Discussions By Condition: Medical Stories

Photophobia, eye pain, trails (palinopsia), dark spots, shimmer

Posted In: Medical Stories 0 Replies
  • Posted By: winklemouse
  • October 25, 2007
  • 03:10 AM

Open to all ideas!

39/f. Sudden onset in November, 2006...started seeing trails behind moving objects. By Feb., I developed severe photophobia with eye pain...which invariably led to a killer "brain freeze" headache above my brow. A couple months later, I noticed several dark spots and squiggles in my vision. They've been multiplying to the point they're really distracting in day to day life. By summer, I developed occasional flashes and streaks in my peripheral vision. All of the above mentioned complaints have continued 24/7 to this day. This week, I noticed the air seems electrified, or slightly shimmering...as if my sight is just TOO good. I feel like time is running out for my sight...or my sanity (I think I'm allergic to pain)....which led me to mad-crazed googling...which eventually led me here.

About my medical history....I've been checked by a neurologist, ophtalmologist, neuro-ophtalmologist, and back to a neurologist. All findings are normal including eye exam (20/20), eeg, and mri. Diagnosed with an autoimmune thyroid disease (post-partum thyroiditis and/or Hashimotos depending on which dr you ask) and, what I would describe as a life long "blah...whatever....I'm exhausted and just want to sleep" disorder. The latest neurologist thinks I have a degenerative autoimmune eye disease that effects the retina. And...she's pretty sure I have lyme disease. Another dr. is sure it's lead poisoning and/or lyme. Many new Dr. appts in the next couple of weeks with many more test results.

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