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No one can diagnose the reason for my prurigo

Posted In: Medical Stories 2 Replies
  • Posted By: jandee
  • September 9, 2009
  • 05:58 AM

I have been diagnosed recently with prurigo simplex, after my 3rd skin biopsy. And nothing seems to be working for the itch or the recurring nodules - which are keeping me awake at night, and exhausted all day.

The condition started with a few nodules 7 years ago, which disappeared with cetrizine tablets and steroid cream. Over the years, a few rare flare-ups have been controlled with the same medication. This summer (April) we had house repairs being done. A lot of paint, dust, insects etc. flying around in the air, and I do not know whether it is this or the stress that has caused a huge problem this time around.

For the last 6 months, I have had an ever increasing number of very very itchy nodules, which come up like little mosquito bites, and then darken, and finally ooze, and leave dark scars. I have more than 400 - 500 all over my arms, legs, trunk and stomach right now - mainly.

Treatment : I have been through various allergen-detection tests - skin patches, food allergy tests etc. which have all shown up negative. A whole host of doctors have been treating me with different anti-histhamines, steroids (oral and topical) - all with no effect at all.

The itch worsens at night, or even if I attempt an afternoon nap. It gets unbearable after a luke warm water bath. I have been applying coconut oil, ice water compresses, aloe vera gel (temporary relief), but it is really getting me down.

I would welcome ANY help, suggestions, diagnoses, or even anyone else with shared symptoms of prurigo (WHAT IS THE CAUSE OF MINE?)

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2 Replies:

  • I am so sorry to hear about your condition, which are so much like my own. Mine started 4 years ago after the birth of my son and moving to a new country. My itching usually occurs at night and during the day when it is very very hot. I have found that taking cool baths with epson salt followed immediately with a prescribed steroid (Triamcinolone acetonide at the moment) and cetaphil lotion helps keep the itchiness to a minimum. also sleeping withe the ac on a little cooler than i would usually have it also help. additionally i have a hypoallergic cover over my mattress and pillows. I also stay away from anything that has a fragrance in it since that really causes my flare ups. I have found that a strong course of predisone works best for me, but this is only for a short time since the symptoms usually come back as my allergies and stress worsen. For the night time my doctor perscribed hydroxyzine10mg to help with the night time itch. Additionally i take zyrtec during the day for my allergies and add a singular or allegria if i know i will be cleaning that day. I have tried several doctors and treatments like steroid injection directly into the nodules an unbelievable amount of steriod ointments (elocon, fluocinoide, atopiclair, protopic, eurax, triamcinolone acetate) and am starting to feel like a human guinea pig. I honestly hope there is a cure for prurigo. It would be nice just to be able to wear a pair of shorts or t-shirt and feel like myself again. By the way does your house have carpet? Maybe you are allergic to the fabrics in the carpet or the dust mites.
    Anonymous 42789 Replies
    • September 23, 2009
    • 02:41 AM
    • 0
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  • thank you, guest, for your reply. it's nice to hear someone with the same symptoms. my doctor is doing a lot of tests, but i really wanted to know whether anyone has diagnoses a CAUSE for prurigo - is it an allergy? is it because of a hormone change? is it ecause of an internal organ imbalance of something ? because then we can treat it... right now, it's a whole lot of shots in the dark - hoping something works out right. thanks for your tips. a cold water bath/ compress helps me too. also i keep needing to spread oil all over my body - you could try coconut oil - to keep it from drying out. something else i've started and seems to help temporarily is to do a brisk walk/ run for around half an hour and work up a sweat - that cools down the body and helps the itch.
    jandee 1 Replies
    • September 24, 2009
    • 07:24 AM
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