hi all pg victims ( i say that cause my poor husband is a victim)
my husband has been diagnosed with pyoderma gangrenosum last october.....he does not suffer from any other ailments...his was caused by trauma, due to a cut recieved to his calf.
The wound has now extended to 18cm by 21 cm , bone is showing and the remaining surface is covered in necrotic tissue....
surgery is NOT a option here for removing the necrotic tissue as this is classed as trauma ( more trauma/bigger the wound). ampitation is the last resort as there is no guarantee he wouldn't get it in the stump, as this is classed as trauma.
he like all you other sufferers is on oral steroids/ antibiotics/ and any other medication deemed to help) he even has a drip every 8 weeks of a drug called infliximab( to which he has to get funding for). this treatment has slowed the process down but it does not remove the necrotic tissue, we have tried everything from gels to dressings to remove this and surgical debridmentis not a option as again this is trauma. until this is removed the wound will not stand a chance at healing. any suggestions i can mention to his doctor.
he is on morphine tablets and has to top this up with oramorph when the pain is to much to take
please please post any suggestions or ideas .
my husbands case is very rare so all you pg sufferers out there DO NOT PANIC this thing can be healed( we met someone) ...we just have the problem of necrotic tissue.