My son has been having recurring throat cysts since the age of 2. He has had 10 surgeries to remove the cyst, but it continues to grow back. The problem is the cyst blocks his airway when it there and he can't breath or swallow resulting in emergency surgery. He is always placed in pediatric intensive care, has to be intibated in case of airway swelling. Just today he was once again seen by the ENT and it is back again for the 11th time.
We've been to both the Children's Hospitals in our area which are pretty much the best and they can't tell me why it keeps recurring. He is a very frustrated little boy. Today he cried (he's never cried before) he is protesting another surgery. Can't say I blame him. He suffers from restless sleep, can't swallow, blocked airway. We are desperate to find an answer and get this removed for good. Please if anyone knows anything about this please respond.
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