Discussions By Condition: Medical Stories

My Sister has partial Lipodystrophy, Scoliosis and Amenorrhoea

Posted In: Medical Stories 0 Replies
  • Posted By: roshannerd
  • May 19, 2012
  • 08:40 AM

My sister whose age is around 24 years is suffering from this disease from the childhood. When she was around 4-5 years age, she had Tuberclosis. Then, when she got well, she started getting thinner and thinner. First of all, we thought that she is getting thin because of lack of energy. We took her to too many doctors for many years. Each doctor said that there is no problem with her body and her getting thin is just naturally. They always used to give tonic to her. But when she was around 19 years, her belly started growing in size and clearly looking. Now, she has very thin body and fat belly. We took her to All Indian Medical Institute of Sciences ( AIIMS ), which is one of the best hospitals of Asia. There she is under treatment for around 2-3 years. She was admit there for many days. And they took test of almost her full body. And finally they came to conclusion that she has Partial Lipodystrophy, Scoliosis and Amenorrhoea. They say that there is not any treatment possible for this disease in the whole world. Reasearch is still going on on this disease. But as of now, there is not any successful treatment of this problem.
Please tell us if anybody faced the same problem or anybody knows about how it can be cured or want to give any suggestions.

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