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Polycystic Ovary Syndrome + Asthma?

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • August 22, 2007
  • 04:09 PM

Hi first of all I apologize because this might be somewhat of a long story.

I have had irregular and lengthy periods since I can remember, probably early teens (I am nearly 24 now.) They have never been painful that I can remember, though I have always had some digestive trouble with cramping in what I believe to be my intestines, not due to any period cramping because it came with diarrhea or constipation. I have had my gallbladder out since which has compounded the digestion problems a bit. (Sorry gross.) The way the periods have been for years now is lasting for 3+ months at a time with varying heaviness and clots going away for a week then coming back for another couple months.

In June and into the first weeks of July I began to have very bad pain and fatigue. The pain was in my lower abdomen with some pain/tenderness in my upper stomach, pain in my lumbar spine/hip, and also in my chest with tightness and shortness of breath I attributed to my asthma. I could not lay/sleep comfortably for the pressure it put on the insides of abdomen and my ribs. There is also intermittent joint pain, nausea, and vision changes like floaters and some flashes of black. I went to the ER for this chest pain and a sudden shooting/boring pain in my lower right abdomen. They took some cat scans/x-rays and treated the asthma. There was nothing wrong with my heart. Upon further scrutiny an ultrasound and x-ray revealed an 18mm follicle on my right ovary and a thickened endometrium (2.6cm) and also what may be a herniated disc in my spine (which explains the lower back pain to me, not abdomen and other symptoms.) The ER doctor brought up endometriosis.

I went to an gyno for followup and she wanted to do an endometrial biopsy before treating to rule out cancer. She felt I was very pale and my lining was about twice what it should be. She brought up the possibility of von willebrand's disease (blood clotting disease) and low blood sugar. If the biopsy were normal she planned to have me take something to "clean me out" and also something to lose weight that is usually given to diabetics. (Does this mean she thought it was PCOS?) I had trouble getting the biopsy done at this office due to their changing policies so I had to make an appointment with another gyno.

The second gyno said she believed I was too young to have cancer so she didn't think she should put me through a biopsy and she also didn't think I have endometriosis for a similar reason. (Age/onset/symptoms.) She didn't think the lining was as serious as the other gyno and that "some people just bleed a lot." She says I have PCOS because of the follicle on the ovary, heavy/lengthy bleeding, weight, and hair on my arms. I was sent for blood tests to determine some hormone levels and whether or not I have von willebrand's. (Haven't come back yet.) She prescribed microgestin (yet another birth control pill, sigh, I've been on tons of different ones this is always how the docs have treated the period with a BCP and a brush off.)

Based on all of this do you think it is PCOS and that endometriosis is already ruled out (and no screening should be done for cancer?) What do you think of the contrasting opinions of these gynos? One genuinely worried and wanting to rule out cancer, the other nice but fairly unconcerned and certain it couldn't be cancer or endometriosis at all.

The microgestin has prevented the onset of my next period (though there has been some little spotting here and there.) But I am worried only because I still have the abdomenal pain especially when laying down on either side or stomach, fatigue, and nausea/digestion issues.

/End long ramble. Thanks in advance.

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2 Replies:

  • Hi. I hav read your post, and I am concerned for you. I believe that the second gynecologist you have seen is not taking your symptoms seriously. I went through basically the same symptoms a couple of years ago, and was going to the emergency room very often with horrible pain all over my body. I researched my symptoms, and I found that my symptoms fit best with endometriosis, but my gyno told me that my symptoms didn't fit with that disease (idiot). Well, I put up with the pain for six months, trying different types of birth control pills, with no change in the symptoms before I went to see another gyno. This one wanted to do a laparoscopy to rule out cancer and endometriosis. Well, it turns out that I did have endometriosis, and not cancer.After the laparoscopy, I felt like a new woman. I definitely think that you should take the advice of the first doctor you saw and get tested for endometriosis and cancer. Hope this helps.
    Anonymous 42789 Replies
    • August 23, 2007
    • 04:43 AM
    • 0
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  • Making this long post even longer I forgot to mention there are heart palpitations and a feeling of pulsating inside that goes with the pressure felt upon laying down putting pressure on part of the abdomen. Occasionally my muscles in my arms or legs will spasm/tremble for a short period of time. I feel I have become very sensitive to pressure on most part of my body. I have developed small pinpoint red dots in some places such as on my arms and abdomen. One point of pain that stands out is the piercing pain I sometimes get just below my sternum and off to the right side (next to one of my gallbladder surgery scars.) If I press into it I can feel a small round mass protruding in the spot of the pain next to the ribs.Could the narrowing seen in the lumbar spine be causing all this?
    Anonymous 42789 Replies
    • August 23, 2007
    • 05:57 AM
    • 0
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