Discussions By Condition: Medical Stories

multiple symptoms and ORANGE TEETH

Posted In: Medical Stories 10 Replies
  • Posted By: mommalisa
  • February 6, 2007
  • 04:42 PM

My 15 y/o daughter has been sick for about seven years now. She had a tonsillectomy after repeated tonsillitis in first grade.
She began having headaches and worsening ADD with exposure to perfumes, scented candles, and air fresheners. These were all being used at school. After getting a 504 they were finally removed from her classrooms.
She had some ADD symptoms in first grade but we did not try medication until 3rd grade.Ritalin didn't help and Adderall made her lose 7# in a few weeks and she was already underweight. She was allergy tested and had a few allergies for which she took allergy shots. Trips to the allergist made her sick because it was in a large city 40 miles from home.She also saw a neurologist for chronic headches with no relief. She was a competitive swimmer and competed on the state level. She took a break from swimming the summer before 5th grade and was unable to swim when she returned in 6th grade. She was prescribed Advair for difficulty breathing. She began taking Concerta for her ADD. She began having sinus infections and was given antibiotics and steroids and told to use her inhalers( Albuterol and Advair) In April of this year she had her first bout with bronchitis. I begged the doctor not to give her steroids because they made her extremely weak(unable to walk). She said we had no choice. She did not improve after a week so the doctor increased her steroids. She started swelling and when they decreased the steroids she became sicker. She gained 12 pounds and she weighed only 90 something. The swelling in her abdomin never completely went away. After a week of steroid withdrawal she was still sick. She would have SEVERE cramps in her side at the rib cage area( left side) lasting 1-2 hours at a time all night for several days. The doctor said there was nothing to be done for this and told me to give her phenergan which didn't help. Antibiotics always make her sicker but she continued her Augmentin. She did not improve until I took her to another physician who changed her inhalers(she had finished her antibiotic by then). She missed 3 weeks of school.
She has had excellant grades until she missed so much school from illness.

We moved in August and stayed 10 days with relatives who smoke in the house.She also attended a newly constructed school. This flaired up her asthma. She was using her Advair on a reguler basis. I noticed she was having swelling of her ankles. She also was having increased abdominal swelling. Her new doctor sent her to an allergist who said she had the lung function of a 70 y/o woman. He increased her advair from the 110/ 50 once a day to the 200/ 50 twice a day. She was having increased difficulty concentrating so her ADD med was increased. She was taking the new patch methylphenidate. She began having SEVERE muscle spasms again. This time they were in her chest ,hands, feet. Her ADvair was discontinued, Her muscle spasms became worse when she used her albuterol. She also had severe ear pain. And the strangest symptom of all was orange teeth. On the days she felt bad her teeth would have an orange cast to them.
She was sent to a gastroenterologist who did a biopsy for celiacs that was negative. She did have inflammation of her GI tract which he gave her Nexium.
Her pediatrician referred us to a psychiatrist. She prescribed that my daughter be homebound and not attend school for 2 months. All medication was discontinued. We were referred to a neurologist who prescribed neurontin 100mg. at bedtime.that did not help. During all of the she began menstruating for the first time just 2 weeks before her 15th birthday.

On our last visit to the psychiatrist she mentioned parathyroid disorder. My daughter is very small boned.
She had sleep studies done that showed that she woke up(came out of deep sleep) 28 times an hour.

I put her on calcium and magnesium supplements which almost diminished the spasms completely. She also takes vit. D3, activated B6, organic flax seed oil. She is not taking any prescription meds. She is taking allergy shots 2x/week. She has improved but is not well. She comes home from school so tired that she can barely complete her homework. On the days that she feels poorly her teeth are orange looking. When she feels better they are white. Brushing does not effect the color of her teeth.

