Discussions By Condition: Medical Stories

living with a cronic pain on the right side of my head. no idea what it is it

Posted In: Medical Stories 50 Replies
  • Posted By: Anonymous
  • October 21, 2006
  • 09:05 AM

I am 21 years old and i have been living with this condition for 2 years now. it happen when i was under the influence of meth (the doctors said that meth didn't cause it but certainly did not help and also just to let you know this event scared me from ever doing it again.). i was extremly emotional state at the moment and i was thinking about painful memories from my past. i was also drwelling on how i was going though a tough break up at the time and i was also a young and fustrated business owner whose business was not functioning like i envisioned ( hey its not easy). then without warning i felt an extreme pain on the right side of my head, above my ear about maybe 2 inches.the best way to describe this pain is that it felt like an explosion inside my head. i droped to the floor immedietly and grabed my head and started to cry.
when it first came on half my face felt funny, it didn't feel numb(i could still feel) and it didn't feel paralyzed( i could still move all the muscles) but it felt differant. i still to this day feel this. another thing that i remember is how the right side of my brain felt bigger, as if swollen, than the other side (this has gone away though and i don't notice it any more). it was extremely hard to maintain a train of thought. in fact i remember an instance where i was in so much pain that all i could do was stare at a wall and try to focus on a small dot that was on the wall. another thing is my ear and my eye on the right side were in pain or didn't feel normal. also on the right side of the head it feels extremely conjested. i went to the doctor the next day and he begain treating me for migrains and said that and gave me anti depressants, pain killers, and medician to treat migrain condition. however none of these had any effect. the only thing that i have noticed to have any effect is ice packs and sleep. i have not found a single medication that had any positive effect. within the next few months i had a CAT scan which came back negative for any abnormalitys. i had blood work to check for any syndoms and red flags. my blood pressure is though all this has been always good. i also had my sinus X-rayed. right now i am currently going to a nerologist however he is treating this like a migrain and i have little faith in any results from his treatment.

i am at the end of my wits with this. i feel like i am going crazy and on my way to going into madness. i am still able to work and i am in college still full time. however i cant do it like i use to and everything has become a struggle to me. i am in pain and feel sick nearly every minute of every day. sometimes it is not so bad and is manageable. other times it is so bad it is almost like i am temperary disabled. my grades have droped to B's and C's. they use to be A. i have a great job but it is so hard getting through the day to day grind. i feel like i am almost sub human now. i am now subconciously scared of social situations and i have notice my self becoming more and more alienated from others and tend to be anti-social. i havn't been in a serious relationship since the incident. every woman i have been with since then has been a short relationship where i have been unable to open up( because i know they won t understand and probably don't want to be with someone with my health problems) and i have been finding ways out the relationship.
i feel like i am half the man i use to be. i no longer dream about doing acheiving extravigant goals anymore, i now dream about one day being normal. i am a proud man and always have been. it hurts me very badly when i hear people who use to say that "zack you are so smart", start saying that "zack you use to be so smart". i use to have so many people who believed in me and have told me in a very serious manor that i was going to do something great someday. they don't talk like that any more.
if someone could give me another possible answer to my problem. i am so desperate for an answer. i've looked on the internet for hours and i can't find any thing that is concrete and not vauge or irrelavent. ive see so many doctors all they have gave me is false hope. i want to move on with my life. even though this situation is very bleek i refuse to give up. i don't want to be or be treated like a cripple.

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  • Hi Zack:Hang in there man - you sound like you are going through ***l. Do you have parents? Do you have anybody that is trying to help you? I suffer from chronic headaches also, but I am starting to give up on ever finding out why.It sounds so lame to people to say - I have terrible headache!!!! And to them its just a head ache - but ive had it so long I don’t know what it feels like to NOT HAVE A HEADACHE. Your story touched me and I don’t know you - but really, I feel your pain. It brought tears to my eyes to hear someone else struggle - and it sounds like you struggle even more with the pain. I live in California but am in UK on biz right now so it’s hard to write more – I have to get some sleep before a meeting – but you know….. I have a ***n headache. Zack - Please don’t give up on yourself. I'll help you find and answer while I look for my own. It would make me feel less hopeless. Peace and hope. Elizabeth
    Anonymous 42789 Replies
    • October 23, 2006
    • 00:26 AM
    • 0
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  • http://brain.oxfordjournals.org/cgi/content/abstract/129/2/543http://www.mamasite.net/index.php?main_page=faqs_mama15http://www.wunderland.com/WTS/Andy/Politics/JKinterview.html ---------Methamphetamine causes increased heart rate and blood pressure and can cause irreversible damage to blood vessels in the brain, producing strokes. Other effects of methamphetamine include respiratory problems, irregular heartbeat, and extreme anorexia. Its use can result in cardiovascular collapse and death.-------Zack – could it have been some kind of stroke?
