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Misdiagnosed with fibromyalgia

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • March 3, 2008
  • 04:51 PM

:confused:In 1991 I was diagnosed with fibromyalgia. It was before this diagnosis was popular. It is a very common diagnosis in the northwest, particularly Oregon, where every 3rd person has this ailment. My brother has Reiters syndrome and my father had the same symptoms (deceased before my brother's diagnosis). He tested positive for the HLA-B27 gene. He told me he felt I had the same thing. I went to several doctors, including 3 rheumatologists. One rheumy's practice was geared to fibromyalgia. I believe this was a cash cow for him. All my bloodwork was negative except for the genetic test. The 3rd rheumy found evidence on my L-spine MRI of much inflammation and I had psoriasis. Thus the diagnosis of psoriatic arthritis. I was treated with Enbrel, which made a huge difference, am now on Humira. Have 5 compression fractures in my T-spine. New MRI shows no inflammation in my L-spine. Does this mean I do not have psoriatic arthritis (other symptoms I have not listed here), or does this mean the medication has been very helpful? BTW, I feel too many people are thrown into the fibromyalgia wastebasket because their doctors do not want to dig further for the cause of their pain.

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  • This article shall help you avoid the shills....:eek:http://www.quackwatch.com/01QuackeryRelatedTopics/lyme.html :confused:In 1991 I was diagnosed with fibromyalgia. It was before this diagnosis was popular. It is a very common diagnosis in the northwest, particularly Oregon, where every 3rd person has this ailment. My brother has Reiters syndrome and my father had the same symptoms (deceased before my brother's diagnosis). He tested positive for the HLA-B27 gene. He told me he felt I had the same thing. I went to several doctors, including 3 rheumatologists. One rheumy's practice was geared to fibromyalgia. I believe this was a cash cow for him. All my bloodwork was negative except for the genetic test. The 3rd rheumy found evidence on my L-spine MRI of much inflammation and I had psoriasis. Thus the diagnosis of psoriatic arthritis. I was treated with Enbrel, which made a huge difference, am now on Humira. Have 5 compression fractures in my T-spine. New MRI shows no inflammation in my L-spine. Does this mean I do not have psoriatic arthritis (other symptoms I have not listed here), or does this mean the medication has been very helpful? BTW, I feel too many people are thrown into the fibromyalgia wastebasket because their doctors do not want to dig further for the cause of their pain.
    TaylorDeelwithit 382 Replies Flag this Response
  • Thank you both for your kind reply. I was bitten by a tick on the neck while deer hunting in 1998 or 1999. However, my symptoms predated that experience by at least 8 or 9 years. I have never been tested for Lyme disease, however. Just had an MRI of the lumbar spine which was normal except for some degenerative disease (arthritis). A few years ago it was very positive for inflammation, indicative of psoriatic arthritis and/or ankylosing spondylitis. I have been injecting with TNF factor medications, Enbrel and Humira, and wonder if they have significantly improved the inflammation in the spine so that it would not show up on the new MRI.
    Anonymous 42789 Replies Flag this Response
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