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Malrotation in adult

Posted In: Medical Stories 4 Replies
  • Posted By: tummyissues
  • June 5, 2009
  • 00:50 AM

I recently found out by reading a report from a small bowel followthrough that I have a malrotation of the small bowel. My GI did not tell me of this finding so I had a follow up appointment with her last week at my request. I was hoping that she might be able to help by providing information but she completely disregarded my ongoing symptoms as being related to this malrotation finding. She stated that this was a non issue... like having ears lower than someone else...

I am a 45 year old woman that up till 2003 did not have any symptoms of gastrointestinal problems (that I remember). At that point I started having episodes of stomach pain, churning, intense discomfort, diareha, and on more that one occassion also included vomiting. Most of these symptoms were intermittant (here today and gone tomorrow or here today and gone in a few days..)
What I need to know is 1) do you know of any surgeons in Canada who have experience with this diagnosis? 2) does this sound like an intermittant blockage?
My GI specialist has basically ruled out my syptoms as being from IBS (even though to truly have IBS, malrotation or other anomolies must be ruled out), I am afraid that this will not be treated due to the rarity of presentation in adults and lack of knowledge by my GI.
Can you suggest what course I can take because my GI says this is nothing to worry about even though I have found so many articles that says otherwise?
I really appreciate any information you can provide.
Thank you very much, Sheila
I recently found out by reading a report from a small bowel followthrough that I have a malrotation of the small bowel. My GI did not tell me of this finding so I had a follow up appointment with her last week at my request. I was hoping that she might be able to help by providing information but she completely disregarded my ongoing symptoms as being related to this malrotation finding. She stated that this was a non issue... like having ears lower than someone else...

I am a 45 year old woman that up till 2003 did not have any symptoms of gastrointestinal problems (that I remember). At that point I started having episodes of stomach pain, churning, intense discomfort, diareha, and on more that one occassion also included vomiting. Most of these symptoms were intermittant (here today and gone tomorrow or here today and gone in a few days..)
What I need to know is 1) do you know of any surgeons in Canada who have experience with this diagnosis? 2) does this sound like an intermittant blockage?
My GI specialist has basically ruled out my syptoms as being from IBS (even though to truly have IBS, malrotation or other anomolies must be ruled out), I am afraid that this will not be treated due to the rarity of presentation in adults and lack of knowledge by my GI.
Can you suggest what course I can take because my GI says this is nothing to worry about even though I have found so many articles that says otherwise?
I really appreciate any information you can provide.
Thank you very much, Sheila
I recently found out after a small bowel follow-through that I have a malrotation of the small bowel. My GI does not think that my symptoms are due to this finding however (even though these symptoms are the same that I originally was referred to her for).

I was hoping that this forum might be able to help by providing information/clarification.
I am a 45 year old woman that up until 2003 did not have any symptoms of gastrointestinal problems. At that point I started having episodes of stomach pain, churning, intense discomfort, diarrhea, bloating, and on more that one occasion also included vomiting. These symptoms can now be explained by the malrotation (I feel).
What I need to know is
1) does this sound like an intermittent blockage?
2) in your opinion is someone with a malrotation of the small bowel at risk of blockage/volvulus no matter what age?
3) If my GI specialist has no idea that these symptoms can be caused by malrotation, what specialty physician should I approach next?
I am afraid that due to the rarity of the diagnosis within the adult population this will not be looked into further and because my GI is convinced that my symptoms can not possibly be caused by this finding.
Can you suggest what course of action I should take now since I feel this can cause me serious harm if not looked into?

I really appreciate any information you can provide.
Thank you very much, Sheila

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4 Replies:

