Discussions By Condition: Medical Stories

PLEASE, PLEASE I need an answer for my son !!!!!!

Posted In: Medical Stories 21 Replies
  • Posted By: Jcop3657
  • August 1, 2008
  • 03:28 PM

If someone could please help me I would be so very grateful !! My 17 year old son has been suffering with stomach pain & large painful bowel movements for some time. We have taken him to many doctors who said he would grow out of it and drink water. We just took him to another doctor last week and he scheduled a colonoscopy. The doctor told us that he could possibly have Crohn's Disease, but is waiting for the blood work and he scheduled another test for next Monday, an upper GI. He was also diagnosed with anemia. I have been looking on the internet for days and have found some surprising information. My son has a speech problem, he gets caught up on some words and strains to get them out. When he was a baby he could not breath when drinking his bottle and throw his arms back & start screaming. The Pediatrician told us his nose was stopped up and gave us nose drops. He would make up his own words for some objects and people's names. We thouoght it was cute and didn't think anything of it. As he got older in his early teens he started to complain of stomach pain and had very large bowel movements. He ripped his skin because they were so large. The doctor advised us that nothing was wrong and told him to drink more water. He played soccer for a while and was also in Marching Band....he complained of ankle pain both times, he also complained of shoulder pain last month and could not think of anything he did to hurt it. This has been going on for a while also, he would complain of pain and he always associated it with different activites. Two days ago Matthew came to me & my husband and told us he thought he had a panic attack the night before. He described getting very nervous & scared while in bed, his heart started pounding, his breathing changed, and he felt like he was going to die. As we were discussing this he told us that this happened many times when he was younger but he never told us. He said he didn't know why he didn't tell us just that he was younger and didn't know it was anything. Since going on the internet and reading about all the different symptons I am getting very nervous. It seems we had many red flags when he was younger and didn't realize it. We listened to the doctors and never questioned anything. I have read that speech problems associated with different symptons that Matthew has like; stomach pain, large bowel movements, headaches, body pain (different areas), panic attacks, anemia, leg cramps, dizziness, very picky eater, weight loss, can be many different conditions.
If anyone has had similar symptons or knows a conditon that has these symptoms, please let us know. We are so worried and feel so, so guilty that he has suffered for so many years and we had no idea. We should not of listened to the doctors and kept taking him for 2nd, 3rd, 4th opinioins until we got an answer instead of the same old "hes ok, he will grow out it" answer.
I probably left some symptons out becasue I am so very tired. I have been on the internet since his last doctors appointment all hours of the day and night trying to find some information. If you have any questions please send me an e-mail and I will answer them.

Thank you so much for any help you can give !!

Lesley

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21 Replies:

  • You might go to a DAN defeat autism now doctor for your son. The speech problems and irritable bowel disease/Crohn's which are auto-immune disorders and irritability in panic attack sound like what my kids had after vaccine reactions to vaccines containing aluminum and mercury. My son was diagnosed with aluminum poisoning but zinc helped him. Also picky eating (sensory disorder), anemia can be associated with this as low iron and zinc allow the aluminum in vaccines and foods into the brain and also do not help to flush out the aluminum as normal levels of zinc and iron do. I don't think your son is autistic, but a DAN can test for low zinc/high copper and low iron and other minerals as well as do a stool test for harmful organisms. They also look for heavy metals and aluminum in hair and other tests. I am sorry your son is going through this. I hope you are working with a GI doctor who is caring and helpful for the Crohn's...drinking water doesn't seem like it is helping him. My kids have food allergies (also known to be caused by aluminum as well as other allergies like asthma and eczema) so I know it is hard to have to eat a special diet, but after you all adjust to reading labels and the change in foods it does get easier. We are all now avoiding aluminum as well as nuts in our family's diet, and all feeling better health but most of all my kids are healthier.
    Anonymous 42789 Replies Flag this Response
  • Is there any family history of anything? Even if it seems unrelated..
    qwertyuiop123 453 Replies Flag this Response
  • Thank you all for your responses. My son went for his Upper GI and the doctor said he found; acid reflux, corroded stomach, possible ulcer. He took some biopsies and my son is also scheduled for another test next week. His doctor wants to wait for the test results and biopsies before we sit down and discuss what all this could mean. Meanwhile my son is still suffering from the stomach pain, migraines, getting the chills, panic attacks, no energy, very irritable at times, and it almost seems like he is straining more with his speech. The doctor wrote a prescription for stool softner, acid reflux medication, and a laxative. He is taking Ibuprofen 800 for his headaches. I just don't want to see him in pain anymore ! I don't understand how an 18 year old boy can get an ulcer. He has a brother and a sister who don't have any of the symptons that Matthew has. It makes no sense to me. We are also making an appointment with a speech pathologist to see if they can suggest anything and see if all his symptons somehow are related to his early childhood and speech problems. Hopefully this nightmare will end and my son will have some answers soon.
    Jcop3657 2 Replies Flag this Response
  • Make sure they check Helicobacter pylori. Good luck!
    Felsen 510 Replies Flag this Response
  • I just found this link http://www.medhelp.org/forums/gastro/archive/6371.html which suggests malabsorbtion as a reason for large stools. Also, here is a site that lists some causes of malabsorption http://digestive-disorders.health-cares.net/malabsorption-causes.php here's another link to wikipedia's info on pernicious anemia http://en.wikipedia.org/wiki/Pernicious_anemia
    qwertyuiop123 453 Replies
    • August 12, 2008
    • 09:43 PM
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  • We found out today that my son has Crohn's Disease. What a shock, I know nothing about it and nobody in our family has it. The doctor said it is common for young people to be diagnosed with it. He did not go into detail very much today because there are 2 more tests he wants to run. Matthew will have to drink a white liquid and have some x-rays taken and depending on the results he also might have to have an endocapsule. I will be doing a lot of research on Crohns disease....I have so many questions. His anemia was caused by the Crohns disease i would imagine. I really dont know what else the doctor is looking for, but he is waiting for the test results before he gives us any medication and a full explanation. You know how busy doctors are, we go in and he talks and explains very fast. We are out the door making another appt. and realize we have so many unanswered questions. My hope is that he will sit and consult with us once he gets all the test results back. My son just graduated high school and was looking forward to his first year of college. It is so hard to see him go through all this and know how much pain he is in. I just hope and pray the other tests come back negative for whatever the doctor is looking for. I can't wait till all testing is over so we can start to move forward and do what we need to do for my son.I want to thank everyone for taking the time to reply and if anyone has any information on Crohns Disease / Anemia I would greatly appreciate anything you could tell me. Thank you very much !!
    Jcop3657 2 Replies
    • August 13, 2008
    • 03:52 AM
    • 0
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  • http://www.webmd.com/ibd-crohns-disease/crohns-disease/tc/crohns-disease-symptoms http://library.med.utah.edu/WebPath/TUTORIAL/IBD/IBD.html http://ibdcrohns.about.com/cs/relatedconditions/a/tiredblood.htm http://www.healthcentral.com/ibd/c/91113/32440/anemia-part-deficiency/ Your welcome, and I'm sorry your son is having to go through all this. I hope the other tests come back negative, and he feels better soon.
    qwertyuiop123 453 Replies
    • August 13, 2008
    • 04:02 PM
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  • Try not to worry to much. I know how shocking the chrons diagnose can be, but it isnt as bad as it sounds.... You should find great support here: www.healingwell.com Hugs from Kiera with Crohns....
    Anonymous 42789 Replies
    • August 13, 2008
    • 04:28 PM
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  • Thank you all for your responses. My son went for his Upper GI and the doctor said he found; acid reflux, corroded stomach, possible ulcer. He took some biopsies and my son is also scheduled for another test next week. His doctor wants to wait for the test results and biopsies before we sit down and discuss what all this could mean. Meanwhile my son is still suffering from the stomach pain, migraines, getting the chills, panic attacks, no energy, very irritable at times, and it almost seems like he is straining more with his speech. The doctor wrote a prescription for stool softner, acid reflux medication, and a laxative. He is taking Ibuprofen 800 for his headaches. I just don't want to see him in pain anymore ! I don't understand how an 18 year old boy can get an ulcer. He has a brother and a sister who don't have any of the symptons that Matthew has. It makes no sense to me. We are also making an appointment with a speech pathologist to see if they can suggest anything and see if all his symptons somehow are related to his early childhood and speech problems. Hopefully this nightmare will end and my son will have some answers soon. I want to sujjest you a very easy food suppliment,just go to a Pakistani or indian shop.Ask For Isbaghol Chhilka or Isbaghol Bhukki and use it with yougret according to advise written on packet but it wil eatable immidiately after mixing with yougret ,you can add sugar also if your son likes it .It is very simple easy way used in Asia since senturies.
