Hi I'm new to this site, so I thought I'd share my story with you all.
I'm a 29 year old female and live in Australia. Between the ages of 16 - 18 I had glandular fever, cat scratch fever and then ross river fever (unlucky huh?!). After I 'recovered' from most of the symptoms, I had ongoing joint pain, finally it got so bad I went to a new GP for help because it was effecting every aspect of my life. I had a few intracapsular methylpred injections and some NSAIDS which seemed to help a bit, then prednisolone which helped A LOT! Eventually I got sent to a rheumatologist (amongst various other specialists) who told me I DID NOT have arthritis and that my problems were because I had played too much sport as a child; she kept telling me this for over 3 years even though I eventually got to the stage where I could barely get out of bed, let alone play sport. Finally I got angry and DEMANDED to see another specialist, I got sent to a wonderful Physician who listened to my story, examined me and had me diagnosed in under an hour! I have what he calls 'seronegative palondromal rheumatoid arthritis', which he believes was caused by the Ross River Fever. I went misdiagnosed for 8 whole years, and have now been seeing my 'new' specialist for 3.5 years.
I have a 4 month old baby girl (my pregnancy and her birth were a whole 'nother story in themselves) and unfortunately I didn't experience the usual remission of symptoms whilst I was pregnant, my RA simply changed course and moved into the joints most under stress from my pregnancy. I've had problems since her birth and am currently having a nasty flare up, which is proving difficult to get under control. Is there anybody else here who is living with RA? Thanks for listening if you go this far!
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