Discussions By Condition: Medical Stories

please can help with my wife

Posted In: Medical Stories 3 Replies
  • Posted By: Anonymous
  • November 14, 2006
  • 06:33 AM

A few days ago my wife had a long seizure (over 30mins) and stopped breathng. I couldn't get her to start again as she'd clenched down on her teeth and jaw was locked. I couldn't open her mouth to get the air in. (She is an epileptic and this has happenned from time to time).

Normally I manage to get her breathing by blowing into her nostrels, but this time she just wouldn't start again. And then her heart stopped. (I even checked on our blood preasure measurer to ensure i hadn't just lost her pulse). Just the thought of that, i think my heart could have skipped a beat too. Almost instinctively i began a cpr on her. I've never been trained in it though. By the time the ambulance arrived she was breathing and beating again. But she had bruises over her chest where i'd been pressing. The ER assured me that they were superficial and that she was fine, but i'm racked with guilt. I feel i might have hurt her.

You see she is home again now, but very different. And when i lie on her chest for our hugs, i hear a gurgling sound. Is it possible for me to have hurt her badly? Her chest sounds almost forren to me with its new noises.

And then aswell, what made her heart stop in the first place? Is that common with seizures that last so long as over half an hour? Or should we look further into heart problems?

Please do help me. SHe's been through so much already.

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3 Replies:

  • Dear arron,My name is jason and my fiancee' is also epileptic. I am replying to your post because i can relate to your story personally. firstly i don't know if i can help you but i can tell you about our journey over the last year.My fiancee was diagnosed sep 05 with epilepsy with no apparent cause. she is 21. she has been through many changes of medication (4 at moment) and is also on miagrain prevention drugs. all the tests she has had have all came back normal. (ie. eeg, mri. ct scan etc.) She suffers from seizures on a regular basis including gran mal, partial, generalised partial, tonic clonic, and also tonic spazams( going rigid and arching backwards). to add to this she also is hypertonic (very flexible joints). Anyways, quite regularly she suffers from extened seizures which can last anywhere up to 45 mins. and i've lost count on how many times she stops breathing... and yes it is scary when your patners heart stops. its probably happened 5 or 6 times now. it doesn't get any easier. i have also caused considerable bruising to my fiancee' trying to get her started again and also stopping her from herting herself. luckily yes we have been lucky so far. she to gets that sickening gurgle sound in her heart and also has a unsteady heartbeat. i don't beleive at all that it is from cpr. you have no reason whatsoever to feel guilty about this. i don't know what causes the heart to stop. but i do know that it is not all that common in epilepsy. it is common to have seizures this long but only in groups of smaller seizures. as for the heart; some heart conditions can cause seizure 'like' movements etc. i don't really know what else to say. i have never written or talked much about this to anyone it scares me alot. i'm just glad that at the end of the day she is always still smilin. i havn't looked into this yet because i have just heard of this myself. apparently there is a condition that is commonly misdiagnosed as epilepsy because it shows 'seizure "like" movements/symptoms'. i can't remember the name but it is a Heart Condition. i hope i have been some help and or reasurrance.i wish you and your wife all the besti would love to hear more from you to see how things arejason.
    Anonymous 42,789 Replies
    • November 14, 2006
    • 08:00 AM
    • 0
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  • i think its called Neuro cardiogenic Syncap or something like that? Apparently people can have what looks like a seizure but it actually stems from the heart not the head or something>???If any one knows anything about this NCS thing please reply.thanks jason.
    Anonymous 42,789 Replies
    • November 14, 2006
    • 09:21 AM
    • 0
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  • please can more help with my wife?thanks to you jason for your story. i will look into this NCS you speak of.
    Anonymous 42,789 Replies
    • November 15, 2006
    • 01:35 AM
    • 0
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