    BetterDays 2 Replies
    • October 23, 2006
    • 00:59 AM
    • 0
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  • Hi Zack,I feel your pain. I am going through the same thing. I have this sharp pain on the right side of my head, right above my ears. It comes and goes, but lately it has been a constant pain and it has not gone away. I have taken headache medicine, sinus medicine, anything, but nothing seems to help. I have mentioned this to my doctor once before when it wasn't this bad, but she just said take advil. Now the pain is unbareable. I am going to the doctor next week so hopefully I will find out some answers out. Keep demanding a cat scan or an MRI. Good luck to you and get to feeling better.I am 21 years old and i have been living with this condition for 2 years now. it happen when i was under the influence of meth (the doctors said that meth didn't cause it but certainly did not help and also just to let you know this event scared me from ever doing it again.). i was extremly emotional state at the moment and i was thinking about painful memories from my past. i was also drwelling on how i was going though a tough break up at the time and i was also a young and fustrated business owner whose business was not functioning like i envisioned ( hey its not easy). then without warning i felt an extreme pain on the right side of my head, above my ear about maybe 2 inches.the best way to describe this pain is that it felt like an explosion inside my head. i droped to the floor immedietly and grabed my head and started to cry. when it first came on half my face felt funny, it didn't feel numb(i could still feel) and it didn't feel paralyzed( i could still move all the muscles) but it felt differant. i still to this day feel this. another thing that i remember is how the right side of my brain felt bigger, as if swollen, than the other side (this has gone away though and i don't notice it any more). it was extremely hard to maintain a train of thought. in fact i remember an instance where i was in so much pain that all i could do was stare at a wall and try to focus on a small dot that was on the wall. another thing is my ear and my eye on the right side were in pain or didn't feel normal. also on the right side of the head it feels extremely conjested. i went to the doctor the next day and he begain treating me for migrains and said that and gave me anti depressants, pain killers, and medician to treat migrain condition. however none of these had any effect. the only thing that i have noticed to have any effect is ice packs and sleep. i have not found a single medication that had any positive effect. within the next few months i had a CAT scan which came back negative for any abnormalitys. i had blood work to check for any syndoms and red flags. my blood pressure is though all this has been always good. i also had my sinus X-rayed. right now i am currently going to a nerologist however he is treating this like a migrain and i have little faith in any results from his treatment. i am at the end of my wits with this. i feel like i am going crazy and on my way to going into madness. i am still able to work and i am in college still full time. however i cant do it like i use to and everything has become a struggle to me. i am in pain and feel sick nearly every minute of every day. sometimes it is not so bad and is manageable. other times it is so bad it is almost like i am temperary disabled. my grades have droped to B's and C's. they use to be A. i have a great job but it is so hard getting through the day to day grind. i feel like i am almost sub human now. i am now subconciously scared of social situations and i have notice my self becoming more and more alienated from others and tend to be anti-social. i havn't been in a serious relationship since the incident. every woman i have been with since then has been a short relationship where i have been unable to open up( because i know they won t understand and probably don't want to be with someone with my health problems) and i have been finding ways out the relationship. i feel like i am half the man i use to be. i no longer dream about doing acheiving extravigant goals anymore, i now dream about one day being normal. i am a proud man and always have been. it hurts me very badly when i hear people who use to say that "zack you are so smart", start saying that "zack you use to be so smart". i use to have so many people who believed in me and have told me in a very serious manor that i was going to do something great someday. they don't talk like that any more. if someone could give me another possible answer to my problem. i am so desperate for an answer. i've looked on the internet for hours and i can't find any thing that is concrete and not vauge or irrelavent. ive see so many doctors all they have gave me is false hope. i want to move on with my life. even though this situation is very bleek i refuse to give up. i don't want to be or be treated like a cripple.
