Discussions By Condition: Medical Stories

Our son has a heart problem and we need help!

Posted In: Medical Stories 5 Replies
  • Posted By: m6lacy
  • July 29, 2007
  • 08:01 PM

(I have also posted this same request in the heart conditions - WPW area)

We are hoping someone can give us some sage advice.

Our 12 year old son has had heart palpitations randomly over the last 18 months or so. When they happen, it scares him immensely, as it does us also. It feels as though his heart is pounding through his chest. We have taken him to the ER a couple of times and nothing comes of that. The symptoms disappear or someone associates it with going into puberty. When it occurs he also complains of the chest pain and tightness. His heart rate also is abnormally high.

He is not a couch potato and is about 61" tall and weighs 90 pounds. He is a competitive swimmer and plays soccer here in Germany (oh yeah, this is the other issue). He is extremely intelligent and has been reading at the 12+ grade level since 4th grade.

We are Americans and we live in Germany. We have made several trips back to the U.S. over the last 4 years for medical reasons, but for a sibling (not heart related). There are either too few or NO pediatric cardiologists in the U.S. system over here and because I am retired from the military and a DoD civilian, we are at the bottom of the list for health care in the military system. Besides the fact that they are understaffed and overworked also.

Please ... someone out there provide us some good advice. We are familiar with the Children's Hospitals in Boston and Cincinnati.

We will continue to pursue local avenues here in Germany, but hope that we will be able to get the proper diagnosis from SOMEONE.

BTW... he suffered these same symptoms Saturday night, but because he felt good Sunday morning, he left for a week at Boy Scout camp. We are extremely concerned.:confused: :(

Oh yeah... he also has a 15 year old cousin (female) who was diagnosed with WPW and underwent the corrective surgery.

Please Help!

M in Germany

Reply Flag this Discussion

5 Replies:

  • I don't know what WPW is...but perhaps you should tell the next doctor he sees about the cousin and have the doc check for that. I am a 29 year old female who has experienced the same symptoms. Rapid heartbeat, chest tightness, very frightening. I went to the ER thinking I was having a heart attack, was given every test you could imagine, they found nothing. Later, I was diagnosed with Generalized Anxiety Disorder and Panic Disorder. Apparently these disorders can manifest physically in a remarkable number of ways without the sufferer even realizing they are anxious about anything. I began taking Celexa on a daily basis and Xanax when the symptoms became especially bad. I have found much relief with these two medicines. I hope your son finds a diagnosis soon because I know how scary it is to feel like there is something wrong with you and the doctor's say there isn't but you know better. I have been there and it was very difficult to overcome. I will say a prayer for you and your family. I do not know if your son could have an anxiety disorder but it is worth asking a doctor to evaluate. Angie
    AngieBaby77 2 Replies Flag this Response
  • My husband will sometimes get heart palpitations / abnormally fast heart beat that is self-limiting and induced by fast, jerky motions of the upper body--from sports like soccer, frisbee, etc. He was diadnosed as a kid, I believe around puberty. He was told he has an extra nerve in his heart that causes it. This condition is fairly common. His case is not severe; he was medicated for it for a time as a teenager, but stopped taking the meds and just avoided certain sports that trigger it. Some people that have more severe cases--or don't want to change their lifestyle--have the nerve ablated.I wonder if his condition could have been related to use of Ritalin starting as a child, but that's impossible to know.
    Anonymous 42789 Replies Flag this Response
  • Since you are in Germany can you find a doctor who also does homeopathy? I think this would be very helpful for your son - homeopathy is readily practiced in Germany and should be easy to find someone there. Does your son drink sodas, especially so called "energy" drinks? Does he drink coffee or tea? Caffeine can cause palpitations, and only a little can cause his symptoms since he is so young. How long do these episodes last and does he have them daily? Are they worse at night and does he wake up with palps? Does he have any sweating at night? Does he have any shortness of breath? How is his urination - frequent or urgent? Does he tend to be anxious? Does he drink lots of water - at least 64oz daily? Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Hello my German friends!! I was stationed in Germany as a child of the military, (Swinefurt), and my son was stationed in Hohenfelz until last week. He was just deployed again to the war.I had a similar condition. PSVT. Paroximal Supraventricular Tacchycardia. It is an electrical problem in the heart. I wore a Holter monitor and it picked up the PSVT. I'm sure they have Holter monitors in Germany. An EKG didn't pick it up. You have to be hooked up to the machine during an episode for it to be diagnosed. It is painless, and is worn three days. It is scary when that happens, and I can truly empathize with you. I used to get light headed with it as well. Best of luck to you, and God bless you and all of our military personnel! There is also a very good Childrens hospital by me. It is called Geisinger Medical Center in Danville, Pa. They also have a Ronald McDonald House for the loved ones of children to stay at while a child is being diagnosed/treated. PE
    Anonymous 42789 Replies Flag this Response
  • hi there, my son also has had heart problems but its been an ongoing battle and we are in the U.S. when he was 16 he collapsed and there was no heart beat per the people that were there. then by the time the nurse at school got there he was tachy. (fast). he went to a pedi-cardiologist, said nothing is wrong. must have been a vasovagal incident. when he was 19 he had hernia repair surgery. they finally found a problem. his heart rate goes from 50-140 instantaneously. after a year of procedures, like your niece had. he still has a problem and they are calling it, IST or (inniapropriate sinus tachycardia.) they've been wrong before, and i hope they are not. but your child should be seen by an american dr. what about france or italy?? i'd bring him home, for a holiday or something and have some tests done. i know you are worried and so am i, but it will be ok. just dont stop til you get answers. thanks(I have also posted this same request in the heart conditions - WPW area) We are hoping someone can give us some sage advice. Our 12 year old son has had heart palpitations randomly over the last 18 months or so. When they happen, it scares him immensely, as it does us also. It feels as though his heart is pounding through his chest. We have taken him to the ER a couple of times and nothing comes of that. The symptoms disappear or someone associates it with going into puberty. When it occurs he also complains of the chest pain and tightness. His heart rate also is abnormally high. He is not a couch potato and is about 61" tall and weighs 90 pounds. He is a competitive swimmer and plays soccer here in Germany (oh yeah, this is the other issue). He is extremely intelligent and has been reading at the 12+ grade level since 4th grade.We are Americans and we live in Germany. We have made several trips back to the U.S. over the last 4 years for medical reasons, but for a sibling (not heart related). There are either too few or NO pediatric cardiologists in the U.S. system over here and because I am retired from the military and a DoD civilian, we are at the bottom of the list for health care in the military system. Besides the fact that they are understaffed and overworked also.Please ... someone out there provide us some good advice. We are familiar with the Children's Hospitals in Boston and Cincinnati.We will continue to pursue local avenues here in Germany, but hope that we will be able to get the proper diagnosis from SOMEONE. BTW... he suffered these same symptoms Saturday night, but because he felt good Sunday morning, he left for a week at Boy Scout camp. We are extremely concerned.:confused: :( Oh yeah... he also has a 15 year old cousin (female) who was diagnosed with WPW and underwent the corrective surgery. Please Help!M in Germany
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.