Discussions By Condition: Medical Stories

Nighttime events

Posted In: Medical Stories 1 Replies
  • Posted By: tallguy
  • May 2, 2007
  • 06:37 PM

I don't know where to start with this one. At first, I thought I was having asthma attacks. I have awoken several times in the middle of the night with my jaw locked open, short of breath and with no physical strength. The first time it happened, my wife awoke with me staggering around, knocking over furniture, unable to speak with my jaw locked. She called 9-1-1 and I spent the next four hours in Kaiser Emergency, before a doc figured out how to unlock my jaw.
This happened again, about six months later, and luckily, I was able to reset my jaw myself. Another time, I had the same locked jaw awakening, spent several hours with my wife dealing with it and forgot the entire event. I was also completely out of it the next day -- retrograde amnesia, I remembered nothing. We went to Kaiser emergency. I was immediately seen by a neurologist who diagnosed TGA -- transient global amnesia. I had normal follow-up tests -- blood and MRI -- except for the EEG.
I had another last week, waking up feeling out of it with no memory of the preceding day. I am still getting over that one.
I had pretty serious head trauma when I was 20. I was comatose for three weeks with resulting paralysis. I made a remarkable recovery from that and have had a largely normal life. I have functional memory, but, have always had short term memory problems. I have also had repeated events ever since the accident. I would have brief moments of light-headedness where I would feel very strange. They would pass and that would be it. They would cluster over a day preceded by, although I didn't realize it at the time, a nighttime mini-seizure. Now, as I am aging, I guess the whole syndrome is just getting more severe.
I am brand new on this site, so I am not sure what the protocol is. I guess I am curious to know if there is any shared experience out there.
I am particularly worried about the long-term, especially since I am an older man with a young family and loads of responsibilities. Right now, I am taking 400mgs/day of Dilantin and am sleeping a lot better.

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  • I see you live in Oakland - have you tried acupuncture to help with this? Can you find someone who specializes in scalp acupuncture - I think it would really help you. Best wishesDOM
    acuann 3080 Replies Flag this Response
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