    Anonymous 42789 Replies
    • November 3, 2006
    • 03:11 PM
    • 0
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  • no it was as far as a know it was not a stoke or anurism because the doctor said that it would have shown up on a CAT scan. also they said that i have no damage to blood vessles either. i don t know. i am at such a loss.
    Anonymous 42789 Replies
    • November 5, 2006
    • 07:40 PM
    • 0
    Flag this Response
  • thank you Elizabeth for you post it really touched me. i live in california i do have my father and he has been as understanding as i could hope for. i try not to show theses feeling of pain or thoughs of death to my family. i don't want to burden them. also i know they won't be able to understand. i have been having bad headaches latly. in fact i just broke my hand and my only concern is really the headache. my doctor couldn't believe it. my havd is the size of a grapefriut. the hand sucks but i know it will heal. i just wish that i could be so optsmistic towards the headache. if you Elizabeth could share any of you experience or things that help i would be so grateful. thsnk you so much for your response and god bless you.
    Anonymous 42789 Replies
    • November 5, 2006
    • 07:54 PM
    • 0
    Flag this Response
  • Have you ever gone to a chiropractor? I used to have BAD headaches, horrible ear and jaw aches all because of my spine problem. My chiropractor did help me. I have to go to him once in a while because otherwise my condition worsens, but it's nowhere like it's been before. Maybe you could look around or ask around for someone competent?Good luck, hope this helpsTaya
    Anonymous 42789 Replies
    • November 6, 2006
    • 03:09 AM
    • 0
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  • thanks i will check that out about the cirroprator. i got a stift back aways from work. that is one option that i havnt tried.i would write more but i have a broken hand.
    Anonymous 42789 Replies
    • November 6, 2006
    • 06:56 PM
    • 0
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  • does anyone know if a previous stoke or brain hemerage or anurism will show up on a CAT scan 2 months after the incident.
    Anonymous 42789 Replies
    • November 13, 2006
    • 05:55 AM
    • 0
    Flag this Response
  • HI Zack! Taya had a good suggestion - and it made me think – are you perhaps grinding your teeth at night - or also while you are awake? I had a very dear friend in my 20's who had such teeth grinding problem from stress they had to rebuild her teeth. She had migraines something terrible – and after they got her a small rubber thing that went between her back teeth at night – she stopped grinding and getting the headaches. Anyway – enough medical advice – you need a HUG – poor baby. :p Are you in still in school? Where in Calif do you live? You can email me at elizabeth at webincomepros dot com Hang in there - you are in my thoughts.
    BetterDays 2 Replies
    • November 14, 2006
    • 00:11 AM
    • 0
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  • It might be a good idea to be checked for Cryptococcus, a fungi that can cause chronic headaches that progress to stiff necks and mengitis.But I think you have had it for a bit too long so dont worry.Hope you get beter soon.
    chrismia 159 Replies
    • November 14, 2006
    • 00:47 PM
    • 0
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  • Dear Zack, Your story has really touched me. As a long time migraine sufferer and recovering addict I truly feel your pain in more ways then one. I experienced my firsr occular migraine when I was 11 yo. That is where you go blind first then the pain comes. At least with the blindness it gives me time to get to spot where I can be proactive about the pain. First, let me share with you a couple of facts about migraine pain. It is more than just a normal headache!! it is debilitating and crippling at times. And to add to that, men experience cluster migraines. If I could add some ray of hope to you it is this, they do get better with age. As your hormone levels fluctuate with stress or activity and age the serentonin levels as well as adrenalin beleived to play a part in the onset of an episode can change. Also for me some relief has been found with a chiropractor. That is good advice. As you have chronic pain in your head you will notice your shoulders are more tense and your head will jut forward causing your neck to be strained. Try also putting icepacks on your head, this shrinks inflamed blood vessels in the brain, it eases the real intense part of migraine pain. And lastly forget about going to a regular doc and get yourself to the Headache Center of America. There are several in Ca. That is where I am from and that is where I go when I have an attack that needs attention. They understand the pain of migrain that regular docs do not. I wish you well and hope that this helps because I hate it when people used to tell me " I know I hate headaches too!" God Bless!:)
    kitkat2 17 Replies
    • November 14, 2006
    • 05:07 PM
    • 0
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  • Hi Zac,What you describe is exactly what i have been going through since a high speed m.v.a roll over.It's been 3 years now and not a day has gone by without experiencing pain all through right side of my body.What i have and am still going through would take me pages to write,but if you want to know you can contact me at this temp email address.paineveryday@hotmail.com johno
    Anonymous 42789 Replies
    • November 17, 2006
    • 07:54 AM
    • 0
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  • I found out what was causing my head aches. I was walking in my sleep and was going to my fridge and bumped my head on the door when I closed it and I removed the door. NO MORE HEADACHES
    Anonymous 42789 Replies
    • November 19, 2006
    • 10:43 PM
    • 0
    Flag this Response
  • Hi, I know exactly what you are going through I suffer from a constant headache 24/7 and I have also been diagnosed with three kinds of migraines. I have taken medication for several years now that has changed every 3 to 6 months because nothing helps. I would like to think that one day someone will find out what is causing these headache/migraines but to this day nothing seems to have shown up on numerous brain scans and MRIs. I wish I knew what to tell you what would help because I can definitely say I KNOW just how you feel. My neurologist has even given up trying to find out what it the underlying cause and I feel like I am going to stark raving mad with the never-ending pain. I hope that if you do go to a chiropractor that it will help you, it only made mine worse. I will be praying for you and completely sympathize. If I find anything that helps I'll let you know.
