I have Madelung's Bone Defority,and am wondering if anyone else out there has this. I know this is quite rare. I have bilateral type. I have been to so many DR's but they all say the same thing, there's nothing we can do. The first ten didn't even know what it was. They say I am to old for any kind of surgery but, I find that hard to believe.The pain I am in is unbearable. My hands,from fingers all the way up to my shouders hurt every minute of the day. I wear arm braces but they do not help. Even if I take a pain pill it helps my back some but it never even stops any pain in my arms.Now the pain has gotten into my feet and ankles. Has anyone had any kind of luck getting any help. This disease you are born with but I started hurting eight years ago on a constant basis. Thanks!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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