Discussions By Condition: Medical Stories

not knowing is doing my head in

Posted In: Medical Stories 6 Replies
  • Posted By: shellysimmons
  • December 9, 2010
  • 00:25 PM

Hi all,
I was a healthy young lady I am 28 with 2 children 7 and 4 yrs old, around 2 1/2 years ago i suddenly started feeling very unwell, I can't remember all my symptoms as it was a long time ago but after 6 weeks of going to the doctors 2 times a week and them telling me i was having panic attacks I eventually got a doctor who suggested to check for glandular fever and my results came back positive, as there is no cure for this I had to suffer for at least a yr with chronic fatigue and generally feeling unwell but I was relieved that I finally had a diagnosis and started taking b12 vitamins and multi vitamins which helped me to feel better for a while.
I felt better for a while after that until bout 6months ago when i started suffering with similar symptoms plus others here is a long list:

.weekly headaches in front of head and light hurts eyes also headaches in the back of my head.
.aches and pains can be all over my body.
.find it hard to loose weight even with regular exercise but lately i have been looseing half a stone a week then putting it back on the next week then looseing it again.
.sharp pains and tightening pains in chest.
.i get these atteck type feeling where i feel a rush of some sort going through my body and my pulse and heart rate goes crazy i get the chest pains, feel extremely tired, dizzy and my eyes feel like they are rolling, nausea etc this happens mainly in the evening sometimes i wake up like it.
.extreme tiredness day and night i wake alot in the night and feel like im tossing and turning all night.
.my hair is thin and greasy.
.dry skin.
.brittle nails.
.dizziness and nausea
.constipation
.feeling the cold even when its hot
.waking and needing the toilet in the night which is strange for me and i have tried not drinking hours before bed but doesn't make a difference.
.intolerence to alcohol.

i cant think of anymore at the mo but they are they main ones, I had some bloods done last week and got my results today they all came back normal, they tested thyroid which runs in my family, full blood count, liver and kidney function, glucose and diabetes, not sure what else but there was quite a few things and the doctoer said she was testing for everything which makes you tired. My experience with these doctors is not good but after being told continuously i was having panic attacks when i new otherwise, i really dont want to seem like a dramer queen but i really feel like something else is going on and they are trying to say im depressed and made me fill out a form which suggested i wasn't, but the doctor still suggested i take antidepressents which i refused.

I really dont know where to go from here should I just leave it at that or demand more tests :confused:

Thank you everyone

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6 Replies:

