I have been so sick for the last two years, and in April of this year I just couldn't take it anymore. I have been looking and looking to decide how to handle an appointment I have on Tuesday, I apologize that this will be so long. I am SO thankful to have found this site tonight as I think the B12 may be my biggest issue.
I'm a healthy 43 year old female 5'7" normally 123 but gained 8lbs overnight in April that I've never been able to get off. I do not drink, exercise 4X a week, eat in moderation.
Almost 2 years ago complained of fatigue, memory, and OB said I was getting older yada yada and I agreed to go on Lexapro. A year later was feeling worse, could not function was incredibly fatigued, thinking about having to do something was tiring and I was losing my zest for life and I'm a go getter. Saw GP who said to get of Lexapro, took a long time as I just didn't do well coming off. Three months later was feeling worse, gained the 7lbs overnight, was extremely fatigued. She did blood tests, said I was fine.
Three months later (August 2010) went back and she did another TSH test but told me if it came out normal she could send me to a nutritionist as I have always exercised and watched my diet, but nothing was taking this weight off, I was fatigued, couldn't function, no sex drive (sounds like Hypo huh?). I about blew a gasket when she wanted to refer me to a nutritionist, but all standards, I am underweight, but gaining 8lbs overnight isn't normal.
I was told test was normal again. I asked her what she thought I should do I was not fine. She referred to to a boutique office who dealt with hormone issues. I was at the end of my rope and was willing to do anything.
I got my answers for $500 out of pocket! My B12 was 244, Vitamin D was 32 and TSH was 3.1. All in a crappy range, oh and my testerone level was not even on the charts at all. He prescribed B12 vitamins, liquid D and biodentical thyroid. You would think I would be happy right? I could not take the B12, but they didn't have an alternative for me as they didn't do B12 shots.
I felt better than I had in 2 years, 2 weeks into it. But them I crashed! I read that this can happen if your thyroid med isn't increased appropriately and they didn't want to see me for 3 months. I called and got the run around and never go to talk to a nurse or the Dr. only the office manager. I then realized this was not the right place for me, as I started thinking (Dr. is highly regarded, previously was in a great ob/gyn group), when I went in no exam was given (big no no I think), and then I was not able to speak to the Dr. unless I was charged additional. I have a serious medical issue going on ,and am not going to pay out of network for it. All thyroid symptoms are back in full force, fatigue, constipation, freezing hands, cold, weight isn't budging no matter what I do.
This leads me to now. Besides the thyroid issues, it sounds like a B12 of 244 is more than just a small issue. Something has been going on for quite some time? I did suffer from infertility, I do suffer from frequent canker sores? In fact I had a hysterectomy 3 1/2 years ago and then suddenly my bladder no longer worked and they thought I had MS, I was put through ***l. I have to wonder if all this is related.
I'm going to see my OB/Gyn who I can be frank with on Tuesday, but what can I expect (WHAT SHOULD I EXPECT) and who is the best Dr. to sort this all out once and for all. I feel like a piece of me is slowly dying, and I'm only 43, have 3 small children. I feel like I have been ignored far to long, even though all the symptoms have been there.
Thank you for any advice.