I was diagnosed with type 2 diabetes 7 weeks ago - by accident, and that the diabetes, undiagnosed for a long time has caused me a lot of problems.
I had been having pain in my right leg when walking. I had an xray which showed nothing wrong. I had pain in my left arm, and my gp said it was probably a trapped nerve and it would go away. I then started having pain in my chest (well, a kind of tightening) when walking, so the gp sent me to have a treadmill test, which showed abnormalities in the trace and it gave me chest pains.
The cardiologist sent me for an angiogram but she couldn't get the catheter into my right groin so she did in the left. My heart reacted to the dye so the test had to be abandoned and she sent me for a stress and rest test. In the end she said my heart was fine but that she wasn't happy about not getting the catheter in my groin so she sent me to a Vascular surgeon.
When I went to see him he looked at my leg and said there wasn't a pulse in my foot or behind my knee and I told him about the pain in my arm and the same thing happened there, no pulse or weak pulse in my wrist and elbow. So he sent me for a doppler on both my leg and left arm and neck. He said a had a severe blockage in my femoral artery in my right leg and I had a significant blockage in my chest (collar bone), so he sent me for an MRA (not MRI) scan on my shoulder, arm and neck. I then received a letter saying I had something called Subclavian Steal Syndrome and that I could be treated by a carotid to subclavian artery bypass. However, when I went to see him to discuss the operation, he said that he wouldn't do the operation because he thought it would be unsuccessful and it would clog back up again. He also said that he didn't think the pain in my arm was anything to do with the blockage in my artery and that I probably have a frozen shoulder and is sending me to see a shoulder specialist and ordered an xray of my shoulder!
In the meantime, I'm in agony with my arm and I'm on morphine patches and liquid for the pain. I don't understand how I can have all those tests on my arm and neck (because of the pain I complained of) where they find a major blockage, offer me an operation, then take that offer away and then tell me I've got frozen shoulder!! Even if it is frozen shoulder, what about the blockage?? I'm so scared I'll have a stroke or heart attack if they don't operate. Also, my bp in my left arm is a lot lower than in my right arm. The pain is depressing and my hand keeps going either very hot or very cold. I still have chest pains, which the cardiologist says is not from my heart but probably from the blockage.
I have asked my gp for a second opinion. But is there anybody on here who knows anything about this sublcavian steal syndrome? I know it's uncommon but surely they can't leave someone in this condition??
I am so very desperate as I can't put up with this pain too much longer. I can't move my arm properly without getting severe pain right down into my wrist. I can't wash my hair properly because I can't get my arm up there. I can't sleep because I have nowhere to put my arm that doesn't hurt!!