loud buzzing or ringing noise, I become dizzy and the vertigo cause me to nod or nearly fall out of a chair. The cough is 'productive' and helps to clear my throat, but drinking something doesn't help alleviate the cough. I have trouble swallowing, like the mechanism just gets stuck and won't finish the swallow. I have not been tested for MS. Many people would die from this coughing, but luckily I am in supreme cardiovascular condition. My biggest worry is the contagion, if any, and then, how much damage I am doing to my blood vessels when I cough so hard. My abdominal muscles are very developed now and I have been experiencing back and hip pain when lying in bed so much. Why is it so hard to figure out what this is. The cough was virtually non-existent 6 months ago, but the other symptoms were there. I was in the emergency room for pneumonia twice 14-15 months ago, and again 4 months ago. I have been given antibiotics, erythromycin, cephalexin, Augmentin(Amoxyciline-Clavulonate Potassium), Levaquin, and that finally cleared up the pneumonia and sinus infection, post nasal drip. It seems like it may come back slowly again. I take a lot of vitamins and eat a high protein diet and I am not low on iron. My throat aches. I am pressing on in the hopes that some doctor will care enough to try to culture whatever I have and identify it. I was surprised to find that doctors don't routinely try to culture the disease cause nowadays. I was told that they identify the disease by what antibiotic kills it. Meanwhile, they just try to treat the symptoms, and if it is viral, you either get over it in 4 weeks or you don't. I am losing the battle but maybe I will hear the cavalry horn blow. For three and a half years I have suffered with recurring "spells" of swollen glands in my neck, followed by fatigue, body aches all over, irritability, low grade fever and then eventually a sore throat. About half the time I also have one or two canker sores in my mouth. The spells last about 5 days and occur about every eight weeks or so. On the 3rd and 4th day I usually end up in bed all day, too tired and sore to move around. I have seen a rheumatologist, infectious disease dr, allergist, tested neg for HIV, tons of blood work. I only show inflammation when I'm having the spells and all other tests are normal except for low iron. Any ideas?
    Deadman0 1 Replies Flag this Response
  • It sounds like some sort of chronic virus. Did you get tested for Hepatitis B or C? Both are viruses that can turn chronic. Have you been tested for chronic Epstein Barr virus? What about lymphoma? Good luck.
    moonshadow1 7 Replies Flag this Response
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