Discussions By Condition: Medical Stories

occipital nerve naralgia

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • October 7, 2007
  • 06:57 PM

When I was 15 I developed Tonsillitis within two weeks that was done a taken care of....But, my head was staring to hurt really bad....like take the worse migraine you have ever had times it by 1000 thats what I had all day every day....I went from doctor to doctor trying to find out was was wrong.
I had every test possible, they eventually found out that it was pseudotumor cerebri ( sudo- tumor- sa-re-bri) which was an over abundancy of spinal fluid that would never regulate to normal caused the brain to be pushed foward and make it so I couldnt see out of my left eye. I was on every medication you can think of from....methadone down to advil....I had 18 spinal taps in a time frame of 3 months.I was a walking Zombie my parents stepped in and said enough was enough they did not want a child to be a drug addict at the age of 15. So they Finally got my spinal fluid to normal... i was a normal teenager for about 6months.

Then My problems came back at the age of 16 BUT only this time it was something more....a rare illness called Occipital Nerve Neuralgia.....Occipital neuralgia is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head. Typically, the pain of occipital neuralgia begins in the neck and then spreads upwards. Some individuals will also experience pain in the scalp, forehead, and behind the eyes. Their scalp may also be tender to the touch, and their eyes especially sensitive to light. The location of pain is related to the areas supplied by the greater and lesser occipital nerves, which run from the area where the spinal column meets the neck, up to the scalp at the back of the head. The pain is caused by irritation or injury to the nerves, which can be the result of trauma to the back of the head, pinching of the nerves by overly tight neck muscles, compression of the nerve as it leaves the spine due to osteoarthritis, or tumors or other types of lesions in the neck. Sometimes can not see out of my left eye. I fought with this illness for a year and half....I now have a battery in my chest that runs two wires to the back of my head along my nerve it took me a year to get the Doctor did not want to put this device in a 16 year old "Child" meanwhile i went to many different doctors all saying I needed this device put in...I went to 3 psychologist to find out if i was ready for this life changing surgery. All 3 said yes she is very mature for her age and would benifit from this! So my family and I were sooo happy and glad this was finally over,......I almost didnt pass the 11th grade and managed to pass it in a 3 months time.....i was home bound from school...So On June 23rd, 2006 the summer before my Sr. year, The device was put in...not even a minute after they turned the machine on my head Stoped hurting completly.
I graduated from Riverbend High School on June 2nd 2007! I now attend college at ITT- Tech In Springfeild.......
Sounds good right? Wrong!
My head has started right back up again the doctors have yet to find out what is wrong I have an oppointment on October 8th, 2007 to find out if they can help me at all.......If Not I will face ANOTHER surgery only this time the Nerve will be cut out totally the only bad thing about this is that i cant feel anything on my left side But I dont know about you i would rather have no feelin on that side then be with pain the rest of my life!

I'Am writing this to see if you all know anything about this condition if not i ask you all to pray for me and my family!

A huge thanks goes out to my family and my wonderful Boyfriend Nick you all have been there for me and I thank you all soo much i know it has been hard for not only me but you guys aswell I love you all very much thanks sooo much

Kristina Dionne
Age 18
P.S. If you know anythig about this Cndition Please feel free to e-mail me at K_Dionne8688@yahoo.com Thanks soo much

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