I am a registered nurse and mother of 2 girls.
When my eldest was almost 3 I finally persuaded a paediatrician that I was not suffering from a munchausen problem and wanted my child's instability taken seriously.
Within 2 minutes of being in the neurologists clinical room she diagnosed my daughter as having Ataxia, a lack of control to her voluntary muscles. An MR scan revealed she had cerebral atrophy, although apparently fully formed her cerebellum had shrunk, we have no idea why, I had a 'normal' pregnancy and delivery and she never suffered an illness or injury which would suggest this.
Anyway, my daughter is intelligent, sociable, beautiful! she falls over alot, can't jump or stand still, has a very mild slur to her speech which most people don't seem to notice and put it down to an impediment or childishness!
I had some dark moments and stopped reading up on the diagnosis as I was convincing myself that my precious daughter was going to be in a wheelchair in her teens/early twenties.
We haven't been given a prognosis and she has remained relatively stable / no obvious worsening of symptoms.
My concern at the moment is she is frequently having urinary incontinence which is becoming much more frequent. My instinct tells me it is because she is a dreamy little girl who would rather play than go to the toilet and her bladders immaturity stops her from holding it for as long as she attempts to!
But, there is a nagging feeling that this is a progression.......her bladder 'muscle' isn't under the same control as it was and I am so frightened that this is something she cannot help and the disease or whatever has caused this was not a one off accident which has left its mark but a progressive degenerative disease.
I do not know anyone who has a ataxia and I'm useless at searching the net!
is there anyone out there who knows anything about a link between cerebral atrophy/ataxia/urinary incontinence?
Thanx a concerned desperately trying to refrain from being neurotic mother!
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