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10 Replies:

  • Here are a few thoughts. Has she been checked for sarciodiosis?? Lyme disease??? Adrenal fatigue?? Low thyroid ?? Magnasuim does help. Does she have allergies?? What are the shots?? All the steriods weren't the best for her. They supress the immune system. Hope you find out soon and she can begin to feel better.
    Anonymous 42789 Replies
    • February 8, 2007
    • 01:24 PM
    • 0
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  • For me, the clue is multiple allergic responses and the oddly colored teeth. I think you need to experiment with her diet and watch the key allergic foods: wheat, peanuts, milk, soy, tomatos, corn. Take those out of her diet and see if there's any change. I don't just mean no bread or corn on the cob, you have to be STRICT with eliminating processed foods that use allergens as fillers and flavorings. ONE milligram of an offending protein can cause digestive distress leading to pain and malnutrition.It sounds like a complication of an angered immune system and a lack of nutrients. Keep up the vitamins, but switch to a brand that doesn't have any allergens (corn and wheat are common binders in most pills). Keep a diary of all allergic responses, diet, and how her behavior/energy levels are doing. I bet you find a pattern! Dental Enamal Hypoplasia is a consequence of improper food digestion - it causes the body to create discolored enamel.Even if the allergenist doesn't find a normal "allergy" to the food, there could be an issue with proteins and/or sugars being partially digested and ONLY THEN triggering the immune system further into the body. This would cause the bloating in the abdomen and the behavioral problems (who wants to sit still when they are in pain? She doesn't need psych-drugs; she needs to be healthy. And I think you understand that so Bravo for you)
    Azaral 152 Replies
    • February 8, 2007
    • 03:29 PM
    • 0
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  • Wow, I am sorry to hear your ordeal. Please know that your daughter is in bad shape due to all the meds./antibiotics she had to take. These can cause tooth discoloration... I am glad to hear she is no longer on meds and taking supplements. Due to her sensitivity you need to be careful, and I agree with Azaral on checking her diet. Please visit www.wholeapproach.com and print out their food lists - they are really excellent and focus on what you CAN eat rather than what you can't. The absolute BEST liquid nutritional supplement I have found (and I've been searching for a long time) is called INTRAMAX.It is only sold to healthcare practitioners and it is expensive, but it takes the place of ALL other supplements you and your family may be taking. Add those up and it will actually save you money. INTRAMAX is extremely hypoallergenic and free of all allergens and is also vegetarian. It is simply the very best supplement I have found and I can't recommend it highly enough. (i've tried tons - Body Balance, Greensfirst, MonaVie, Noni, and more). Your daughter needs her immune system to be built back up and this will help her tremendously. For more info please visit www.druckerlabs.com Dr. Drucker, who formulated this, was given 6 weeks to live with a severe autoimmune disease. You can find out more about him on the website. Hope this helps and good luck to you!DOM
    acuann 3080 Replies
    • February 8, 2007
    • 04:40 PM
    • 0
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  • Thank you to everyone that replied. After more doctors and more tests and no diagnosis I started researching the internet. I have dysautonomia and have felt like my daughter has it also. The only reason i have not persued it is that the doctor that has treated me said children aren't affected and he would not see her until she was at least 14.I found a wonderful website called Dysautonomia Youth Network. There were all my daughters symptoms in black and white. Now I just have to find a doctor to treat her. I don't know that the orange teeth are related to the dysautonomia but her other symptoms are classic.
    Anonymous 42789 Replies Flag this Response
  • Just wanted to update on my daughter's diagnosis. Besides the autonomic nervous system disorder she has celiac's or gluten intolerance, milk allergy and has been diagnosed with multiple tick born diseases. Her improvement on a gluten free diet has been amazing. I would expect her to be 100% better if she had not contracted mono. The orange teeth have disappeared except one episode since being gluten free. It has been difficult to stay gluten free because so many medications contain gluten or dairy or ingredients derived from it. Also it is not always listed outright on food labels. Her asthma has improved 90%.
    mommalisa 6 Replies Flag this Response
  • Just wanted to update on my daughter's diagnosis. Besides the autonomic nervous system disorder she has celiac's or gluten intolerance, milk allergy and has been diagnosed with multiple tick born diseases. Her improvement on a gluten free diet has been amazing. I would expect her to be 100% better if she had not contracted mono. The orange teeth have disappeared except one episode since being gluten free. It has been difficult to stay gluten free because so many medications contain gluten or dairy or ingredients derived from it. Also it is not always listed outright on food labels. Her asthma has improved 90%. That is great news! Gluten free diets are very very challenging. Have you researched a treatment called NAET - Nambudripad Allergy Elimination Techniques? It can actually REVERSE an allergy to gluten and other items, so you will no longer have to avoid them. It is fantastic and has changed my life (I am not a celiac but have suffered from dairy/lactose/caseine intolerance). Please research this - it may really make a difference! I used to have allergic asthma, and I also will say it has improved 90% after having NAET treatments. www.naet.com Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I have heard that tetracycline causes organge teeth. Did she use it?
