Hi first of all I apologize because this might be somewhat of a long story.
I have had irregular and lengthy periods since I can remember, probably early teens (I am nearly 24 now.) They have never been painful that I can remember, though I have always had some digestive trouble with cramping in what I believe to be my intestines, not due to any period cramping because it came with diarrhea or constipation. I have had my gallbladder out since which has compounded the digestion problems a bit. (Sorry gross.) The way the periods have been for years now is lasting for 3+ months at a time with varying heaviness and clots going away for a week then coming back for another couple months.
In June and into the first weeks of July I began to have very bad pain and fatigue. The pain was in my lower abdomen with some pain/tenderness in my upper stomach, pain in my lumbar spine/hip, and also in my chest with tightness and shortness of breath I attributed to my asthma. I could not lay/sleep comfortably for the pressure it put on the insides of abdomen and my ribs. There is also intermittent joint pain, nausea, and vision changes like floaters and some flashes of black. I went to the ER for this chest pain and a sudden shooting/boring pain in my lower right abdomen. They took some cat scans/x-rays and treated the asthma. There was nothing wrong with my heart. Upon further scrutiny an ultrasound and x-ray revealed an 18mm follicle on my right ovary and a thickened endometrium (2.6cm) and also what may be a herniated disc in my spine (which explains the lower back pain to me, not abdomen and other symptoms.) The ER doctor brought up endometriosis.
I went to an gyno for followup and she wanted to do an endometrial biopsy before treating to rule out cancer. She felt I was very pale and my lining was about twice what it should be. She brought up the possibility of von willebrand's disease (blood clotting disease) and low blood sugar. If the biopsy were normal she planned to have me take something to "clean me out" and also something to lose weight that is usually given to diabetics. (Does this mean she thought it was PCOS?) I had trouble getting the biopsy done at this office due to their changing policies so I had to make an appointment with another gyno.
The second gyno said she believed I was too young to have cancer so she didn't think she should put me through a biopsy and she also didn't think I have endometriosis for a similar reason. (Age/onset/symptoms.) She didn't think the lining was as serious as the other gyno and that "some people just bleed a lot." She says I have PCOS because of the follicle on the ovary, heavy/lengthy bleeding, weight, and hair on my arms. I was sent for blood tests to determine some hormone levels and whether or not I have von willebrand's. (Haven't come back yet.) She prescribed microgestin (yet another birth control pill, sigh, I've been on tons of different ones this is always how the docs have treated the period with a BCP and a brush off.)
Based on all of this do you think it is PCOS and that endometriosis is already ruled out (and no screening should be done for cancer?) What do you think of the contrasting opinions of these gynos? One genuinely worried and wanting to rule out cancer, the other nice but fairly unconcerned and certain it couldn't be cancer or endometriosis at all.
The microgestin has prevented the onset of my next period (though there has been some little spotting here and there.) But I am worried only because I still have the abdomenal pain especially when laying down on either side or stomach, fatigue, and nausea/digestion issues.
/End long ramble. Thanks in advance.
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