Discussions By Condition: Medical Stories

Possible B12 deficiency

Posted In: Medical Stories 7 Replies
  • Posted By: mej833
  • June 30, 2010
  • 03:03 PM

I have been sick for a long time. I can remember symtoms way back as a child. I have been told from array of things it is Fibro.CFS, then thyroid disease (Hashimotoe) addison ( adrenal). I am on thyroid and adrenal support and still feel real bad. My entire body hurts. I can barely get up in the morning. My leg are numb and really are very painful. The fatigue is unrelenting. My body seems to be atroping daily. I always worked out and still try to but cannot make any muscle and I stay very thin. My arms are numb and feel like I am loosing my mind. Just to post this info here is hard to do. I cannot remember things, cannot get out of bed and walking in the morning is very painful. I feel like I am going to fall. My legs are just not right. My doctor say I am not anemic but I am going beg him tomorrow to do the uMMA test. I have read the " Could it be B!". I have read the basics but still not sure where to actually start. I already take supplements: Vit C, Mutli, Mag, Tri B complex, digestive enzymes, 5000mcg of methylb12, DL-phenylalnine, 5p5, omegas

I have stopped the b12 and tri b's in order to take the uMMA test. HOw long do you need to have stopped the b's to take the test. It has been almost 2 weeks. I am feeling much worse since I stopped.

This morning I have felt l like I can barely put one foot in form of the other.

Some of the info , I have read is a little over my head. If the doctor wants to put me on the shots, which I understand that is not always the best either. What is the best shot. I can then add the sublinguals too.

