Discussions By Condition: Medical Stories

Living with chronic illness(es)

Posted In: Medical Stories 4 Replies
  • Posted By: Barbara Allen
  • September 8, 2008
  • 11:03 PM

I am a 56 yr old woman, retired 14 yrs on disability. I was born sick, as my mother breastfed my sister throughout her pregnancy and was anemic. I was hospitalized many times from birth til age 3. Fairly average childhood illnesses after that, though I could never run, or had much stamina. Very small, with an underdeveloped chest (concave). Being treated for or diagnosed with: lupus overlapped with fibromyalgia and multi-connective tissue disease; asthma/emphysema/copd; obstructive sleep apnea; anxiety; obesity. Have been told I am or have been: anemic; borderline hypothyroid; borderline hypertension and high cholesterol; heart murmur; GERD, resolved by surgery; diverticulitis, resolved by surgery; renal colic; cervical spine pain; tmj syndrome; chronic fatigue.......and so much more. Is this too much for one person? 4 doctors all have one goal, maintenance. None give hope of any restorability. Any input so appreciated.

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  • So sorry that you must deal with so many ailments. Have you seen the blog on B12? ("Vitamin B12 is often misdiagnosed")---look at the new posts and you will usually see it listed as people are always posting on that. You may have a hidden B12 deficiency.Also, with the autoimmune conditions, you may have a food allergy to look at, something common such as milk or wheat. You will have to observe your own symptoms and timeline to figure this out.Are you being treated for hypothyroid? Hopefully, yes. Have faith; it helps to talk about how you feel. It seems that you may hold some resentment for both your mother and your sister, feeling that they are responsible for your ill health since your intrauterine life. You might consider talking to someone about this; it is a valid anger, but is only hurting you. Good luck. Marionstar
    marionstar 228 Replies
    • September 9, 2008
    • 02:21 AM
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  • So sorry that you must deal with so many ailments. Have you seen the blog on B12? ("Vitamin B12 is often misdiagnosed")---look at the new posts and you will usually see it listed as people are always posting on that. You may have a hidden B12 deficiency. Also, with the autoimmune conditions, you may have a food allergy to look at, something common such as milk or wheat. You will have to observe your own symptoms and timeline to figure this out. Are you being treated for hypothyroid? Hopefully, yes. Have faith; it helps to talk about how you feel. It seems that you may hold some resentment for both your mother and your sister, feeling that they are responsible for your ill health since your intrauterine life. You might consider talking to someone about this; it is a valid anger, but is only hurting you. Good luck. Marionstar Thank you so very much for your interest in my case! After scanning through about an hour of the B12 posts, I see that it is acceptable to post more information. I was trying to give background and keep it short. Ha!! Kinda hard to keep years' long chronic illnesses short. I did not know until my mid thirties of my early medical history, and that was my first diagnosis of asthma too. I thought my early history might give some insight as to effect of untreated asthma and possible birth defect? I did have other issues with my mother, worked on in therapy twice, and mostly resolved. I do not have time to make it a priority (dwell). Interestingly enough, my mother is just recovering from B12 deficiency, after early dementia signs, and has gotten her diabetes under control since she can think clearly again. From 100 mg insuling to 10 a day, and lost 30 pounds too. I should have focused more on mid thirties to now. I'm going to ask my doctor to check the B12. We have the same dr, so I know he'll do it.I'm just trying to tie all of these symptoms together instead of so many different diagnoses. I would very much like to try a holistic approach and get my life back. No treatment for hypothyroid. All say borderline so no treatment. And I read somewhere in the posts about the proton pump inhibitors. I have been on prilosec for 12 years. GI guy says I should never go off these due to gerd. Had surgery to create missing muscle pressure at lower esophageal sphincter, thought to be due to faulty neutotransmitters. Severe nausea without the prilosec. Faulty LES could have been life long, as it was causing bronchitis and pneumonia.Too much more to mention. Any insight on holistic healing? I am so tired of being so sick. I don't want to accomodate these symptoms. I want my life back! Thanks, Barbara Allen
    Barbara Allen 1 Replies
    • September 9, 2008
    • 08:50 AM
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  • Dear Barbara Allen, thanks for writing back. When you read the B12 posts, you will learn (do this after getting your levels checked) that sometimes you need it even if your levels are read as "normal." Be sure and check out the recommended replacements...there are two kinds of recommended B12, both of which you can get from iherb in a sublingual form. Also, some people do better with more and some with less. If your mother is deficient in B12, you probably are too.And that can help the hypothyroid and the GERD. Why don't you put a post on the B12 blog, mentioning these problems? Kevinmillhill will explain it.Maybe you will be able to get off the prilosec at some time, too.About holistic approaches; I certainly believe in them. But I don't know where to start for you. Many years ago I followed a macrobiotic diet; it helped, but now I seem to need high protein diet. The most important caveat is to exercise; if you are able that will help. Unfortunately, I am not.Food sources are important...try to eat high quality foods, organic if possible. And again, consider your allergies...if you have antibiotic allergies, remember that milk and meats usually have traces of antibiotics, unless they are organic. Avoid caffeine and carbonated beverages. Green tea is good. As for foods (allergies); try to focus on what you eat regularly; then stop eating one item for a week and see if it makes any difference in how you feel. With asthma, you certainly have allergies.Well...take care. Let us know how you are doing. Marionstar
    marionstar 228 Replies
    • September 10, 2008
    • 02:07 AM
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  • PS to you, Barbara Allen...there is also a post on mycoplasma as the cause of chronic fatigue symdrome. You might be able to find it; or look on the web...look for: Institute for Molecular Medicine, Garth Nicholson, PhD. There is a lot of information; don't get bogged down.There are a lot of claims for illness caused by mycoplasma; the blogger on this site that writes about it is mommy cat.Anyway, there is a laboratory in MD, Clongen, which tests for mycoplasma. The director there has had about 15% positive of the Gulf War veterans that he tested. It is something to check out if you think it could be a problem for you. Again, good luck. Marionstar
    marionstar 228 Replies
    • September 10, 2008
    • 02:15 AM
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