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my medical stoy

Posted In: Medical Stories 0 Replies
  • Posted By: Marilyn_K
  • July 14, 2010
  • 00:28 PM

I have been to many doctors and have had many of the same symptoms over the years. Some have changed as I got older but most are the same. I am 32 years old now and have been diagnosed with a bunch of different things and I can't help to wonder if all these things are symptoms of something more complicated. Here are a few of the things I have been diagnosed with...

Asthma
Endometriosis
Irritable Bowel Syndrome
Irregular Heartbeat and sometimes atrial fibrillation

When I was younger I always remember having stomach aches and when my parents too me to the doctors they ran blood tests and my white blood cell count was always high. They told me it was probably just a cold or flu that my body was fighting off. I remember one specific time the stomach pains were so bad my parents too me to emerg at the hospital. They did some x-rays of my stomach and then wanted to do a colonoscopy. At that time I was young and decided I didn't want the colonoscopy and left the hospital.

When I got my period I suffered from bad cramps right from the beginning. I spent many day home from school curled up in bed with a heating pad and taking advil every 6 hours. I felt that I had to sleep through the cramps in order to get rid of the pain. This caused me to miss at least 2-3 days of school every month.

When I was 17 I had more stomach pain and was told that I had a cyst on my ovaries that had burst. I was kept in the hospital for about 24 hours on IV to make sure the poison from the cyst was flushed out.

When I was 19 I had stomach pains again in the bottom of my stomach again. I also started to suffer from constipation. I went to a doctor that told me I had Irritable Bowel Syndrome. So I did my research online and changed my diet and started eating more healthy and including more fiber.

When I was 20 my period cramps were worse and then I went to a gyno who suggested that I have a laparoscopy to see if there was endometriosis and to remove it if they find it. So I had the surgery and the doctor said that she did find endometrisis and that she removed what she could. I was then told that it may come back in a couple years and that there was nothing I could do about it.

for most of my 20's I had also had many bladder infections and eventually became allergic to sulfa drugs.

I had my son when I was 22 and had a natural birth. Everything was back to normal a few months after. I did start to have pain in my bowels though. I was told it would take quite a few months for that to go away. It didn't though. The pain would be extremely bad while having a bowel movement the first day of my period. Sometimes I want to scream, sometimes I break a sweat and sometimes I feel dizzy. I still experience these pains on the first day of my period.

When I was 27 my asthma got bad. I was in the hospital for a week at one point and was put on stronger inhalers.

When I was 29 I started to experience palpations and atrial fibrillation and had many tests done to try to figure out what caused it. I went to a cardiologist who did a cardiac stress test which showed that the atrial fibrillation stopped and that the heart beat regulated it self while exercising. There was also an ultrasound done which showed that the heart looked normal. The doctor said not to worry that some people live with irregular heart beats their whole life. So the palpitations slowly went away and came back once and a while but not as bad as the time before.

When I turned 30 I went to a doctor that specialized in endometriosis. He told me that I should have another laparoscopy and that he wanted to try a new procedure where he would cut the pain nerves under the womb with a lazer so that when I have my period the cramps wouldn't be as bad. I agreed to have the procedure done. When I went into surgery I was actually on my period and when I woke up from the surgery I had so much pain they decided to keep me over night even though it was supposed to be day surgery. The pain was terrible and I given moraphine and told that everything went ok during surgery and that the pain would go away. I was in pain for days after and experienced the worst pain while having bowel movements. I went back to the doctor a few weeks later to ask questions and was told not to worry that it would go away. I was very upset because my period cramps seemed to have got worse since that surgery and I don't understand how if they cut the pain nerves.

I continued to have problems with my asthma and also the heart palpations. I decided to go to a different doctor about the heart palpations. This cardiologist decided to do a MRI which I was thankful for because I really though he would be able to see what was causing the problem. The test didn't show anything. He then told me to cut back on my asthma medications because they might be causing the problem but ht didn't know for sure. I knew that that wasn't an option or I would suffer from asthma attacks more often.

I still experience small palpations every once and a while while laying down. I have tried to think of what might be causing them and can't come up with anything but I have noticed that they almost always happen the day before my period. I have also started to experience a feeling of anxiety right before my period. It is so bad sometimes that I feel like something terrible is happening and I even get overly emotional when this happens. I know these can be symptoms of PMS but I have never experienced these feelings as bad as I have in the last year. I feel like the palpations happen and that it ends up causing the anxiety because I get freaked out about the palpations happening and knowing I can't do anything about it.

I have also been experiencing constipation along with the stomach pains in the lower stomach almost the groin area and extreme pain while having bowel movements. The pain while having bowel movements has even started to happen between periods and I still experience the sweat and the feeling of almost fainting. The pain in my stomach is there most of the time now and even feels tender to touch from the outside.

I have been back to the doctors and they just keep telling me that it must be my endometriosis and that I should just take advil and try to live with it. I really don't believe that thats all that going on. I also have some small things that have always bothered me like my feet are always cold. they often tingle and feel like they fall asleep easily.

I have spent the last 5 years eating as healthy as possible to try to get rid of the problems. I have cut out caffeine, alcohol, high sugar foods, anything processed and even cut back on wheat products. I find that I end up binging on sugary foods because I get to a point where I feel really tired and I get irritable if I don't find something with sugar right away. Then after I have it I feel ok again for a while.

In the last couple months I have experienced pains in my chest on my right side under my breast and under my rib cage. I went to emerg and they did some blood test that showed that I tested positive for a clot somewhere. They then did a test to make sure it wasn't in my lungs. the test didn't show anything so they told me not to worry and to go home. I have experienced the pain since then but see no point in going into emerg every time if they can't find anything.

so here's the list of every symptom I have had...

Asthma
Stomach Pain in lower stomach that feels like a stabbing pain with bowel movements and when coughing or sneezing.
Palpations/Atrial Fibrillation
Bowel Pain worse during period but there between periods
Constipation
Anxiety and Palpations the day before period
Pain in chest under breast under rib cage that lasts up to an hour sometimes
Sugar Cravings

I have spent many years believing the doctors and just living with these symptoms but I don't agree with the diagnosis. I have not once found a doctor that has looked at all these symptoms at once and tried to find a reason for them. Each symptom seems to lead me to a specialist for that symptom but never to a doctor who takes all symptoms into consideration.

I hope one day I can find that doctor that will look into everything as a whole to see if the symptoms have the same underlying cause. I know that they are related in some way as each one effects the other in some way.

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