Hello to all I am new here and would like someone's opinion other than my family and doctors. I am a 24 yr old female and have been married two years. I am 5'9" tall and weigh 150lbs. I have always been real flexible and acitve with an over abundant of energy. My family history consists of heart disease, high blood pressure, gout, kidney stones, and asthma, most of which are one my fathers side. I am currently taken Cymbalta for depression because I have had to deal with these problems for so long. I would appreciate anyones response because I feel like I have nowhere else to turn. I feel like the drs are tired of having to deal with me and are just giving me pain meds to shut me up. They help with the pain but are not a diagnosis and that is what I want.
Before I got married I had two diagnosis, Scoliosis and Asthma. One month after I got married I started to notice that I had pain in my wrists and my hands started to swell and I couldn't make a fist. It got to the point that I couldn't even hold a pen to write. I went to the doctor who said I had what looked to be rheumatiod arthritis, I have no history of RA in my family.
He started me on Methotrexate and after about 10 weeks all the skin on my tongue started to peel off I got dizzy often and was very fatigued. I went back to the doctor and he said that I was having a reaction to Methotrexate and took me off and then preceeded to tell me that I didn't have RA, (b/c my bloodwork showed normal) but that I had carpal tunnel. He then put me in splints that didn't work and he got frustrated with and said to just take ibuprofen for pain.
He referred me to another doctor who said that I once again had RA and he put me on Enbrel once a week that I eventually had a reaction to( the medicine actually made me feel worse than when i took it) and he, like the dr before took back the diagnosis of RA and said to just take ibuprofen (800mg 3 x day). Both drs tried predisone and it seemed to work at first but the symptoms returned and I was taken off to not gain to much weight. The second Dr got so frustrated with me that he said " I don't know what is wrong with you and I don't care who you see as long as it is not me." and he refused to help me any longer.
So I am now on my third rheumatologist who says that I once again have RA and has me on celebrex 2 x days as well as Plaqueniel. During this past two years I have also been diagnosed with Mitral Valve Prolapse and Hypothyriodism. I am to the point now of having to have help standing, can not open medicine bottles ny more, and I am considering getting a cain to help me walk because of the pain that is now in my lower body. There is not a day that goes by that i do not hurt.
Some other symptoms:
lumps or nodules everywhere on body, even in the head
swelling all the time
difficulty sitting or standing for any length of time
severe pain in lower abdomen on left side
difficulty breathing (not b/c of asthma)
lower back pain
severe knee pain
I am at my wits end. I just know that it is not RA, but whatever it is is affecting every aspect of my life. It has really affected my sex life almost to the point of quitting all together. If anyone has any idea what so ever it would be greatly appreciated. Thank You for taking time to read this. Much Love