Hello, I am seventeen years old and I was diagnosed with McCune Albright disease or syndrome as known to others when I was three years old. I have had this disease for fourteen years now. I have chronic bone pain due to lesions in my bones, migraines, and swelling of the hands and joints. The pain seems to be very close to that of arthritis. I am willing to talk to anyone about how this disease as affected me so far and what kind of treatments I have done and what has worked and what hasn’t. I want to communicate to others about the same exact thing. Recently the bone pain has gotten worse and I am looking for any treatments or medicines that have worked for others or even the ones that haven’t. I would greatly appreciate any replies even if the bone disease you are dealing with is not McCune Albright. Any advice can help, none can hurt.
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