Thanks

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  • I have been sick for a long time. I can remember symtoms way back as a child. I have been told from array of things it is Fibro.CFS, then thyroid disease (Hashimotoe) addison ( adrenal). I am on thyroid and adrenal support and still feel real bad. My entire body hurts. I can barely get up in the morning. My leg are numb and really are very painful. The fatigue is unrelenting. My body seems to be atroping daily. I always worked out and still try to but cannot make any muscle and I stay very thin. My arms are numb and feel like I am loosing my mind. Just to post this info here is hard to do. I cannot remember things, cannot get out of bed and walking in the morning is very painful. I feel like I am going to fall. My legs are just not right. My doctor say I am not anemic but I am going beg him tomorrow to do the uMMA test. I have read the " Could it be B!". I have read the basics but still not sure where to actually start. I already take supplements: Vit C, Mutli, Mag, Tri B complex, digestive enzymes, 5000mcg of methylb12, DL-phenylalnine, 5p5, omegas I have stopped the b12 and tri b's in order to take the uMMA test. HOw long do you need to have stopped the b's to take the test. It has been almost 2 weeks. I am feeling much worse since I stopped. This morning I have felt l like I can barely put one foot in form of the other. Some of the info , I have read is a little over my head. If the doctor wants to put me on the shots, which I understand that is not always the best either. What is the best shot. I can then add the sublinguals too. Thanks Hi Mej833, I doubt that it will tell you anything at all. As the MMA is produced by the mitochondria and once the b12 gets into the mitochondria it stays for a long time it might take 1-5 years to return to the previous deplorable state. High MMA specifically detects adb12 in the mitochondria and adb12 can be made from mb12 in many people though adb12 works better. I had constantly burning muscle pain from lactic acid build up. That started going away the first day I took mb12 and was totally gone in 10 days so clearly I was recharging the mitochondria taking 1mg sublingual daily for 10 days. That never came back even in dramatic setbacks. It is one of the last symptoms to reappear. You had a psoitive response to mb12. That is the only definitive test anyway. I wasn't able to start rebuilding muscle until I started adb12 9 months later. Look, 100% of your symptoms including the Hashimoto's are b12 deficiency symptoms or co-correlates. Who are you trying to prove anything to? If you are taking the Jarrow 5mg mb12 for 45-120 minutes under the lip you are already getting the equivalent to a 1mg daily injection and are doing better than anything the doc is likely to give you.
    Freddd 3576 Replies Flag this Response
  • Fredd, should I start both the mb12 and the adb12 together. I start back ont he mb12 this morning.ThanksHi Mej833, I doubt that it will tell you anything at all. As the MMA is produced by the mitochondria and once the b12 gets into the mitochondria it stays for a long time it might take 1-5 years to return to the previous deplorable state. High MMA specifically detects adb12 in the mitochondria and adb12 can be made from mb12 in many people though adb12 works better. I had constantly burning muscle pain from lactic acid build up. That started going away the first day I took mb12 and was totally gone in 10 days so clearly I was recharging the mitochondria taking 1mg sublingual daily for 10 days. That never came back even in dramatic setbacks. It is one of the last symptoms to reappear. You had a psoitive response to mb12. That is the only definitive test anyway. I wasn't able to start rebuilding muscle until I started adb12 9 months later. Look, 100% of your symptoms including the Hashimoto's are b12 deficiency symptoms or co-correlates. Who are you trying to prove anything to? If you are taking the Jarrow 5mg mb12 for 45-120 minutes under the lip you are already getting the equivalent to a 1mg daily injection and are doing better than anything the doc is likely to give you.
    mej833 6 Replies Flag this Response
  • I took the adb12 yesterday and today and I am having horrible headaches and if feels like my ears and head are full and about to explode. I do not have the with just the mb12. Can you explain what might be going on.ThanksHi Mej833, I doubt that it will tell you anything at all. As the MMA is produced by the mitochondria and once the b12 gets into the mitochondria it stays for a long time it might take 1-5 years to return to the previous deplorable state. High MMA specifically detects adb12 in the mitochondria and adb12 can be made from mb12 in many people though adb12 works better. I had constantly burning muscle pain from lactic acid build up. That started going away the first day I took mb12 and was totally gone in 10 days so clearly I was recharging the mitochondria taking 1mg sublingual daily for 10 days. That never came back even in dramatic setbacks. It is one of the last symptoms to reappear. You had a psoitive response to mb12. That is the only definitive test anyway. I wasn't able to start rebuilding muscle until I started adb12 9 months later. Look, 100% of your symptoms including the Hashimoto's are b12 deficiency symptoms or co-correlates. Who are you trying to prove anything to? If you are taking the Jarrow 5mg mb12 for 45-120 minutes under the lip you are already getting the equivalent to a 1mg daily injection and are doing better than anything the doc is likely to give you.
    mej833 6 Replies Flag this Response
  • I took the adb12 yesterday and today and I am having horrible headaches and if feels like my ears and head are full and about to explode. I do not have the with just the mb12. Can you explain what might be going on. Thanks Hi Mej833, Headaches are very common with startup of active b12s and with deficiencies. Adb12 has two functions; it occupies the mitochondria producing ATP for energy in the muscles and the neurons and it is necessary for the healing of myelin in how the fatty acids are processed. Exactly why those might result in a headache I can't tell you. For adb12, most of the startup effects are usually limited to one or two occasions. What we feel are changes. Once adb12 occupies all the empty spots for it the increase in energy production levels off. It is possible that perhaps that the increased energy caused contracted muscles to contract more strongly causing headaches for intance. If the headaches continue, you may need to adjust the ratio between mb12 and adb12. The muscles may take a while rto come out of a state of chronic contracture which happens with b12 deficiency. They stay contracted until they no longer have the energy to do so becoming extremely tender with neurological changes too. As the ability to eneerate energy comes back they can suddenly contract hard again before the neurology heals and stops sending the wrong signals. I'm just speculating here on possible causes and explaining things that commonly happen with long term deficiency.n If you were not deficient of adb12 it would have no effect at all.
    Freddd 3576 Replies Flag this Response
