Discussions By Condition: Medical Stories

Multiple abdominal surgeries-just the beginning

Posted In: Medical Stories 1 Replies
  • Posted By: EarthAngel
  • December 11, 2008
  • 11:35 PM

Hello I am a 50 year old woman that was diagnoised with UC at the age of 20. In April of 2000 I had a total colectomy (removal of large intestine). I developed a fistula (tear between the rectum & the vagina). The surgeon had to go in through my incision less than 4 weeks after my initial surgery to repair the tear. My recovery was long and without incident. I had multiple problems from floating staples that adhered to my intestine and other organs. They became infected. The surgeon removed some rectally and then had to once again operate on me to remove the rest of them that could not be reached through the rectum.

I was scheduled for the reversal of my iliostomy in January 2001, however, my gallbladder caused me excruciating pain. I learned it shut down completely and it was recommended I have it removed. I was waited till my scheduled surgery date to have the reversal done and have the cholecystectomy done (removal of gallbladder). I suffered for a long time with severe adhesions, which I had surgery may times to remove. Some laproscopic and some through my abdomen.

I was hospitalized for severe dehydration and organ failure in 2005. My small intestine shut down, kidneys stopped fuctioning properly and I couldn't keep ice chips down. While I was in the hospital I was informed that I have Ulcerative Colostis (UC) again. My surgeon left atleast an inch too much of my large intestine that was diseased and unfortunately I had the disease again. I was devestated but knew I was a survivor. I tried to make light of the situtation. I was in the hosptial for 4 months until I was strong enough to walk and get back on my feet.
I have other issues too, I am just trying to inform you of my past surgeries so you can have an idea of what I have been through.

I have been on fentynl duragesic 125mcg since 2002 for severe abdominal pain. I had endrometosis severe, fibroids and multiple cysts. In January 2007, I had a hysterectomy done. I decided my abdominal pain was enough. I had large fibriods, long heavy bleeding peroids every two weeks, and a prolapsed uterus. I decided for my 50th birthday I would have my surgery and begin once again my recovery. I wanted my 50th year to be my new beginning for a healthier life.

My surgery went well, I guess. I had major internal bleeding which formed "pockets of fluid" in my abdomen. I had to be patient till it disbursed through my body. I was feeling GREAT for a few months. It was May/June that my pain started again. I tried to ignore it however it started doubling me over again. I was devestated to learn now I have a few things going on. I am not an alarmist but I am drained now. I went to my gyno and he did an ultrasound on me. The ultrasound showed a large mass/cyst in the pelvic area. He immediately sent me for a MRI with & w/o contrast. My test results are as follows:

there is a complex systic structure in the left pelvis measuring approximately 4.7 cm x 4.0 cm. which may represent a complex left ovarian cyst. In the cervix there are multiple cystic areas cinsistent with nabothian cysts. I was informed by my first gyno that she only removed my right ovary and the uterus but was unable to "find" the left ovary. I was surprised she couldn't find my left ovary b/c I have a history of cysts there along with masses in my tubes.

The "impression" of my MRI is that a complex cyst is noted in the left pelvis suspicious for complex left adnexal ovarian cyst measuring 4.7cm by 4.0 cm. They suggest I have a followup pelvic sonogram in 6 weeks to evaluate stabiloty of this finding.

My question is the following. Is is possible not to "find" an ovary while doing surgery? MY first doctor was very evasive with her answers to me, that is one reason I left her and went to the male gyno that she brought in to assist her. His bedside manner is great. I am on pain medication as I stated along with being on neurontin and tramadol. I am in severe pain and my breasts are overly tender. I have to wear a nightime bra to bed for the past two weeks. My breasts are so painful that even during a shower the water pressure hurts them. Is this related to my MRI results? I just would like to know what to do to aleviate my pain. I am trying evening primrose and black kohash. I am open to any suggestions. I thank you for taking the time to read this and an open to any suggestions.Thanks so much
Light & blessings to all
Earth Angel