    Anwer Pasha 17 Replies
    • August 14, 2008
    • 06:06 AM
    • 0
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  • Please have them check his B12 level... many people with Crohn's are deficient... If he is under 500 pg/ml he is deficient although the doctor will tell you he is fine... Please read the B12 forum on here, it is very very helpful... He has alot of symptoms of B12 defiency and those supplements could help him also... Good luck...
    janemarie5 11 Replies
    • August 17, 2008
    • 11:10 AM
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  • also test for celiac's (gluten intolerance)...autoimmune and could result in ALL of these things!
    Anonymous 42789 Replies
    • August 21, 2008
    • 07:57 PM
    • 0
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  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Hi! I just joined this site and posted a thread with almost the same theme. My son, 19, was just diagnosed with Crohn's Disease too. That on top of having Hirschprung's Disease. Not sure if your son may have that too. Doesn't sound like the doctors even considered that as a possibility. If you don't know what it is, basically it is when nerves do not develop in the large intestines causing constipation and/or diarrhea. It can affect a small portion up to the whole large intestine. Thomas' was the whole thing. He was diagnosed at age 3 days old. At age 4 he had his whole large intestines removed and a procedure called a pull through done. Since your son has had testing done, I would guess if he had anything like this it would have shown up. What I was wondering is if your son might want to get in touch with mine. Or if Thomas could get in touch with him. It's always easier to deal with stuff when you aren't going through it alone. Not that your Matthew is alone, but you know how teens can be... "us parents just don't understand" :D and talking to someone going through the same thing especially around the same age may help some. Let me know. I can be emailed at Dustyrose6767@verizon.net.And if you want to write, feel free! I completely understand what you mean about the "guilty" feelings. Both of the things Thomas is dealing with are hereditary and I can't help but feeling like I have done this to him. The hard part is, Thomas' father and I are both adopted so we have no way to know which side of the family this came from. Hope to hear from you and I hope Matthew is doing better!Lani
    LaniLin 1 Replies
    • August 23, 2008
    • 03:32 AM
    • 0
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  • Hi ThereI hope your son is feeling a little better.....Did you ever get him tested for B12 as someone else suggested....Would love to know how he went......Best wishes
    Rainbows End 227 Replies
    • August 24, 2008
    • 00:41 AM
    • 0
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  • Hello sir .just give him two rotten apples a day and tell your son to stop underastimating or stop disbelieving in himself ..he will be fine ..okay .
    Anonymous 42789 Replies
    • November 7, 2008
    • 04:43 PM
    • 0
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  • Thank you very much.We provide him almost daily fresh apple Juice to him through his feeding tube .We shall try to convey your message to him.Please read the Story of Terri Wallis of Arkansas (USA) A Persistent Vegetative (Now Called Minimally Conscious) State Like Jawad Pasha of Pakistan at www.theterrywallisfund.org/history I have read this story yesterday and those who are reading story of Jawad Pasha since last five months here can understand now how correct we are ? Please keep praying for Jawad Pasha.He is improving by grace of god.He is awakening.It may take weeks or months or years but it looks nearby. We still need guidance.It is very important.It is changing the history of brain injury but we are looking to the some specialists like the physiotherapy deptt of University of Pretoria. Thus may be a help to thousands like Jawad Pasha at USA and other countries.Jawad Pasha is now improved and can be called a Fully Conscious state or Fully Aware state.
    Anwer Pasha 17 Replies
    • November 9, 2008
    • 01:10 AM
    • 0
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  • I have been writing here in hope to see some support for my son Jawad Pasha of Pakistan by the Specialists at USA but after looking result for their own patients in Coma , Vegetative State , MCS & Locked in Syndrome, I am just hope less.I have seen yesterday report at Texas Time wrap about such patients in a single state and I would have to say now that this is a metter more than wrong diagnoses.The whole system about Traumatic brain injury is perhaps on wrong feets and need total revival.
    Anwer Pasha 17 Replies
    • December 5, 2008
    • 11:08 PM
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  • I read your sons story on another webpage, and I will keep him and the rest of your family in my prayers. Remember, the number of people not treated well are greatly outnumbered by those who are treated very well, however people are usually quick to warn people or ask for help when they've had a bad experience with a doctor, they aren't as quick to go on the internet and praise the doctor when they've had a great experience.
    qwertyuiop123 453 Replies
    • December 6, 2008
    • 07:19 PM
    • 0
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  • Thank you God bless youYou are quite right. Please once again have a look on results of Vegetative MCS and locked in syndrome
    Anwer Pasha 17 Replies
    • December 6, 2008
    • 09:33 PM
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  • Here is a list of United States clinical trials, you have mentioned we are not yet at a point where we can help some people with brain injuries, but we are trying to get there. I don't know what you think of clinical trials, or if he would fit the criteria, but here is the link http://clinicaltrials.gov/ct2/results?term=brain+injury&recr=Open&rslt=&type=&cond=&intr=&spons=&id=&state1=&cntry1=NA%3AUS&state2=&cntry2=&state3=&cntry3=&locn=&age=1&rcv_s=&rcv_e=&lup_s=&lup_e=
    qwertyuiop123 453 Replies
    • December 6, 2008
    • 09:43 PM
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  • http://clinicaltrials.gov/ct2/show/NCT00594503?term=brain+injury&recr=Open&cntry1=NA%3AUS&age=1&rank=15 I have heard wonderful things about hyperbaric chambers so this trial really caught my eye http://clinicaltrials.gov/ct2/show/NCT00594503?term=brain+injury&recr=Open&cntry1=NA%3AUS&age=1&rank=15 I know of a baby who was shaken by a babysitter, and began hyperbaric chamber therapy, and with prayers and hard work he has improved beyond the doctors expectations. Would you be able to come to America and stay long enough to participate in a trial such as this? Would he be staying in America for awhile, or just be seen and then return to pakistan?
    qwertyuiop123 453 Replies
    • December 6, 2008
    • 09:47 PM
    • 0
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