Discussions By Condition: Medical Stories

Recurring Mononucleosis

Posted In: Medical Stories 39 Replies
  • Posted By: Peg529
  • April 29, 2007
  • 05:18 PM

I am a 49 year old female who has just been diagnosed with mono -again; I had it 6 years ago and suspect that I also had it in my late teens; I read how rare it is to have mono more than once...how about three times? I am also wondering if Epstein Bar has a higher reoccrrence during menopause?

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  • I had mono when I was about 16, since then I've experienced about 2 or so (what I consider) "flair-ups" per year (I'm now almost 23). Since mono is caused by a virus, it can theoretically "hide out" in your cells and cause a second (or third, etc) more minor infection later on. Although I've asked several physicians about this, there is some disagreement as to whether "flair-ups" can happen. However, I've experienced them. They seem to be triggered by stress - usually around finals time for me when I tend to get less sleep and eat a lot of unhealthy food.It could be that the stress your body is going through is causing you to be immunocompromised enough that the mono is able to cause another infection. However, it shouldn't be a very bad case since your body already has an immune response targeted against it.Epstein-Barr has also been implicated in chronic fatigue disorder - so it can have a lasting impact on your health.
    Anonymous 42789 Replies Flag this Response
  • Thanks for that; Since I posted, I have discovered that I KNOW two other people who had re-occurrence of mono at this age! (50) I definitely think there is a link between the flare-ups and the hormonal changes - even though no doctors seem to agree. I know Epstein-Barr stays with you for life. Its just that everyone seemed to think it was rare to have mono again; Not as rare as they all thought apparently!
    Peg529 1 Replies Flag this Response
  • Peg, much confusion with momo, EBV, chronic fatigue syndrome and Myalgic Encephalomyelitis. I have a feriend in PA that I mentioned on another thread. She is homebound without a drivers license, and had recurrent mono and EBV when tested. She has recently been diagnosed with CFS.
    Anonymous 42789 Replies Flag this Response
  • Have you been tested for cytomegalovirus?
    Anonymous 42789 Replies Flag this Response
  • Thanks for that; Since I posted, I have discovered that I KNOW two other people who had re-occurrence of mono at this age! (50) I definitely think there is a link between the flare-ups and the hormonal changes - even though no doctors seem to agree. I know Epstein-Barr stays with you for life. Its just that everyone seemed to think it was rare to have mono again; Not as rare as they all thought apparently! Peg I agree with you I am 53 and have been fighting mono since Sept. 2006 I also had it when I was 20 and now feeling the symptoms know I have had it before also just not as bad as I have had it this time. I think hormonal changes put alot of stress on the body in turn the immune system suffers (at least thats my opinion):) I also know 4 other women in their 50's dealing with the epstein barr virus. Also since all of this my 78 year old cousin has dealt with it also and from what I have been hearing there have been a few others in their 70's also.
    Anonymous 42789 Replies Flag this Response
  • Thanks for that; Since I posted, I have discovered that I KNOW two other people who had re-occurrence of mono at this age! (50) I definitely think there is a link between the flare-ups and the hormonal changes - even though no doctors seem to agree. I know Epstein-Barr stays with you for life. Its just that everyone seemed to think it was rare to have mono again; Not as rare as they all thought apparently!Peg I agree with you I am 53 and have been fighting mono since Sept. 2006 I also had it when I was 20 and now feeling the symptoms know I have had it before also just not as bad as I have had it this time. I think hormonal changes put alot of stress on the body in turn the immune system suffers (at least thats my opinion):) I also know 4 other women in their 50's dealing with the epstein barr virus. Also since all of this my 78 year old cousin has dealt with it also and from what I have been hearing there have been a few others in their 70's also.
    Anonymous 42789 Replies Flag this Response
  • Thanks for that; Since I posted, I have discovered that I KNOW two other people who had re-occurrence of mono at this age! (50) I definitely think there is a link between the flare-ups and the hormonal changes - even though no doctors seem to agree. I know Epstein-Barr stays with you for life. Its just that everyone seemed to think it was rare to have mono again; Not as rare as they all thought apparently! Peg I agree with you I am 53 and have been fighting mono since Sept. 2006 I also had it when I was 20 and now feeling the symptoms know I have had it before also just not as bad as I have had it this time. I think hormonal changes put alot of stress on the body in turn the immune system suffers (at least thats my opinion):) I also know 4 other women in their 50's dealing with the epstein barr virus. Also since all of this my 78 year old cousin has dealt with it also and from what I have been hearing there have been a few others in their 70's also.