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  • Hello I am a 50 year old woman that was diagnoised with UC at the age of 20. In April of 2000 I had a total colectomy (removal of large intestine). I developed a fistula (tear between the rectum & the vagina). The surgeon had to go in through my incision less than 4 weeks after my initial surgery to repair the tear. My recovery was long and without incident. I had multiple problems from floating staples that adhered to my intestine and other organs. They became infected. The surgeon removed some rectally and then had to once again operate on me to remove the rest of them that could not be reached through the rectum. I was scheduled for the reversal of my iliostomy in January 2001, however, my gallbladder caused me excruciating pain. I learned it shut down completely and it was recommended I have it removed. I was waited till my scheduled surgery date to have the reversal done and have the cholecystectomy done (removal of gallbladder). I suffered for a long time with severe adhesions, which I had surgery may times to remove. Some laproscopic and some through my abdomen. I was hospitalized for severe dehydration and organ failure in 2005. My small intestine shut down, kidneys stopped fuctioning properly and I couldn't keep ice chips down. While I was in the hospital I was informed that I have Ulcerative Colostis (UC) again. My surgeon left atleast an inch too much of my large intestine that was diseased and unfortunately I had the disease again. I was devestated but knew I was a survivor. I tried to make light of the situtation. I was in the hosptial for 4 months until I was strong enough to walk and get back on my feet.I have other issues too, I am just trying to inform you of my past surgeries so you can have an idea of what I have been through. I have been on fentynl duragesic 125mcg since 2002 for severe abdominal pain. I had endrometosis severe, fibroids and multiple cysts. In January 2007, I had a hysterectomy done. I decided my abdominal pain was enough. I had large fibriods, long heavy bleeding peroids every two weeks, and a prolapsed uterus. I decided for my 50th birthday I would have my surgery and begin once again my recovery. I wanted my 50th year to be my new beginning for a healthier life. My surgery went well, I guess. I had major internal bleeding which formed "pockets of fluid" in my abdomen. I had to be patient till it disbursed through my body. I was feeling GREAT for a few months. It was May/June that my pain started again. I tried to ignore it however it started doubling me over again. I was devestated to learn now I have a few things going on. I am not an alarmist but I am drained now. I went to my gyno and he did an ultrasound on me. The ultrasound showed a large mass/cyst in the pelvic area. He immediately sent me for a MRI with & w/o contrast. My test results are as follows: there is a complex systic structure in the left pelvis measuring approximately 4.7 cm x 4.0 cm. which may represent a complex left ovarian cyst. In the cervix there are multiple cystic areas cinsistent with nabothian cysts. I was informed by my first gyno that she only removed my right ovary and the uterus but was unable to "find" the left ovary. I was surprised she couldn't find my left ovary b/c I have a history of cysts there along with masses in my tubes. The "impression" of my MRI is that a complex cyst is noted in the left pelvis suspicious for complex left adnexal ovarian cyst measuring 4.7cm by 4.0 cm. They suggest I have a followup pelvic sonogram in 6 weeks to evaluate stabiloty of this finding. My question is the following. Is is possible not to "find" an ovary while doing surgery? MY first doctor was very evasive with her answers to me, that is one reason I left her and went to the male gyno that she brought in to assist her. His bedside manner is great. I am on pain medication as I stated along with being on neurontin and tramadol. I am in severe pain and my breasts are overly tender. I have to wear a nightime bra to bed for the past two weeks. My breasts are so painful that even during a shower the water pressure hurts them. Is this related to my MRI results? I just would like to know what to do to aleviate my pain. I am trying evening primrose and black kohash. I am open to any suggestions. I thank you for taking the time to read this and an open to any suggestions.Thanks so muchLight & blessings to allEarth Angel Good lord I can't believe all you have gone through:eek:. Sounds like you have not had good results with surgery, and I would hate for you to have another one. But it may be needed to remove the ovary and cysts if they continue to grow. Please try to find an acupuncturist to help with your pain and get you back on track. Acupuncture works and can really make a difference! www.acufinder.com for one near you. Lastly research castor oil packs online - Edgar Cayce remedies. A Castor oil pack on your affected area would help with the pain and may help reduce the size of the cysts. Best wishesDOM
    acuann 3080 Replies
    • December 12, 2008
    • 04:54 AM
    • 0
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