Hello All. I was found to have a solitary Oral Neurofibroma (hard palate) about two years ago. The Oral surgeon removed it and missed part of it. Now, I have another one. I am scared! There does not seem to be much information related to Neurofibromas with no relation to NSF1 or NSF2. I am calling tomorrow to make an appointment at Cleveland Clinic. Does anyone know anything about these? Do you think I need genetic testing? I am a 40 year old female with no prior symptoms. Although at one time I remember developing a lump at the top of my spine/neck which has since disappeared. (was as a teenager). I am lost and confused!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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