Discussions By Condition: Medical Stories

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Posted In: Medical Stories 0 Replies
  • Posted By: Kath1223
  • February 5, 2010
  • 11:56 PM

I have an endocrine disease called panhypopituitarism which means that the pituitary gland is no longer functioning. All the endocrine glands in the body depend on the pituitary in order to function, so I have to take replacement hormones. I was diagnosed in 2000 after many years of gradually worsening health. I visited at least a dozen doctors searching for the answers but without finding them. Finally, I was put in a research study by an endocrinologist that I saw in another city many miles from home and I was found to have no growth hormone at all and not much of the other hormones. The underlying condition present in my head is that of Empty Sella Syndrome wherein the sella turcica (bony encasement around the pituitary) has ruptured and has allowed spinal fluid to fill the space. This causes the pituitary to gradually cease functioning. I would very much like to speak with other pituitary patients as I am still somewhat symptomatic (just had an adrenal crisis) and feel a need to share info and maybe be of some help to those who also have this disorder.

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