Im a New Zealander, that was born with two rare diseases cutis laxa and ehlers danlos syndrome. Apparently when I was born doctors said I wouldn't make to the age of 1, then I turned 1, then they changed age prediction that i'd make it to, they said I wouldn't get to the age of 5, well what do you know celebrated my 5th bday, then doctor said im one of the lucky ones(but then there was a doubt that he had) he told my parents that it may or may not be possible that my life will last for much longer(he told them I wouldn't make it to age 13) and well today i'm 18 years of age/: my life has been a struggle with my illness, im going through a depression phase at the moment, I don't go anywhere or do anything, im antisocial, droppd out of high school because of bullying, cant bare going anywhere because im tierd of people staring, pointing as if ima freak. Yes I do look different, but no im not any type of alien, I have two arms, 10 fingers, two legs, 10 toes, a head with two eyes, 1 nose, 1 mouth, two ears..etc.. im just a human that was unlucky with a ugly skin disorder. Although my mind and brain seems to work just fine hehe, I can talk, walk, read, good at math, love science, art and dance(I can do everything that a healthy human can do) but it's my outside image that stops me from socialising. THIS IS MY CRY FOR HELP! people tell me, im blessd, there was a reason why God made me the way I am, but yeah I can only believe that for so long. I've always been shy though, but I have a great family, and few great friends that have supported me through hard times. I've had suicide attemps before; I have two sisters, one brother(all Healthy) I do envy my sisters because they're pretty and they have a social life that i'd love to have but cant, because people are so judgemental, being bullied has affected mentally. what I want out of this message is to RAISE AWARENESS ABOUT MY CONDITION! we do look different but(apart from identical twins) who the heck has exact same features of anybody? ALSO IF ANYONE AT ALL COULD FIND A CURE FOR MY CONDITION PLEASE GET BACK TO ME! I've tried throughout my whole life to just cope with who I am, but I cant sit back an watch others have a normal life. if it's possible for surgery to be done on me, well i'll take my chances with that..and well im gonna stop there lol i'll be sitting for years just talking about my health issues hehe.. Peace!xoReply Follow This Thread Stop Following This Thread Flag this Discussion
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Is it sensitive skin or something else?