    Monsterlove 2921 Replies Flag this Response
  • I have not heard of naet,but plan to look into it. Did your insurance pay for it? My d has never taken tetracycline. The orange color comes and goes.
    mommalisa 6 Replies Flag this Response
  • My 15 y/o daughter has been sick for about seven years now. She had a tonsillectomy after repeated tonsillitis in first grade.She began having headaches and worsening ADD with exposure to perfumes, scented candles, and air fresheners. These were all being used at school. After getting a 504 they were finally removed from her classrooms.She had some ADD symptoms in first grade but we did not try medication until 3rd grade.Ritalin didn't help and Adderall made her lose 7# in a few weeks and she was already underweight. She was allergy tested and had a few allergies for which she took allergy shots. Trips to the allergist made her sick because it was in a large city 40 miles from home.She also saw a neurologist for chronic headches with no relief. She was a competitive swimmer and competed on the state level. She took a break from swimming the summer before 5th grade and was unable to swim when she returned in 6th grade. She was prescribed Advair for difficulty breathing. She began taking Concerta for her ADD. She began having sinus infections and was given antibiotics and steroids and told to use her inhalers( Albuterol and Advair) In April of this year she had her first bout with bronchitis. I begged the doctor not to give her steroids because they made her extremely weak(unable to walk). She said we had no choice. She did not improve after a week so the doctor increased her steroids. She started swelling and when they decreased the steroids she became sicker. She gained 12 pounds and she weighed only 90 something. The swelling in her abdomin never completely went away. After a week of steroid withdrawal she was still sick. She would have SEVERE cramps in her side at the rib cage area( left side) lasting 1-2 hours at a time all night for several days. The doctor said there was nothing to be done for this and told me to give her phenergan which didn't help. Antibiotics always make her sicker but she continued her Augmentin. She did not improve until I took her to another physician who changed her inhalers(she had finished her antibiotic by then). She missed 3 weeks of school.She has had excellant grades until she missed so much school from illness. We moved in August and stayed 10 days with relatives who smoke in the house.She also attended a newly constructed school. This flaired up her asthma. She was using her Advair on a reguler basis. I noticed she was having swelling of her ankles. She also was having increased abdominal swelling. Her new doctor sent her to an allergist who said she had the lung function of a 70 y/o woman. He increased her advair from the 110/ 50 once a day to the 200/ 50 twice a day. She was having increased difficulty concentrating so her ADD med was increased. She was taking the new patch methylphenidate. She began having SEVERE muscle spasms again. This time they were in her chest ,hands, feet. Her ADvair was discontinued, Her muscle spasms became worse when she used her albuterol. She also had severe ear pain. And the strangest symptom of all was orange teeth. On the days she felt bad her teeth would have an orange cast to them. She was sent to a gastroenterologist who did a biopsy for celiacs that was negative. She did have inflammation of her GI tract which he gave her Nexium.Her pediatrician referred us to a psychiatrist. She prescribed that my daughter be homebound and not attend school for 2 months. All medication was discontinued. We were referred to a neurologist who prescribed neurontin 100mg. at bedtime.that did not help. During all of the she began menstruating for the first time just 2 weeks before her 15th birthday. On our last visit to the psychiatrist she mentioned parathyroid disorder. My daughter is very small boned. She had sleep studies done that showed that she woke up(came out of deep sleep) 28 times an hour. I put her on calcium and magnesium supplements which almost diminished the spasms completely. She also takes vit. D3, activated B6, organic flax seed oil. She is not taking any prescription meds. She is taking allergy shots 2x/week. She has improved but is not well. She comes home from school so tired that she can barely complete her homework. On the days that she feels poorly her teeth are orange looking. When she feels better they are white. Brushing does not effect the color of her teeth.My child had orange teeth, painful stomache aches and increase anxiety for over a year. The dentist kept saying brush more, but brushing never removed the orange. I had to scrap it off once or twice a day. Then my child came down with severe strep throat and had azithromyacin to treat it ( he is allergic to amoxicillan) The orange teeth and stoamche aches went away. i research and foudn out there is a common bactieria in our bathrooms Serratia marcescens that can cause orange film growth on teeth that does not come off well with normal brushing. The bateria is chromogenic meaning the coloration only occurs where light activates the color. in the bathroom it is often pink. only bleach can remove it from the bathroom. This bacteria is very resiatant to treatment in humans, but usually responds to antibiotic in the myocin group. but it can be more resistant. People can get infections in surgical sites in hospitals and then more powerful antibiotics are needed.My pediatrician was very interested since he saw the orange on his teeth and his monthes of stomach pains disappear after antibiotic treatment for the strep throat. do some online research into this bacteria. hope this helps
