Discussions By Condition: Medical Stories

No hope for my cousin's Dermatomyositis

Posted In: Medical Stories 0 Replies
  • Posted By: twinyolanda
  • June 14, 2010
  • 05:44 PM

My cousin has been suffering from dermatomyositis. It has gotten so bad that her entire body is beginning to harden. Its so hard that it feels like a hard surface such as a table. I am wondering if she can participate in a study or find a world renowned specialist in dermatomyositis. My cousin went to Emory who has been treating her and they said that there is nothing they can do. They said that surgery wouldn't help. Please let me know if you know of some options for her. If only you could see photos of her body. Its very heart felt and sad to see.

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.