  • I was 32 when they found I had this. I went for surgery the end of May. I was vomitting and had severe stomach pain for over 3 months when the doctor finally found this problem. The bowel was pressing on my stomach and my gallbladder pressing bile into my stomach making me more sick. The doctors tryied numerous meds and finally decided to operate. the doctor who did my proceedure told me that he called other speciallist and had not known of anyone my age to undergo the surgery so I guess I am a guinea pig for all intensive purposes. At first I thought the surgery helped. But now all the symptoms have come back and the stomach pain is far worse it feels like my bowel is trying to twist itself back the way it was. my surgeon and gastro. dr don't know what to do at this point and are just running more test. If you can avoid surgery do so. it has not done me any benefits and only helped for a short time. I feel there must be something else going on besides this condition. I have lost already over 45 lbs and continue to lose weight no matter how much I eat. I have days the foods agree and other days the same foods don't. I hope this helps you out. I wish the was posted before my surgery!
    Anonymous 42789 Replies Flag this Response
  • I have been living with these same symptoms for the past 3 years! It is so frustrating to know what the problem is and have no physician willing to fix it or help. Basically I've seen numerous GI specialist, surgeons, you name it and all of them say they have never treated an adult with this condition. I have spent countless hours researching this disorder and there are so many countries out there who actually have treatment plans to fix adult malrotation, the majority of which is the Ladd Procedure. That's the same procedure they do in infants and children. For my case, I have been hospitalized on five seperate instances for small bowel obstructions which eventually resolved on their own but this is like playing with fire, each obstruction seems to get worse and take longer to resolve. I am still on my search to find a doctor that is even willing to review my case. Has anyone out there had any luck with adult intestinal malrotation?? Please help?
    Anonymous 42789 Replies
    • January 11, 2011
    • 08:59 PM
    • 0
    Flag this Response
  • I recently found out by reading a report from a small bowel followthrough that I have a malrotation of the small bowel. My GI did not tell me of this finding so I had a follow up appointment with her last week at my request. I was hoping that she might be able to help by providing information but she completely disregarded my ongoing symptoms as being related to this malrotation finding. She stated that this was a non issue... like having ears lower than someone else... I am a 45 year old woman that up till 2003 did not have any symptoms of gastrointestinal problems (that I remember). At that point I started having episodes of stomach pain, churning, intense discomfort, diareha, and on more that one occassion also included vomiting. Most of these symptoms were intermittant (here today and gone tomorrow or here today and gone in a few days..)What I need to know is 1) do you know of any surgeons in Canada who have experience with this diagnosis? 2) does this sound like an intermittant blockage?My GI specialist has basically ruled out my syptoms as being from IBS (even though to truly have IBS, malrotation or other anomolies must be ruled out), I am afraid that this will not be treated due to the rarity of presentation in adults and lack of knowledge by my GI.Can you suggest what course I can take because my GI says this is nothing to worry about even though I have found so many articles that says otherwise?I really appreciate any information you can provide.Thank you very much, Sheila I recently found out by reading a report from a small bowel followthrough that I have a malrotation of the small bowel. My GI did not tell me of this finding so I had a follow up appointment with her last week at my request. I was hoping that she might be able to help by providing information but she completely disregarded my ongoing symptoms as being related to this malrotation finding. She stated that this was a non issue... like having ears lower than someone else... I am a 45 year old woman that up till 2003 did not have any symptoms of gastrointestinal problems (that I remember). At that point I started having episodes of stomach pain, churning, intense discomfort, diareha, and on more that one occassion also included vomiting. Most of these symptoms were intermittant (here today and gone tomorrow or here today and gone in a few days..)What I need to know is 1) do you know of any surgeons in Canada who have experience with this diagnosis? 2) does this sound like an intermittant blockage?My GI specialist has basically ruled out my syptoms as being from IBS (even though to truly have IBS, malrotation or other anomolies must be ruled out), I am afraid that this will not be treated due to the rarity of presentation in adults and lack of knowledge by my GI.Can you suggest what course I can take because my GI says this is nothing to worry about even though I have found so many articles that says otherwise?I really appreciate any information you can provide.Thank you very much, Sheila I recently found out after a small bowel follow-through that I have a malrotation of the small bowel. My GI does not think that my symptoms are due to this finding however (even though these symptoms are the same that I originally was referred to her for). I was hoping that this forum might be able to help by providing information/clarification.I am a 45 year old woman that up until 2003 did not have any symptoms of gastrointestinal problems. At that point I started having episodes of stomach pain, churning, intense discomfort, diarrhea, bloating, and on more that one occasion also included vomiting. These symptoms can now be explained by the malrotation (I feel).What I need to know is 1) does this sound like an intermittent blockage?2) in your opinion is someone with a malrotation of the small bowel at risk of blockage/volvulus no matter what age? 3) If my GI specialist has no idea that these symptoms can be caused by malrotation, what specialty physician should I approach next? I am afraid that due to the rarity of the diagnosis within the adult population this will not be looked into further and because my GI is convinced that my symptoms can not possibly be caused by this finding. Can you suggest what course of action I should take now since I feel this can cause me serious harm if not looked into? I really appreciate any information you can provide.Thank you very much, Sheila I also just heard I had malrotaion of the small bowel last year in 2010, and have yet to call and schedule surgery. Im 34 yrs old, and have had long bouts of nausea and vomiting for no reason, but never knew I was different than anyone else. Not sure where you are from, but UNC Chapel Hill, in N.C. will do it. They probably have done this surgery mostly on young children but, have assured me they do this all the time there! They as well as all my regular Dr.'s have just told me I need to go have the surgery. I have heard tho that you can end up with volvulus with or without surgery, so either way it seems Im going to be at risk! Gastroenterologists there said they do this surgery all the time. Which Im quiet shocked by because my own personal doctor had to look up info for me on this, when she told me my results, as she knew nothing of this either! Very scary feeling alone!
    calicoecchymosis 1 Replies Flag this Response
  • I had the Ladd Procedure when I was three days old at Boston Children's Hospital almost 50 years to the day. I was diagnosed with malrotation and the surgery saved my life. Fast forward forty years and one day I found myself in excruciating pain. I began to have intermittent and then more regular severe intestinal cramping, pain, fever and vomiting. I was finally hospitalized when I couldn't get up off the floor because of the pain. After many tests, I was diagnosed with Bowel Obstruction, in part a result of the initial malrotation but also the scar tissue that formed from the Ladd Procedure surgery. All I can tell you here is from my own experience: but if you having the above symptoms of severe serious pain, fever, vomiting and diarehhea, then it sounds just like my bowel obstruction. (It is not food poisoning as I thought it for so many years.) I can also tell you that a past radiologist from my days during the nasty bowel obstruction in the hospital, and now two recent GI doctors (who performed my colonoscopies) told me they have one patient every five years with a history of malrotation. Looking on the net, there is plenty of info about adult malrotation. I would tell you to seek out a doctor that has heard of the Ladd Prodedure and has experience in bowel obstruction and adult malrotation. Otherwise, you are just spinning your wheels and getting worse.FYI : I find keeping hydrated, eating enough fruits, and using psylliym husks to keep my bowel functioning. I have had a few potential obstructions in the past several years, but know the signs and by consuming water and the psyllium I have been able to avert full blown attacks.A post script to this is two recent colonoscopies revealed a polyp in my colon, yet neither were able to reach far enough inside to remove it. Onto to Plan B which is most likely surgery down the road. As they say, the body can survive without many fully functioning organs, but the intestines are not one of them. Hope all of this helps.
    Anonymous 42789 Replies
    • August 22, 2011
    • 09:46 PM
    • 0
    Flag this Response
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