It was a good pregnancy & a smooth surgery (my fourth c-section). Following delivery, I’ve developed high blood pressure, visual disturbances and a headache. I was hospitalized and diagnosed with post-partum pre-eclampsia by a family doctor and a neurologist, based on my symptoms and an MRI that shows 3-4 white spots on my brain. My OB, who I am very confident in, agrees with this diagnosis, but many doctors we’ve spoken with do not b/c I do not have protein in my urine and my blood work is fine. According to my OB, while protein is pretty normal during a pre-eclamptic pregnancy, post-partum can be quite different & it is quite rare, especially to develop after a fourth child. Because I’m not getting better, and despite the blood pressure meds, my bp continues to fluctuate; my OB became uncomfortable with the status of my health and recommended I seek specialized medical care, which we did. We had a gamut of testing done, all coming back normal, except for the spots on the MRI. Since ruling out the bad stuff, my OB is now handling my care again at this point.
I am now 5 weeks post-partum and still suffering significant headache and visual problems that increase in severity throughout the day. I am currently weaning off some pain meds b/c I dislike the side effects. I have been through 3 rounds of different migraine meds b/c the Indy neurologist decided it must be migraines, though that doesn’t explain my high blood pressures since they were as high as 163/123. Each of the migraine treatments has resulted in me vomiting by the second dose. The spinal tap resulted in a spinal headache and I had a successful blood patch done to relieve that headache, but am left with the “old” headache that I’ve now had for about 5 weeks.
We have seen 18 doctors throughout all of this, with 2 hospitalizations at different hospitals. We’ve ruled out a lot of the bad stuff, but still haven’t found an effective treatment.
We are so frustrated with this all since I’ve been unable to even care for my own children through much of it. The whole first month of my baby’s life has been spent dealing with medical issues and I’ve had to pump 4 times now. I’m blessed that he’s been terrific about taking bottles and formula when he’s needed to and has still gone back to nursing each time. I’m currently building a freezer stash of milk for the possible upcoming hospitalization where they plan to give me IV steroids and heavy narcotics to break the headache. We have not yet agreed to this treatment however.
The latest thought is that I might have too much medicine in my body and be toxic. We'll see what my OB says in a couple of days.
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