Discussions By Condition: Medical Stories

New here...my story

Posted In: Medical Stories 3 Replies
  • Posted By: midnterunaway
  • October 21, 2006
  • 07:17 PM

Hi new to the group. I stumbled across this by accident and want to share my story. I'm a female soon to be 45. I suffer from major depression and fibromyalgia. I have hypothyroidism, GERD (hiatal hernia), degeneration of the disks in my neck. I suffered whiplash from a car accident and now my neck and back are both screwed up. I have sleep apnea and use my CPAP machine. My weight is ballooning due to the pain and stiffness of fibro and inactivity. I'm thinking of getting a gastric bypass. My sleep always has been rough but now it's worse. Docs are changing my meds around. Right now I'm on Cymbalta and Amitryptaline for nighttime. I've undergone another sleep study (a very thorough one, being hooked up with all the wires, etc.) about a year ago. The doctor did me no good. Said basically that my whole body jerks in my sleep and I grit my teeth. He had nothing to tell me did not know what was causing it. Told me to get a mouthguard for the bruxism. And put me on temazepam at night (which did no good).

At any rate I've pretty much worked until about a year and a half ago. I was doing cashiering in a busy Wal-Mart Supercenter and could not keep it up. They gave me a leave of absence but I could not return and do that kind of work anymore.

I got diagnosed with fibro last May. I finally got a name of what is causing my overall pain and problems. In the morning I'm shot. I can barely crawl out of bed. Doc has put me on Methadone, Darvocet, Ultram, some others (not all at same time of course). I took too much Methadone and right away my psych nurse said oh take her off that she's getting addicted. How can I be addicted when it did nothing for me? I'm not getting a buzz off it..there's nothing to be addicted to. Now they say oh no narcotics for you and give me some kind of NSAID and it doesn't do diddly.

I was on Effexor and they switched me to Cymbalta too quickly. I crashed and burned, crying and wanting to kill myself. And they wondered why? Duh!

I've tried to get Social Security disability and I applied twice and got denied twice. Even with major depression, fibromyalgia and my other health issues the SSA says I can work. (Right). Now I'm forced to look for work and I'm trying to find work that I can do. Not always easy.

I'm also a caregiver to my husband. He gets disability and he works part time.

Hey anyone with fibro/and or depression write me. Let me know if anything works for you.

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3 Replies:

  • Have You Tried Desyrel For Your Depression? It Is Not Addicting And It Helps You Sleep Also. I Was On It For Two Years And It Was Really Good. Also,you May Need To Get A Lawyer That Specializes In Social Security Cases, As Most Of The Time If You Don't Have One, They Will Deny You. Good Luck To You.
    Anonymous 42789 Replies
    • October 25, 2006
    • 04:50 AM
    • 0
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  • Hello, I am so sorry to hear your story, because I truly feel your pain. You can read my story that I posted earlier, "I've Been Misdiagnosed Twice". Right now they say I have severe fibromyalgia, osteoarthritis, and a meniscal tear in both of my knees, and I am only 29! I have been going round in this circus for about eight years now, and still don't have the answers I need. I know the frustration of trying to get on SS Disability. I had to quit my job as a retail store manager because I was coming home every night crying from the pain. The trick with the disability is to go in and meet with your case worker when they give you the opportunity to appeal the decision in person. It makes all the difference. Also bring someone with you that will vouch for how difficult you day to day activities have become. Also be very proactive on getting every possible piece of documentation from any doctors you have ever seen in the past about this condition. Don't just wait for the Disability people to request them, you get them yourself and physically give it to them. Also, keep a journal daily of every symptom you have and how it is impairing an activity at that moment. Be prepared to be turned down several times. That is there job. They are trying to weed out the people who don't really need it and hoping those people will just give up after a while. If you are persistant and do everything I told you, it will really help. Also, it would be best to consult with a Disabibility Lawyer at this time. You don't have to pay them unless you get the award, and then they just get a percentage of your backpay that the government owes you from the day you became disabled. It would be really smart to get a rheumatologist that is very specialized in fibromyalgia as well. They are the ones who really understand that this is a real disease with very real pain and symptoms. If you find one like that, they will be you number one backer. Have you tried Lyrica yet? It is the newest drug they are using to treat fibromyalgia, and it has less side effects with your antidepressants than cymbalta does. I will be praying for you. Keep a positive attitude, and know you can make it through anything when you believe in yourself. Let me know if you need anything.
    jenn38018 7 Replies
    • October 28, 2006
    • 07:11 AM
    • 0
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  • Hi, I am new also and have all of your complaints plus...Recently had a nisson fundoplication for Gerd which no longer responded to meds. Have had fibro and chronic fatigue for 9 years. Just had gall bladder removed. Still having major problems with stomach etc.etc. You get my drift. I understand the pain you are in. I did get SSD for my fibro, was one of the first in the state of Florida. If you have been turned down twice do please get a lawyer. It is impossible to work with Fibromyalgia. Another thing I was on many meds like you, for pain and sleep etc. went off them 6 weeks ago on my own and have lost close to 50 lbs in 6 weeks. Had no idea the medicines had caused me to gain so much weight. You might want to consider that before you get as drastic as a bypass. I too will say a prayer for you, please stay in touch if you wish to talk more about this life changing diagnoses. Blessed Be, Ginella
    Anonymous 42789 Replies
    • November 8, 2006
    • 02:29 PM
    • 0
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