Discussions By Condition: Medical Stories

Pudendal Nerve? My Mom is getting worse every day

Posted In: Medical Stories 4 Replies
  • Posted By: MouseOB
  • March 22, 2011
  • 02:32 AM

May 10th of last year my Mom started having lower abdominal and vaginal pain. It became so bad by the first of June that she could not sit for longer than 5-10 minutes at a time. By July she had had X-Rays, Blood Work and an Ultra Sound that all showed nothing. The pain was now so bad that even on short car trips she had to lie on her side. In August 2010, doctors did a bone biopsy of her sacrum after seeing a “hot spot” on an X-Ray. Nothing. (At least it wasn’t cancer.) By October she had to cut back her work hours and was standing or laying down, not ever sitting. The vaginal pain is excruciating and over the past 6-8 weeks she has started to have abdominal “attacks” that are similar to IBS attacks except that she has nothing in her bowels to move. So it is like a cross between IBS and an ulcer, except there is no ulcer. It gets so bad that unless she slams herself with pain medication and anti-anxiety medication at the beginning of the attack and gets to bed with either my Dad or myself there to hold her, it will take her to a full-fledge panic attack. She just had a lower-back MRI that only showed some Arthritis, which is normal for a 63-year-old woman. She has fibromyalgia. This is not that. Her Physical Therapist thinks that it is the Pudendal Nerve. But she is the first and only one in 10 months to give us anything, and as a PT, she said she couldn’t fully diagnose. Now the pain is so bad, standing and walking is as painful as sitting, so the only time she gets any relief is when she is on her side in bed. Someone, please help.

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  • I am a massage therapist and have heard some of the same stories about having extreame pain in the abdomen and vagina and the doctors can't find anything wrong. There are a couple of muscular trigger points that will cause that. Look on a trigger point chart or talk to David Kent (trigger point guru) I have his charts and have been in class when he talked about people with stories like your mom's. I even knew a lady with this same problem, it wasn't as painfull though. Good news if that is what it is...it is very fixable. I think there is a trigger point on the back and on the legs that causes this pain, I would have to look at my chart to see exactly where they are.
    Anonymous 42789 Replies Flag this Response
  • May 10th of last year my Mom started having lower abdominal and vaginal pain. It became so bad by the first of June that she could not sit for longer than 5-10 minutes at a time. By July she had had X-Rays, Blood Work and an Ultra Sound that all showed nothing. The pain was now so bad that even on short car trips she had to lie on her side. In August 2010, doctors did a bone biopsy of her sacrum after seeing a “hot spot” on an X-Ray. Nothing. (At least it wasn’t cancer.) By October she had to cut back her work hours and was standing or laying down, not ever sitting. The vaginal pain is excruciating and over the past 6-8 weeks she has started to have abdominal “attacks” that are similar to IBS attacks except that she has nothing in her bowels to move. So it is like a cross between IBS and an ulcer, except there is no ulcer. It gets so bad that unless she slams herself with pain medication and anti-anxiety medication at the beginning of the attack and gets to bed with either my Dad or myself there to hold her, it will take her to a full-fledge panic attack. She just had a lower-back MRI that only showed some Arthritis, which is normal for a 63-year-old woman. She has fibromyalgia. This is not that. Her Physical Therapist thinks that it is the Pudendal Nerve. But she is the first and only one in 10 months to give us anything, and as a PT, she said she couldn’t fully diagnose. Now the pain is so bad, standing and walking is as painful as sitting, so the only time she gets any relief is when she is on her side in bed. Someone, please help. Hi MouseOB,Come on over to http://forums.wrongdiagnosis.com/showthread.php?p=276389&posted=1#post276389 after you reqad the BASICS at http://forums.wrongdiagnosis.com/showthread.php?t=62327. Check her symptoms against the list posted there but do not discuss it there and read the basics. Fibromyalgia, which I used to have along with all sorts of neuropathic pain which I used to have can all be corrected with active b12s, active folate and necessary cofactors.
    Freddd 3576 Replies Flag this Response
  • May 10th of last year my Mom started having lower abdominal and vaginal pain. It became so bad by the first of June that she could not sit for longer than 5-10 minutes at a time. By July she had had X-Rays, Blood Work and an Ultra Sound that all showed nothing. The pain was now so bad that even on short car trips she had to lie on her side. In August 2010, doctors did a bone biopsy of her sacrum after seeing a “hot spot” on an X-Ray. Nothing. (At least it wasn’t cancer.) By October she had to cut back her work hours and was standing or laying down, not ever sitting. The vaginal pain is excruciating and over the past 6-8 weeks she has started to have abdominal “attacks” that are similar to IBS attacks except that she has nothing in her bowels to move. So it is like a cross between IBS and an ulcer, except there is no ulcer. It gets so bad that unless she slams herself with pain medication and anti-anxiety medication at the beginning of the attack and gets to bed with either my Dad or myself there to hold her, it will take her to a full-fledge panic attack. She just had a lower-back MRI that only showed some Arthritis, which is normal for a 63-year-old woman. She has fibromyalgia. This is not that. Her Physical Therapist thinks that it is the Pudendal Nerve. But she is the first and only one in 10 months to give us anything, and as a PT, she said she couldn’t fully diagnose. Now the pain is so bad, standing and walking is as painful as sitting, so the only time she gets any relief is when she is on her side in bed. Someone, please help. Is there any difference between sides? Did it start on any of the sides? Is the pain ambulating?
    Felsen 510 Replies Flag this Response
  • This sounds like possibly pudendal neuropathy, along with proctalgia fugax (which is associated with pudendal neuropathy). You will find more information on this condition at the pudendalhope and other pudendal forums on the web. I have this condition, and found it took numerous doctors and over six years before receiving an accurate diagnosis, then there was no treatment available for it. I got confirmation of diagnosis and surgical treatment for it by traveling from USA to Belgium (where I got excellent care). The medical community is not very well acquainted with this disorder or with this nerve, so it's likely that many of us have spent years just trying to get a diagnosis for the type and source of the pain.
    itskt2u 1 Replies
    • February 9, 2012
    • 05:54 PM
    • 0
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