    Anonymous 42789 Replies
    • January 18, 2011
    • 01:27 AM
    • 0
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  • My son has been having various multiple symptoms for 10 years. His health issues have been very serious. His symptoms are mostly gastrointestinal, plus the chemical sensitivities you describe. He has the orange teeth stains that do not go away with brushing. I think I have finally found the source. Try looking up iron bacteria and go from there. We are working on this as well, but it just became obvious this could be the cause of his problems.My 15 y/o daughter has been sick for about seven years now. She had a tonsillectomy after repeated tonsillitis in first grade.She began having headaches and worsening ADD with exposure to perfumes, scented candles, and air fresheners. These were all being used at school. After getting a 504 they were finally removed from her classrooms.She had some ADD symptoms in first grade but we did not try medication until 3rd grade.Ritalin didn't help and Adderall made her lose 7# in a few weeks and she was already underweight. She was allergy tested and had a few allergies for which she took allergy shots. Trips to the allergist made her sick because it was in a large city 40 miles from home.She also saw a neurologist for chronic headches with no relief. She was a competitive swimmer and competed on the state level. She took a break from swimming the summer before 5th grade and was unable to swim when she returned in 6th grade. She was prescribed Advair for difficulty breathing. She began taking Concerta for her ADD. She began having sinus infections and was given antibiotics and steroids and told to use her inhalers( Albuterol and Advair) In April of this year she had her first bout with bronchitis. I begged the doctor not to give her steroids because they made her extremely weak(unable to walk). She said we had no choice. She did not improve after a week so the doctor increased her steroids. She started swelling and when they decreased the steroids she became sicker. She gained 12 pounds and she weighed only 90 something. The swelling in her abdomin never completely went away. After a week of steroid withdrawal she was still sick. She would have SEVERE cramps in her side at the rib cage area( left side) lasting 1-2 hours at a time all night for several days. The doctor said there was nothing to be done for this and told me to give her phenergan which didn't help. Antibiotics always make her sicker but she continued her Augmentin. She did not improve until I took her to another physician who changed her inhalers(she had finished her antibiotic by then). She missed 3 weeks of school.She has had excellant grades until she missed so much school from illness. We moved in August and stayed 10 days with relatives who smoke in the house.She also attended a newly constructed school. This flaired up her asthma. She was using her Advair on a reguler basis. I noticed she was having swelling of her ankles. She also was having increased abdominal swelling. Her new doctor sent her to an allergist who said she had the lung function of a 70 y/o woman. He increased her advair from the 110/ 50 once a day to the 200/ 50 twice a day. She was having increased difficulty concentrating so her ADD med was increased. She was taking the new patch methylphenidate. She began having SEVERE muscle spasms again. This time they were in her chest ,hands, feet. Her ADvair was discontinued, Her muscle spasms became worse when she used her albuterol. She also had severe ear pain. And the strangest symptom of all was orange teeth. On the days she felt bad her teeth would have an orange cast to them. She was sent to a gastroenterologist who did a biopsy for celiacs that was negative. She did have inflammation of her GI tract which he gave her Nexium.Her pediatrician referred us to a psychiatrist. She prescribed that my daughter be homebound and not attend school for 2 months. All medication was discontinued. We were referred to a neurologist who prescribed neurontin 100mg. at bedtime.that did not help. During all of the she began menstruating for the first time just 2 weeks before her 15th birthday. On our last visit to the psychiatrist she mentioned parathyroid disorder. My daughter is very small boned. She had sleep studies done that showed that she woke up(came out of deep sleep) 28 times an hour. I put her on calcium and magnesium supplements which almost diminished the spasms completely. She also takes vit. D3, activated B6, organic flax seed oil. She is not taking any prescription meds. She is taking allergy shots 2x/week. She has improved but is not well. She comes home from school so tired that she can barely complete her homework. On the days that she feels poorly her teeth are orange looking. When she feels better they are white. Brushing does not effect the color of her teeth.
    Anonymous 42789 Replies Flag this Response
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