  • I forgot to mention i sometimes get a metal taste in my mouth.
    shellysimmons 1 Replies
    • December 9, 2010
    • 00:43 PM
    • 0
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  • Hi all,I was a healthy young lady I am 28 with 2 children 7 and 4 yrs old, around 2 1/2 years ago i suddenly started feeling very unwell, I can't remember all my symptoms as it was a long time ago but after 6 weeks of going to the doctors 2 times a week and them telling me i was having panic attacks I eventually got a doctor who suggested to check for glandular fever and my results came back positive, as there is no cure for this I had to suffer for at least a yr with chronic fatigue and generally feeling unwell but I was relieved that I finally had a diagnosis and started taking b12 vitamins and multi vitamins which helped me to feel better for a while. I felt better for a while after that until bout 6months ago when i started suffering with similar symptoms plus others here is a long list: .weekly headaches in front of head and light hurts eyes also headaches in the back of my head..aches and pains can be all over my body..find it hard to loose weight even with regular exercise but lately i have been looseing half a stone a week then putting it back on the next week then looseing it again..sharp pains and tightening pains in chest..i get these atteck type feeling where i feel a rush of some sort going through my body and my pulse and heart rate goes crazy i get the chest pains, feel extremely tired, dizzy and my eyes feel like they are rolling, nausea etc this happens mainly in the evening sometimes i wake up like it..extreme tiredness day and night i wake alot in the night and feel like im tossing and turning all night..my hair is thin and greasy..dry skin..brittle nails..dizziness and nausea.constipation.feeling the cold even when its hot.waking and needing the toilet in the night which is strange for me and i have tried not drinking hours before bed but doesn't make a difference..intolerence to alcohol. i cant think of anymore at the mo but they are they main ones, I had some bloods done last week and got my results today they all came back normal, they tested thyroid which runs in my family, full blood count, liver and kidney function, glucose and diabetes, not sure what else but there was quite a few things and the doctoer said she was testing for everything which makes you tired. My experience with these doctors is not good but after being told continuously i was having panic attacks when i new otherwise, i really dont want to seem like a dramer queen but i really feel like something else is going on and they are trying to say im depressed and made me fill out a form which suggested i wasn't, but the doctor still suggested i take antidepressents which i refused. I really dont know where to go from here should I just leave it at that or demand more tests :confused: Thank you everyone Hi, Since B12 helped once, this could be your problem. It is likely you were not taking adequate amounts of the correct forms and brands (quality varies greatly) - there a forumon this site that discusses this. Also, if this is your problem it is common to require additional nutritional support such as your basic vitamins. Check it out B12 discussion thread (do not post here, read for info. only): http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=1087 Active B12 basics thread (post any questions and read discussion of others following the above protocol): http://forums.wrongdiagnosis.com/showthread.php?p=191131&posted=1#post191131
    velha508 321 Replies
    • December 10, 2010
    • 07:27 PM
    • 0
    Flag this Response
  • Thank you for your response, would a b12 deficency not have showed up on the blood tests I just had done?? Im pretty sure they tested for anemia but I will find out for sure.Thank you again :)
    Anonymous 42789 Replies
    • December 11, 2010
    • 00:35 PM
    • 0
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  • Thank you for your response, would a b12 deficency not have showed up on the blood tests I just had done?? Im pretty sure they tested for anemia but I will find out for sure. Thank you again :) Hi, That is a loaded question for several reasons!! First of all the 'normal' level in the US is set by the labs, just by the range they see every day, thus, the lower level that the people they test are found to be, the lower the 'normal' range will end up being. This DOES NOT indicate that there isn't a problem. The level set in the US is generally well below what is considered sufficient to prevent symptoms of deficiency - levels in countries like Japan are set higher. I don't recall offhand what the exact range is for both, but I believe Japan is something like 500 x/ml while the US sets it at 200 x/ml. Also, if you took a multivitamin for several days it may make your level appear in the range. As MANY of the people on the link I posted have found out a 'sufficient' serum level is not sufficient to be well. My serum level was in the normal range when I went from doctor to doctor looking for what was wrong. None suggested B12 deficiency, but that was essentially my problem (it is a little harder, or a lot harder, to fix than simply taking some B12 for most), however, the younger you are and the shorter the duration of your deficiency the more likely you are to bounce back quickly. Unfortunately I am not really the expert on this, you can read around the links I sent and find most of the relevant information - sometimes your MCV is more relevant a sign of deficiency - again this may fall in the 'normal' range, but this range has been artificially elevated because this deficiency is fairly common these days... Reading through your post I had many of the same symptoms as you. There is actually a very simple way to find out if this is your problem or not. You can purchase a bottle of Jarrow Foods or Enzymatic Therapy METHYLB12 lozenges, you need to take one and keep it under your lip to dissolve slowwwwly for at least 45 minutes and see how you feel - a response would be a sign of a deficiency. The reason for the brand recommendations is that people on the thread I linked to have found that brands make a difference in quality - you can not take the typical B12 found in stores - cyanocobalamin will actually deplete your body of active cobalamin, you need METHYLcobalamin (mB12) and mB12 is very sensitive to light, so it may be degraded to hydroxycobalamin during processing and will not be as effective. If you have a response, I would again highly recommend reading the links I provided and giving the protocol some thought - it helped me get my life back! I have two very young children and I now have energy to chase them around, my hair is healthy again, etc. Please don't presume that an adequate serum level (as determined by a US lab) means this can not be your problem. You specifically mentioned you were previously found to be low in B12, people who get low do so for a reason and typically need extra supplementation to stay healthy - the details of all of this are explained in the first link. Give it a shot and see how you feel (my first mB12 made me feel dizzy, this is why it's important to read the links and see what others have experienced so you will know what to expect and not think it isn't helping) Good luck,Velha
    velha508 321 Replies
    • December 14, 2010
    • 09:31 PM
    • 0
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  • ALSO, I HAD THIS WRONG ABOVE!! PLEASE READ THIS LINK: Active B12 basics thread: http://forums.wrongdiagnosis.com/showthread.php?p=191131&posted=1#post191131 PLEASE POST QUESTIONS HERE: B12 discussion thread: http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=1087 Take care,Velha
    velha508 321 Replies
    • December 14, 2010
    • 09:34 PM
    • 0
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  • Make sure they did the complete thyroid test. Not the standard one. Something about how t4 converts to t3 or something like that. Apparently many people are told their thyroid is fine because the standard test does not show everything, so many people continue to suffer because they are misdiagnosed.
    Anonymous 1 Replies Flag this Response
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