Discussions By Condition: Medical Stories

mis-diagnosed hemangioblastoma

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • February 9, 2011
  • 04:43 AM

I don't get headaches - even when I should get them. That's why I was concerned when I started having them. I have a habit of trying to figure things out so I started paying attention to what I was doing before starting to feel the symptoms. My own findings were kind of unusual so I felt I should tell a doctor and get a proper diagnosis. It turned out that a headache could be brought on by sitting still and straight for a half hour or more, then getting up and walking a short distance. The odd part was that if I rolled my head around (like in stretching exercises) the headache would go away. And if I stayed on my feet and active, I would never get a headache.
I reported my findings to my doctor and was told: "Mr. _ _ _ _ , you're over 50 now. You have to start taking better care of yourself. I want you to go to nutritional counseling and I'm going to prescribe some cholesterol lowering medication. My numbers weren't that bad.
Well- that didn't work; So I went to "Urgent Care" (to make sure I saw a different doctor) and told him the story. I added that I had a family history of aneurysms (not true) and I was sent straight in for a MRI. The mass was well defined and obvious and I got a shunt installed within the hour. A day later the tumor was excised and the day after that I got a semi-permanent sub-dural shunt. I was told the tumor was cancer and the oncologists were circling like vultures for the business. 3 weeks later I was told the good news: The tumor was a hemangioblastoma, not cancer.

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.