Discussions By Condition: Medical Stories

not a tumor

Posted In: Medical Stories 1 Replies
  • Posted By: kimbob55
  • January 14, 2008
  • 06:14 AM

Hi, I'm Kimberly and I just turned 16 a few months ago.

This is a very long story, but I'll try to make it short.
I was 15.
In May 2007 I was very tired all of the time and was nauseated at random times. In June 2007 I woke up with double vision and my left eye turned in towards my nose and could hardly move. Many more symptoms occurred, such as numbness, confusion, headaches, insomnia, muscle weakness etc.
After eye tests, a CAT scan and an MRI, the doctors decided that I had a brainstem tumor:eek: and gave tons of dexamethasone.
3-6 months to live was their guess.
They sent me to San Francisco to a very talented doctor, Dr. Hutch.
The night before the biopsy we received a phone call.
He didn't think I needed the biopsy!
The next day we went to the dr's office to learn that I had Bickerstaff's Brainstem Encephalitis- extremely rare. :confused:
Went through immunogobulin transfusion for 5 days because they did not actually know the cure.
Only 25 people in the US have had this is what the doctor told me.
5 months later I returned for another MRI to learn that my encephalitis had reduced in size by half.
6 months later my double vision went away.:)
now it has been about 6/12 months since this diagnoses.
All of those awful symptoms are gone, except a week ago my leg became numb so I'm going to the doctor tomorrow.
It was kind of odd going back to the doctor in December and having them all tell me they didn't expect to see me again.. But hey, it's been over 6 months!:D

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1 Replies:

  • Well done It is nice to hear a good story.I hope the leg things is nothing
    chrismia 159 Replies
    • January 15, 2008
    • 05:41 PM
    • 0
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