  • What is the best kind of TMG that you mentioned the the basices. I am have sever physical pain and was wondering how to control this horrible pain that is all over my bodyHi Mej833, Headaches are very common with startup of active b12s and with deficiencies. Adb12 has two functions; it occupies the mitochondria producing ATP for energy in the muscles and the neurons and it is necessary for the healing of myelin in how the fatty acids are processed. Exactly why those might result in a headache I can't tell you. For adb12, most of the startup effects are usually limited to one or two occasions. What we feel are changes. Once adb12 occupies all the empty spots for it the increase in energy production levels off. It is possible that perhaps that the increased energy caused contracted muscles to contract more strongly causing headaches for intance. If the headaches continue, you may need to adjust the ratio between mb12 and adb12. The muscles may take a while rto come out of a state of chronic contracture which happens with b12 deficiency. They stay contracted until they no longer have the energy to do so becoming extremely tender with neurological changes too. As the ability to eneerate energy comes back they can suddenly contract hard again before the neurology heals and stops sending the wrong signals. I'm just speculating here on possible causes and explaining things that commonly happen with long term deficiency.n If you were not deficient of adb12 it would have no effect at all.
    mej833 6 Replies Flag this Response
  • What is the best kind of TMG that you mentioned the the basices. I am have sever physical pain and was wondering how to control this horrible pain that is all over my body Hi Mej833, During my b12 deficiency decades I had 4 or 5 separately identifiable types of muscle pain that went away at various intervals and about as many different neurologically caused pains. Overall my pain levels came down about 95% or more at around 9 months many things normalized. I use 95% or more if perception of pain is the same as perceived intensities of other testable sensory modes; that a JND (Just Noticable Difference) is equivalent to about 1/3 of a doubling. Also pain is at least two dimensional. One might call the dimensions "intensity" and "substantialness". It's like there is a limited range of intensity and when it reaches the top, the scale resets and one notches up on the "substantialness" scale. So as pain diminishes a phenominum occurs whereby the "substantialness" diminishes and the remaining pain "unpacks" and expands to high intensity again but not as substantial. It's sort of like a decimal system. One goes up the scale untill you have 9 units in the ones col and then instead of having 10 units in the ones col you have 1 unit in the 10s col instead. But then each unit increase is a 10. Then at 10x10 it packs again and you gert a 1 in the 100s col. These experiences can be confusing, how intensity can appear to increase but not be as "substantial" or intensity decreases but the total pain has more umph to it. TMG was one of the things that did cause a decrease in overall pain, but only after the mb12, adb12, l-carnitine fumarate and others had allowed considerable healing of the causes of pain. Mb12 caused the largest reduction in pain. The problem is that the nervous system intensity goes up initially (caused by functionality increases of mb12) causing an increased perception of pain with great clarity before the healing occurs causing the actual pain to increase. The adaptions to pain by shutting down perception are undone by mb12 making it seem as if there is more pain when it appears to actually be improved and clearer perception of the pain that is actually there. As far as I know there is no way to have the healing without the functionality improvements. The muscle pain heals with adb12. mb12, and l-carnitine fumarate and alpha lipoic acid. Exercise is important as that appears to be the actual stimulous that provokes muscle healing. Can you describe each individual type of pain? I don't know that there are any different "types" of TMG. It is a natural component of sugar beet molassis that is extracted and sold separately. I have used 2 different brands and been equalky satisfied with both; Jarrow and NOW foods.
    Freddd 3576 Replies Flag this Response
  • Happy 4th. The pain is debilitating. I could hardly move my arms this morning. They are like dead weights. My arms feel numb and burning and it radiates through my chest. I feel engulfed by it, almost like I can't breath. It starts before I can fall asleep. My leg are also numb and burn. I was told I had periformous symdrome. Sometimes the pain in my upper leg and butt hurt so bad I can hardly sit. My legs just give out in the morning when I try to stand. I have such a hard time trying to straighten my legs. My neck hurts and I cannot move it side to side very easily. The bottom of my feel feel like they are bruised.I was wondering how to take the b12 and adb12. I started both and the same time. I reduced the ad b12 to 1200 mcg (split the 3000mct) and I am taking 2500 mb12 in morning and 2500 in the afternoon. The adb12 makes me feel bad. My head feels full and like I just have a bunch of fluid in there. I am trying to figure and understand from the reading the basics when to take and how to start all of this. I am afraid to add to much and have some really bad reaction and not know what it is. My teeth even hurt. I just feel like crazy and very depressed. I have a hard time keeping on weight. I eat a good diet and probably most than most people. I don't think it is just because I have a fast metabolism. I just feel bad every day of my life. I have no personality, I just feel like a shell of a human being.I guess that pretty well sums it up. ThanksHi Mej833, During my b12 deficiency decades I had 4 or 5 separately identifiable types of muscle pain that went away at various intervals and about as many different neurologically caused pains. Overall my pain levels came down about 95% or more at around 9 months many things normalized. I use 95% or more if perception of pain is the same as perceived intensities of other testable sensory modes; that a JND (Just Noticable Difference) is equivalent to about 1/3 of a doubling. Also pain is at least two dimensional. One might call the dimensions "intensity" and "substantialness". It's like there is a limited range of intensity and when it reaches the top, the scale resets and one notches up on the "substantialness" scale. So as pain diminishes a phenominum occurs whereby the "substantialness" diminishes and the remaining pain "unpacks" and expands to high intensity again but not as substantial. It's sort of like a decimal system. One goes up the scale untill you have 9 units in the ones col and then instead of having 10 units in the ones col you have 1 unit in the 10s col instead. But then each unit increase is a 10. Then at 10x10 it packs again and you gert a 1 in the 100s col. These experiences can be confusing, how intensity can appear to increase but not be as "substantial" or intensity decreases but the total pain has more umph to it. TMG was one of the things that did cause a decrease in overall pain, but only after the mb12, adb12, l-carnitine fumarate and others had allowed considerable healing of the causes of pain. Mb12 caused the largest reduction in pain. The problem is that the nervous system intensity goes up initially (caused by functionality increases of mb12) causing an increased perception of pain with great clarity before the healing occurs causing the actual pain to increase. The adaptions to pain by shutting down perception are undone by mb12 making it seem as if there is more pain when it appears to actually be improved and clearer perception of the pain that is actually there. As far as I know there is no way to have the healing without the functionality improvements. The muscle pain heals with adb12. mb12, and l-carnitine fumarate and alpha lipoic acid. Exercise is important as that appears to be the actual stimulous that provokes muscle healing. Can you describe each individual type of pain? I don't know that there are any different "types" of TMG. It is a natural component of sugar beet molassis that is extracted and sold separately. I have used 2 different brands and been equalky satisfied with both; Jarrow and NOW foods.
    mej833 6 Replies Flag this Response
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