Discussions By Condition: Medical Stories

my pulmonary hypertension story

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • January 24, 2007
  • 10:04 PM

well. what can i say im an ordanary girl with pulmonary hypertension i was diagnosed when i was 11. ever since then i have had every 3 months at the hospital regular blood check and about 5 operations. And some times it can be anoying. but befor i was 11 i had a hole in one of my arteries, this was found when i was 6 mounths old i had a operation at 18 months to have it clamped. i was on medication for a while but then that stopped. when that was over i was just a little girl doing my own thing like we do, intill i turned 11 thats when i had the clamp removed and had a ducked fitted. this is when i found out that i had pulmonary hypertension. i was put on one medication but it did not agree with me thats when i was sent to Great Ormond Street Hospital. here i found out everything i needed to know about pulmonary hypertension, over the last 5 years i have beed on 4 different tablets and taken 8 a day.

Pulmonary Hypertension it a heart and lung disease, it puts pressure on the lungs.

i wanted to share my medical story with you as i know it can be hard having a disabilaty, i really just wanted to know about other peoples feeling as sometimes i get confused about mine and have no where to turn sometimes. hopfully i can find some other people with the same condition or similar to talk to.

Natalie-Louise xxx

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  • well. what can i say im an ordanary girl with pulmonary hypertension i was diagnosed when i was 11. ever since then i have had every 3 months at the hospital regular blood check and about 5 operations. And some times it can be anoying. but befor i was 11 i had a hole in one of my arteries, this was found when i was 6 mounths old i had a operation at 18 months to have it clamped. i was on medication for a while but then that stopped. when that was over i was just a little girl doing my own thing like we do, intill i turned 11 thats when i had the clamp removed and had a ducked fitted. this is when i found out that i had pulmonary hypertension. i was put on one medication but it did not agree with me thats when i was sent to Great Ormond Street Hospital. here i found out everything i needed to know about pulmonary hypertension, over the last 5 years i have beed on 4 different tablets and taken 8 a day. Pulmonary Hypertension it a heart and lung disease, it puts pressure on the lungs. i wanted to share my medical story with you as i know it can be hard having a disabilaty, i really just wanted to know about other peoples feeling as sometimes i get confused about mine and have no where to turn sometimes. hopfully i can find some other people with the same condition or similar to talk to. Natalie-Louise xxxHi There. Try the website PHA-UK. This is the web-site for British PH sufferers and you can meet a lot of people there who are basically the same as you.They will give you a lot of help and advice and even have family weekends where sufferers and there families can meet one another. You are not alone. I suffer from PH as well.
    Anonymous 42789 Replies Flag this Response
  • well. what can i say im an ordanary girl with pulmonary hypertension i was diagnosed when i was 11. ever since then i have had every 3 months at the hospital regular blood check and about 5 operations. And some times it can be anoying. but befor i was 11 i had a hole in one of my arteries, this was found when i was 6 mounths old i had a operation at 18 months to have it clamped. i was on medication for a while but then that stopped. when that was over i was just a little girl doing my own thing like we do, intill i turned 11 thats when i had the clamp removed and had a ducked fitted. this is when i found out that i had pulmonary hypertension. i was put on one medication but it did not agree with me thats when i was sent to Great Ormond Street Hospital. here i found out everything i needed to know about pulmonary hypertension, over the last 5 years i have beed on 4 different tablets and taken 8 a day. Pulmonary Hypertension it a heart and lung disease, it puts pressure on the lungs. i wanted to share my medical story with you as i know it can be hard having a disabilaty, i really just wanted to know about other peoples feeling as sometimes i get confused about mine and have no where to turn sometimes. hopfully i can find some other people with the same condition or similar to talk to. Natalie-Louise xxx[/QUOTEHello: I was just diagnosed with pulmonary hypertension and I am a customer service rep. I have had shortness of breath for so long and can no longer wait as this has gotten worse. I have COPD.
    Anonymous 42789 Replies
    • January 19, 2011
    • 00:57 AM
    • 0
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