    Anonymous 42789 Replies Flag this Response
  • Infections that reoccur - come back - do so because your body is a friendly place for them to be. Best way to stop that is to improve your body's health and when healthier the infections will be less likely to stick around or come back again. So.........how about diet diaries from all of you affectedList what you eat and snack on and drink every day for 7 days. And then list any digestive problems you have, because if you have them this also leads to unhealthy parts. Then I can review this evidence and have a place to start. That is where we should start. You cannot be healthy without real food and good digestion. I realize that on this board these are really radical ideas, so one more question. Do any of your docs talk to you about what you eat and are exposed to ?The basis of all poor health is unhealthy cells (building blocks of your body). That is a fact, not opinion. Ralph - alt doc always seeking results.
    Anonymous 42789 Replies Flag this Response
  • Hi Ralph,Strange that you ask about diet, my hubby and I are in the process now of going total organic we have certified organic beef and chickens on order and have found a buying club for most other things we will need, part of the reason for this is I am very allergic to many of the preservatives . We are hoping in about 2 months to be changed over completly we also have a garden going ( organic) I have not eaten sugar in 4 years now, but still have to work on some other areas. I do have some stomach problems I was told I have H pylori but all the antiboitics they give for it I am allergic to in fact most medications I can not take. A woman on another board told me her natural doc told her to take licorice root it would kill h pylori do you know of this? Do you know of different herbc etc to help getting EBV to calm down? I would be willing to keep a food diary as I do belieave makes a big impact on all things going on in the body.
    Anonymous 42789 Replies Flag this Response
  • Thanks for that; Since I posted, I have discovered that I KNOW two other people who had re-occurrence of mono at this age! (50) I definitely think there is a link between the flare-ups and the hormonal changes - even though no doctors seem to agree. I know Epstein-Barr stays with you for life. Its just that everyone seemed to think it was rare to have mono again; Not as rare as they all thought apparently!Was your blood test positive every time? Or were you diagnosed based on symptoms? I am concerned that you might have multiple allergies, maybe mold or carbon monoxide around you- or perhaps you are also ingesting a lot of toxins.
    Eatafruit78 960 Replies Flag this Response
  • I am a 49 year old female who has just been diagnosed with mono -again; I had it 6 years ago and suspect that I also had it in my late teens; I read how rare it is to have mono more than once...how about three times? I am also wondering if Epstein Bar has a higher reoccrrence during menopause?I am a 48 yr old woman also who has a recurring swollen gland problem down my neck about every other month.... ALWAYS when on my period! I am NOT sick in any other way, just very tender and swollen glands. The doctors dismiss it as NOTHING- perhaps it is. But I am wondering if this is perhaps a low grade virus.... maybe like Epstein Bar? Anyone with a CLUE?Thanks!
    Marykins 1 Replies Flag this Response
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  • Ralph I have tried to post a messgae 3 different times regarding your post it will not show up and I see another post I made 1 time has posted 3 times
    Anonymous 42789 Replies Flag this Response
  • Please be aware that infectious mononucleosis is caused by the Epstein Barr virus (it seemed there was some confusion). Yes, flare-ups are possible. Once infected, you are infected for life. Although most people only have the initial episode, there are certainly others who continue to have problems with flare-ups. You could ask your doctor to have your lymphocytes examined - they have an atypical shape during a flare-up. This can sometimes help pin-point an EB virus flare-up. Good luck to you.
    Anonymous 42789 Replies Flag this Response
  • diet and excersise never seemed to help see the problem with mine is i have quite a few other health problems that make my immune system pretty much non-exsistent the last time i was at the ER for it the doc suggested going to an infectious disease doctor so we are in the process of contacting my doctor at john hopkins to see who he can recommend to most of yall who this is the only health issue yall have diet will help if you have other problems such as being diabetic or having heart problems (not do to how you eat) then i suggest talking to your main doc about seeing an infectious disease doc this is the 3rd time in 2 years ive had it im 18 and have been diagnosed with POTS diabetes chronic fatigue and many allergies all this has ruined alot ive had to be homeschooled for the last 4 years so if anyone can help me get over this one problem that would be great thank youkk
    Gizzy2 2 Replies
    • December 23, 2007
    • 09:57 AM
    • 0
    Flag this Response
  • Hi, I had mono for the first time about 16 months ago. Now I am said to have it again 16 months later. I Have had the flare up total of 5 times in this 16 months period. I can not get rid of it. About a month ago I got my tonsils out and I am still sick with it. I dont understand how I can not get rid of the flare ups. Its no fun when you are a college stundent and you are trying to get a degree.
