Discussions By Condition: Medical Stories

Need answers on CAH

Posted In: Medical Stories 0 Replies
  • Posted By: barbara angel
  • October 14, 2006
  • 05:24 PM

I have a 12 year old daughter who was born with a condition called congenital adrenal hyperplasia(CAH). I have recently learned from doing computer research on this condition that it could have been detected before she was born. I had an amniocintesis done when I was 5.5 months pregnant with her,I was told she was going to be born with open spinabifada, I knew that was wrong because she moved to much during pregnancy so I was given a wrong diagnosis. I have also learned that there are some things with her CAH that could have been prevented with correct diagnosis and proper treatment during pregnancy. How could such a mistake have been made.

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