Discussions By Condition: Medical Stories

Pinpointing Severity of B12 Deficiency

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • February 25, 2011
  • 03:22 PM

Hi there,

I was diagnosed at 18 with a vitamin B12 deficiency due to a missing intrinsic factor. Supposedly I am unable to absorb B12 from any food containing it no matter how often I ingest it. I have been on the treatment for 2 years (injections) and they have helped a great deal. Due to still having a good deal of energy issues I was forced to take my injections twice a month instead of once a month. Again, it helped very much and has eliminated a good deal of issues with my stomach (also would like to note that I hadn't taken proton-pump inhibitors for 2 years when the blood test was done) and energy.

Naturally, all my problems haven't been solved and I've been trying alternatives to try and up my energy, reduce pain, etc. One of my favorite remedies so far has been regularly drinking tea sweetened with honey and taking CoQ10 regularly with meals. I can guarantee that about 50% of my problems will also be helped once I start exercising again. I will, but anyone who hasn't exercised in awhile knows that it's hard to get motivated to start. Even as horribly picky an eater as I am, I've been trying to eat better although I admit that pizza is still a regular part of my diet. I also have a back condition which contributes to constant back and neck pain.

However, there have been some disturbing changes lately. My neck pain has gotten unbearable and at certain times during the day I have painful muscle spasms in my neck. I wear a soft collar at home when relaxing sometimes to help, and my osteopath adjusted me and prescribed me with cyclobenzaprine to take before bed. In addition, I have had regular non-painful muscle spasms in my legs and shoulders which prevents me from sleeping. These spasm occur not only when I sleep, but also during the day whenever I sit or lay down. The final thing is random tachycardia. Sometimes I will wake up with my pulse rate at a steady 120 bpm. Yesterday, in fact, I was at a scary 132 bpm while simply eating breakfast. I wasn't stressed or anxious, but when I got home from my friend's house I immediately downed two inderol which brought my pulse back to the 90s and 80s after about an hour.

There are so many symptoms of B12 that much of these match up, however, self-diagnosis is a pet peeve of mine as I always want a professional opinion. My question is, is there any way to tell if any of my recent symptoms are a result of my deficiency or another condition? I hate to call myself a hypochondriac, but I've become worried that perhaps the fact that my deficiency was discovered later might imply that there may have already been permanent damage, maybe even nerves. My mother keeps insisting that my pain is just something that I need to go to my osteopath for. So far, after my adjustment, I feel no improvement and it has been almost a week. I have already made an appointment with my primary physician since I need to get immunizations anyway and plan to consult with him. I feel as though it might at least satisfy my curiosity if I'm seen by a neurologist, but my parents seem skeptical that anything is wrong.

Any advice on this would be appreciated or any supplements or remedies that may help to lessen the impact of these symptoms. I'm currently trying to get my paramedic degree and I would really hate for any of this to ruin my possible career choice.

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2 Replies:

  • Hi there,I was diagnosed at 18 with a vitamin B12 deficiency due to a missing intrinsic factor. Supposedly I am unable to absorb B12 from any food containing it no matter how often I ingest it. I have been on the treatment for 2 years (injections) and they have helped a great deal. Due to still having a good deal of energy issues I was forced to take my injections twice a month instead of once a month. Again, it helped very much and has eliminated a good deal of issues with my stomach (also would like to note that I hadn't taken proton-pump inhibitors for 2 years when the blood test was done) and energy. Naturally, all my problems haven't been solved and I've been trying alternatives to try and up my energy, reduce pain, etc. One of my favorite remedies so far has been regularly drinking tea sweetened with honey and taking CoQ10 regularly with meals. I can guarantee that about 50% of my problems will also be helped once I start exercising again. I will, but anyone who hasn't exercised in awhile knows that it's hard to get motivated to start. Even as horribly picky an eater as I am, I've been trying to eat better although I admit that pizza is still a regular part of my diet. I also have a back condition which contributes to constant back and neck pain. However, there have been some disturbing changes lately. My neck pain has gotten unbearable and at certain times during the day I have painful muscle spasms in my neck. I wear a soft collar at home when relaxing sometimes to help, and my osteopath adjusted me and prescribed me with cyclobenzaprine to take before bed. In addition, I have had regular non-painful muscle spasms in my legs and shoulders which prevents me from sleeping. These spasm occur not only when I sleep, but also during the day whenever I sit or lay down. The final thing is random tachycardia. Sometimes I will wake up with my pulse rate at a steady 120 bpm. Yesterday, in fact, I was at a scary 132 bpm while simply eating breakfast. I wasn't stressed or anxious, but when I got home from my friend's house I immediately downed two inderol which brought my pulse back to the 90s and 80s after about an hour.There are so many symptoms of B12 that much of these match up, however, self-diagnosis is a pet peeve of mine as I always want a professional opinion. My question is, is there any way to tell if any of my recent symptoms are a result of my deficiency or another condition? I hate to call myself a hypochondriac, but I've become worried that perhaps the fact that my deficiency was discovered later might imply that there may have already been permanent damage, maybe even nerves. My mother keeps insisting that my pain is just something that I need to go to my osteopath for. So far, after my adjustment, I feel no improvement and it has been almost a week. I have already made an appointment with my primary physician since I need to get immunizations anyway and plan to consult with him. I feel as though it might at least satisfy my curiosity if I'm seen by a neurologist, but my parents seem skeptical that anything is wrong.Any advice on this would be appreciated or any supplements or remedies that may help to lessen the impact of these symptoms. I'm currently trying to get my paramedic degree and I would really hate for any of this to ruin my possible career choice.Hi StarshipEMT,As the usual monthly injection is cyanocbl, 2/3 or more of all the symptoms will continue to get worse while being treated with cyanocbl in 2/3 of the people and 100% will get worse in 1/3 of the people, I wouldn't be surprised. See the list below and note all your symptoms and which ones have improved, which ones worse and which unchanged. In addition read the BASICS at http://forums.wrongdiagnosis.com/showthread.php?t=62327 and then post your symptoms and then let's talk about it all. What you have said so far indicates that you do indeed have a problem.
    Freddd 3576 Replies
    • February 27, 2011
    • 11:14 PM
    • 0
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  • Hello, I am a 24 year old woman who is having problems with my vitamin B12 and Ferretin levels. I went to give blood in October and they told me I was borderline anemic and I need to see my doctor. I went to the university doctor (who is known to just fix the surface and not dig deep into the problem) and she dismissed me saying their machines are not accurate but told me to get blood work. My results wereHemoglobin 126iron- was fine I can't rememberferretin- 16 B12- 112 She said she was most concerned about my B12 and told me to take 1000 mcg a day as well as an iron pill and get blood work in a month. I just got my blood work back after my month check-upHemoglobin- 122ferretin 21B12-209Should I be conerned about my levels? She told me to keep taking the pills but doesn't seem to want to find out the reason why. Should I be taking B12 shots? And is it normal for the hemoglobin to fluctuate or is a drop by 4 points alot for a month. She brushed it off saying that it is still in the normal range. I eat meat regularily so I am positive it is not my diet that is giving me low numbers. Thank you for any help you can give me!!K
    Ceitag 0 Replies
    • December 11, 2013
    • 07:57 PM
    • 0
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