    Anonymous 42789 Replies Flag this Response
  • Licorice is good for H pylori, but don't take this if you have high blood pressure or heart problems. Also bentanite clay is good, and Oregon grape root. In Chinese medicine it is not unusua to have pathogens (virus or bacteria or parasites) that lodge and hide in the meridians and organs. We treat this very well using acupuncture and Chinese herbal medicine. Please consider this approach if you have recurring mono, epstein barr, or other chronic issues like Hep B or C. It is very effective! St. Johns' Wort , Burdock root are both excellent for Epstein Barr virus. St. John's wort has been known for depression, but it is also antiviral and is very good for skin diseases. Don't take St. John's if you take any antidepressant meds. It is not unusual to suffer from multiple allergies and chemical sensitivities with chronic illness, especially if you have autoimmune dysfunction. The best treatment I have found for this is called NAET -Nambudripad Allergy Elimination Techniques. NAET is fantastic and can help diagnose and clear allergies of all kinds. It is NOT a quick fix and requires multiple treatments. But it can really make a difference and changed my life. www.naet.com for info. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I was first diagnosed with EBV around 2/08 (at 42 yrs old) and since then have had what I call Flare-ups as well. I feel it in my lymph nods immediately. For me, it comes from stress, lack of sleep or any onset of a cold/virus or what have you. I started to research on the internet and found that there were many cases of flare-ups (as I call them). I haven't ever experienced pain in my lymph nods that required a pain reliever before I was diagnosed with EBV and now it has become something I must live with if Im run-down. It is comforting to know that there are others that have the same issues and can understand. Now I dont feel like a hypochondriac.
    Anonymous 42789 Replies
    • October 24, 2008
    • 04:00 PM
    • 0
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  • I too had mono (which only lasted a few days, very strange) doctor diagnosed me with it, through a blood test. Fast forward 5 years or more, (27 now) and I've been getting these flare ups (as you guys/girls call them). Mine have been occuring for the past 2 years. They come on during stress (although i've learned to manage it, and they still come up) every 2 weeks or so, and stay for about 1 week to 1 month. I believe this whole ordeal has been brought back when I picked up HSV1. I think it chipped away at my imune system and now I get these flare ups. I don't get outbreak anymore, but I do get swollen gums, sores on the inside lower lip (in my mouth) and just absolute wrecking fatigue. I am hopeless. dunno what to do.
    sputnik 2 Replies
    • November 4, 2008
    • 02:04 AM
    • 0
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  • I am going through something very similar, unfortunately. When I was 20 I was diagnosed with mono, I was at the doctor, and mentioned how I just felt really under the weather -- tired, achey, really worn down. She did a blood test and told me that I had recently had mono and I was recuperating.I have never felt the same since. Ever since mono, I have had bouts of extreme fatigue, of my lymphnodes feeling very tender and swollen and just feeling malaised in general. Last week I visited an endocrinologist hoping to find an answer in my hormones. She just called me -- apparently my blood shows that I recently had mono and I am recuperating...This is just too weird, I can't believe that BOTH times they have caught it I was "recuperating"...no fever, no major throat issues, just SEVERE fatigue and tender lymphnodes...About 1.5 after the mono hit the first time, I had a mysterious illness they finally credited to an environmental allergy after seeing several specialists and missing months of work -- funny thing was that while I tested negative for mono, my ANA's were a little high, but they never found out why. They were a little high when I had had mono too...I can't imagine living like this forever...I miss having the energy to FUNCTION...sometimes I will be fine (still not 100%, but about 85%) and sometimes I can't get out of bed. The tests keep saying THIS is wrong, but could it be anything else???
    Anonymous 42789 Replies Flag this Response
  • I can honestly say that I feel your pain. There are 2 things you can do. Get tested for viruses. These things live in us forever and cannot be killed / cured. They can put under control. I bet your fatigue comes from your immune system fighting some virus that is "acting up" They stay dormant most of the time, but once stressed, they jump on the opportunity and multiply, infect cells and make your body work overtime to combat it. So do that 1st. 2nd , what helps me is the opposite of what most people tell you. When i get tired, i try to run / exercise / sleep less / do more (through pain and difficulties) and finally at some point the immune system gets complete wrecked, gives up, the virus wins, the fatigue goes away and the virus finally goes away after it is done doing whatever the ***l it was doing. this is my personal experience. Good luck in finding out what is wrong with you. don't treat the symptoms, treat the cause.
    Anonymous 42789 Replies Flag this Response
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