Hereditary spastic paraplegia (HSP), also called familial spastic paralysis
thats what a dr told me years ago that I have. Basically my legs arent bad they are just misunderstood, thats what I tell people.
I cant walk very well at all, I have drop foot syndrome, my legs freeze up like Frankenstien, I can hear dad yell at me, pick up your feet when you walk, but I cant.
I cant feel my legs right, its not that I cant feel them at all, if you step on my foot it hurts, its just different then the sensation any where else. I got stung by a bee once, didnt feel it for over ten minutes then it hurt like ***l.
I feel like I need a cane to walk, I cant play with my kids anymore. Im gaining weight because I cant exercise. The older I get the worse its getting, and the drs are just like umhumm. Thats it, they have no clue. People ask me whats wrong with me, do I have one leg longer then the other. They had me wear braces on my legs about 5 years ago and that screwed up my back. I have to see a massage therapist every two weeks just for my back and thats very expensive. I have eight siblings all having some sort of neurological disorder all with different symptoms. They change all the time, so people think Im faking which sucks. Some people say I need strengthing exercises, other doctors have said exercise is the wrong choice. If I dont exercise they get worse, if I do I fall and get hurt. CAN ANYONE GIVE ME A HINT WHAT TO DO?
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