Discussions By Condition: Medical Stories

Please Help - vitamin B-12 deficiency

Posted In: Medical Stories 8 Replies
  • Posted By: *Heidi*
  • August 10, 2008
  • 10:13 AM

I'm looking for some help desperately. I have been ill for around 8 years now. Every doctor has told me I'm a hyperchondriact, it's all stress, it's all in my mind, my grandad and mum have depression...and that's why I had it, etc etc. No one got to the root of the problems. I am suffering muscle weakness, a VERY sore toungue and mouth, dizziness, I stagger for 10 minutes after I wake up, I have very very little energy...and I work nights so this is very hard for me. I am off my food and anaemic. I am so confused as I keep losing things, my memory is all over the place and I cry all the time. FINALLY, on Friday (2 days ago) my oral consultant found my vitamin B-12 level is 19. Is this very low? I'm reading that it should be around 500....so as a vet nurse I'm guessing this is quite bad and finally, a reason for my problems. I pick things up and I don't know where I'm putting them...when you're trying to save an animals life...u don't want to be giving it the wrong drugs...I fear this will happen in time if I'm not treated asap. I cry lots and my head is pounding sitting here. They said I must have 6 injections at some point and then a healthy diet after that...I have a healthy diet now and I have multi vitamins and iron. I don't think my body is absorbing it as it should be and I'm scared that I'm going to loose my sanity at this rate. How can I get better? I phoned the NHS direct this morning who had no idea of the condition and kept looking up vitamin C instead and I just got frustrated and ended the call when they told me that it's not serious, before they'd looked up the condition. I nearly got the sack from my job last year as it's ruining my life and I have no energy to put effort into my work...I don't want to lose this job too. I would like to think I'm level headed, I see a lot of serious cases at work so I tend not to worry about something unless it is a big issue...and I feel this is. Please help me ;o( xxx

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8 Replies:

  • If getting B12 shots doesn't solve your problems you might want to get your vitamin D level checked as well.Low B12 foods are also low D and D deficency causes all sorts of problems.
    Anonymous 42789 Replies Flag this Response
  • Hi! sorry to hear you are feeling so low. It does certainly sound as if you are in need of B12 injections. Usually you have a couple with 12 week intervals and then a blood test again will decide whether you will need to continue, probably for life, with the injections. I did also think that you might be suffering with a thyroid problem so it wouldn't hurt to get that checked out as well. Hope this has helped somewhat. Trishac http://forums.wrongdiagnosis.com/images/icons/icon11.gif
    Trishac 1 Replies Flag this Response
  • I'm looking for some help desperately. I have been ill for around 8 years now. Every doctor has told me I'm a hyperchondriact, it's all stress, it's all in my mind, my grandad and mum have depression...and that's why I had it, etc etc. No one got to the root of the problems. I am suffering muscle weakness, a VERY sore toungue and mouth, dizziness, I stagger for 10 minutes after I wake up, I have very very little energy...and I work nights so this is very hard for me. I am off my food and anaemic. I am so confused as I keep losing things, my memory is all over the place and I cry all the time. FINALLY, on Friday (2 days ago) my oral consultant found my vitamin B-12 level is 19. Is this very low? I'm reading that it should be around 500....so as a vet nurse I'm guessing this is quite bad and finally, a reason for my problems. I pick things up and I don't know where I'm putting them...when you're trying to save an animals life...u don't want to be giving it the wrong drugs...I fear this will happen in time if I'm not treated asap. I cry lots and my head is pounding sitting here. They said I must have 6 injections at some point and then a healthy diet after that...I have a healthy diet now and I have multi vitamins and iron. I don't think my body is absorbing it as it should be and I'm scared that I'm going to loose my sanity at this rate. How can I get better? I phoned the NHS direct this morning who had no idea of the condition and kept looking up vitamin C instead and I just got frustrated and ended the call when they told me that it's not serious, before they'd looked up the condition. I nearly got the sack from my job last year as it's ruining my life and I have no energy to put effort into my work...I don't want to lose this job too. I would like to think I'm level headed, I see a lot of serious cases at work so I tend not to worry about something unless it is a big issue...and I feel this is. Please help me ;o( xxx Come on over to the b12 forum where this will get read ans answered by people succwessfully dealing with these same problems.http://forums.wrongdiagnosis.com/newreply.php?do=newreply&p=233219 Read the basics, and post to the first listing all your symptoms and compare to the list provided on basics.http://forums.wrongdiagnosis.com/showthread.php?t=62327
    Freddd 3576 Replies Flag this Response
  • Hi! sorry to hear you are feeling so low. It does certainly sound as if you are in need of B12 injections. Usually you have a couple with 12 week intervals and then a blood test again will decide whether you will need to continue, probably for life, with the injections. I did also think that you might be suffering with a thyroid problem so it wouldn't hurt to get that checked out as well. Hope this has helped somewhat. Trishac http://forums.wrongdiagnosis.com/images/icons/icon11.gif I have had my thyriod checked my times. My mom, aunt, and brother, pretty much my hole family. I get that checked at least every year. See when I first found out that my b12 waslow my family dr started me out on once a month injections. I went back the next month to get my next injection and the did blood work before they gave it to my and when the blood test came back my levels didn't raise at all. :eek: So I went back in and suggusted to my dr to do once a week injections. We did that for a month. That got my level up to about 250, so we went back to doing monthly injections. My level went up a little after that but not alot. Things got bad when I skipped a month because things were really bad at my and plus it was december. Well then in january I go in for blood work and injection and my level is back down to the hundreds so just skipping a month dropped my level that much. :eek: Thats when I found this sit and started on the vitaims that were suggusted. I increased the amount over time but it has done nothing to improve the level. When I go in on Friday I will get my doc to check my vitiam d levels. My doc is really good at listiening and trying new things. Which is great. He calls are family the mystry and when ever he has a student with him he sends them in to listien to all we have going on. :rolleyes:
    scooterbug124 8 Replies Flag this Response
  • I have had my thyriod checked my times. My mom, aunt, and brother, pretty much my hole family. I get that checked at least every year. See when I first found out that my b12 waslow my family dr started me out on once a month injections. I went back the next month to get my next injection and the did blood work before they gave it to my and when the blood test came back my levels didn't raise at all. :eek: So I went back in and suggusted to my dr to do once a week injections. We did that for a month. That got my level up to about 250, so we went back to doing monthly injections. My level went up a little after that but not alot. Things got bad when I skipped a month because things were really bad at my and plus it was december. Well then in january I go in for blood work and injection and my level is back down to the hundreds so just skipping a month dropped my level that much. :eek: Thats when I found this sit and started on the vitaims that were suggusted. I increased the amount over time but it has done nothing to improve the level. When I go in on Friday I will get my doc to check my vitiam d levels. My doc is really good at listiening and trying new things. Which is great. He calls are family the mystry and when ever he has a student with him he sends them in to listien to all we have going on. :rolleyes: Hi Scooterbug, I answered ypu on the b12 thread you also posted to. If you answer my questions I posted we might be able to help you with your problem.
    Freddd 3576 Replies Flag this Response
  • I'm looking for some help desperately. I have been ill for around 8 years now. Every doctor has told me I'm a hyperchondriact, it's all stress, it's all in my mind, my grandad and mum have depression...and that's why I had it, etc etc. No one got to the root of the problems. I am suffering muscle weakness, a VERY sore toungue and mouth, dizziness, I stagger for 10 minutes after I wake up, I have very very little energy...and I work nights so this is very hard for me. I am off my food and anaemic. I am so confused as I keep losing things, my memory is all over the place and I cry all the time. FINALLY, on Friday (2 days ago) my oral consultant found my vitamin B-12 level is 19. Is this very low? I'm reading that it should be around 500....so as a vet nurse I'm guessing this is quite bad and finally, a reason for my problems. I pick things up and I don't know where I'm putting them...when you're trying to save an animals life...u don't want to be giving it the wrong drugs...I fear this will happe!n in time if I'm not treated asap. I cry lots and my head is pounding sitting here. They said I must have 6 injections at some point and then a healthy diet after that...I have a healthy diet now and I have multi vitamins and iron. I don't think my body is absorbing it as it should be and I'm scared that I'm going to loose my sanity at this rate. How can I get better? I phoned the NHS direct this morning who had no idea of the condition and kept looking up vitamin C instead and I just got frustrated and ended the call when they told me that it's not serious, before they'd looked up the condition. I nearly got the sack from my job last year as it's ruining my life and I have no energy to put effort into my work...I don't want to lose this job too. I would like to think I'm level headed, I see a lot of serious cases at work so I tend not to worry about something unless it is a big issue...and I feel this is. Please help me ;o( xxx OMG! Your B-12 is 19! I recently went through this with my daughter. She is 13 and her back hurt all the time, then her rib. She was depressed as well. Then she started having headaches daily, 4 or 5 times a day. Also, lost her appetite. Her B-12 was 170, considered very low. You have to eat all the time, like meat. You need to look up on line the different foods that have B-12 in them, plus she takes a multi vitamin with iron once a day and 1 B-12 tablet (1,000 MCG) a day. I'm suprised they have not done something about your level. It is extremely low! Good luck!
    Redeyedwolf 12 Replies
    • October 9, 2010
    • 03:10 PM
    • 0
    Flag this Response
  • Hi! sorry to hear you are feeling so low. It does certainly sound as if you are in need of B12 injections. Usually you have a couple with 12 week intervals and then a blood test again will decide whether you will need to continue, probably for life, with the injections. I did also think that you might be suffering with a thyroid problem so it wouldn't hurt to get that checked out as well. Hope this has helped somewhat. Trishac http://forums.wrongdiagnosis.com/images/icons/icon11.gif I have to take vitamin B12 shots every mo. I was talking over the counter potassium. My doctor said you will not get enough with the over the counter and gave me a prescription for it. I am always low in potassium and magnesium and chromium. You may ask your doctor. I am going to have my blood platelets checked, really a complete blood workup.
    Katielb46 1 Replies
    • October 13, 2010
    • 09:50 PM
    • 0
    Flag this Response
  • Come on over to the b12 forum where this will get read ans answered by people succwessfully dealing with these same problems.http://forums.wrongdiagnosis.com/newreply.php?do=newreply&p=233219 Read the basics, and post to the first listing all your symptoms and compare to the list provided on basics.http://forums.wrongdiagnosis.com/showthread.php?t=62327 I tired to copy and paste the above link for the vitamin B forum - but it wouldn't work. I've been having symptoms for over 9 months now and could use help. Chrissy
    tigerpaw 8 Replies Flag this Response
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