Discussions By Condition: Medical Stories

My Story RRV + RA

Posted In: Medical Stories 2 Replies
  • Posted By: Angelstorm
  • February 15, 2007
  • 02:10 PM

Hi I'm new to this site, so I thought I'd share my story with you all.
I'm a 29 year old female and live in Australia. Between the ages of 16 - 18 I had glandular fever, cat scratch fever and then ross river fever (unlucky huh?!). After I 'recovered' from most of the symptoms, I had ongoing joint pain, finally it got so bad I went to a new GP for help because it was effecting every aspect of my life. I had a few intracapsular methylpred injections and some NSAIDS which seemed to help a bit, then prednisolone which helped A LOT! Eventually I got sent to a rheumatologist (amongst various other specialists) who told me I DID NOT have arthritis and that my problems were because I had played too much sport as a child; she kept telling me this for over 3 years even though I eventually got to the stage where I could barely get out of bed, let alone play sport. Finally I got angry and DEMANDED to see another specialist, I got sent to a wonderful Physician who listened to my story, examined me and had me diagnosed in under an hour! I have what he calls 'seronegative palondromal rheumatoid arthritis', which he believes was caused by the Ross River Fever. I went misdiagnosed for 8 whole years, and have now been seeing my 'new' specialist for 3.5 years.
I have a 4 month old baby girl (my pregnancy and her birth were a whole 'nother story in themselves) and unfortunately I didn't experience the usual remission of symptoms whilst I was pregnant, my RA simply changed course and moved into the joints most under stress from my pregnancy. I've had problems since her birth and am currently having a nasty flare up, which is proving difficult to get under control. Is there anybody else here who is living with RA? Thanks for listening if you go this far!

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2 Replies:

  • I am so sorry to hear that you're suffering so much. I've just been diagnosed with RA and spend WAAAAY too much time on the internet hoping it's a misdiagnosis. My new approach is to take one day at a time, to make sure I do one fun thing each evening (even if it's watching t.v. or reading trash), and to remember to enjoy loving my kids (sometimes it's hard if you're scared or in pain). I have even taken to carrying around corny quotes to keep me strong. Oh yeah, and I am taking my medication, but researching other approaches too. I just gave up dairy and felt so much better immediately, but then realized the weather had finally warmed up,so I have NO idea what helped. Every time you freak out, tell yourself not to panic, you will just commit to making it through today with a good attitude.I'll be thinking about you.
    Anonymous 42789 Replies
    • February 19, 2007
    • 11:20 PM
    • 0
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  • make sure to have your thyroid tested. ask for a TPO not just a TSH test. This autoimmune disease causes all kinds of muscle/joint pain and is notoriously miss diagnosed or undertreated. It also leads to what is called poly glandular disease, other autoimmune diseases such as diabetes.
    Anonymous 42789 Replies Flag this Response
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