    Anonymous 42789 Replies
    • November 21, 2006
    • 06:57 AM
    • 0
    Flag this Response
  • TMJ---look that up. dealing with same pain. im gonna go the route that keeps my teeth from grinding. cause i woke up with this. and still kills. hope this helps. cheers
    Anonymous 42789 Replies
    • November 22, 2006
    • 09:31 PM
    • 0
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  • Dear ZackI want you to know that I know the pain you are going through. I too have been suffereing for two years with extreme pain in my head. I had a break down and something literally snapped in my head. Every day I face the pain, it's like there is an ax in the top of my head and the pain radiates into my eye and face area. I've been to chiropractors, biofeedback, been to three neurologists, spent 16 days at Thomas Jefferson Hospital. As with you they were treating me for migranes. It's not a migrane - I know that it's nerve pain. I am not able to work because the pain is so bad. Even though I am a christian I did try to take my life because I couldn't endure the pain anymore. Plus I became seriously depressed because of dealing with the pain every day. My heart goes out to you. I understand and I wish I had an answer for you. As with you, all my test results have come out normal. I just want help. I want to live my normal life too. I understand what your saying, it's like it's hard enough to get thru the day much less fulfill your dreams.I feel like my friends disappeared when I got sick. I thank God for my family.I know this isn't helping you, but if I was there I would hug you, hold you and just tell you that I understand and I care what your going thru. Nobody should have to suffer this way. It's so cruel. I keep holding on to the love of *****t that is like no other, even though I can't feel His love, I know he does love me and cares.I've been on a medication call Lyrica it is a nerve medicine and it does take the edge off. I don't pace the floor in my room screaming and crying anymore, but, it's still no wheres near enough relief. Hang in there Zack, I'll keep you in my prayers.
    Anonymous 42789 Replies
    • November 29, 2006
    • 11:27 PM
    • 0
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  • Hi ZackGet an MRI. Catscans are not as fine, demand a MRI. This does sound as though you had a minor stroke and the MRI will definitely confirm this but the catscan won’t necessarily, unless it is a major bleed which you don’t have.If a MRI shows nothing go and see an osteopath for a good message to your neck and back to loosen you up and prepare you for any necessary back and neck manipulation. You probably need a session with an osteo anyway with all the tension you have.Myofascial release is also fantastic for headaches if it has to do with knotted up muscles and energy disturbances; which drugs can definitely cause.Acupuncture is also another good option.And try to remain as optimistic as possible, I know it is difficult, but you will find the help or the reason and then work on it.All the best to you and to Sweet Elizabeth (the best way to find answers is to band together).Agape,searchingsam
    Anonymous 42789 Replies
    • November 30, 2006
    • 02:18 AM
    • 0
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  • i am almost completly sure that it is not a TMJ or teath grinding problem. i do not grind my teach or have jaw pain. thank you so much for you support elizabeth. i hope your condition gets better as well. i am seeing a nerologist but he is the only nerologist in my town of hanforf and i see him anout every other month. thank you and god bless.
    Anonymous 42789 Replies
    • November 30, 2006
    • 07:42 AM
    • 0
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  • thank you searchinsam for your post. i am trying hard to stay optamistic. it is very hard. there are somedays that i want to just give up on life. but then i remember that i have to be strong for my brother and sisters sake. that is why i hold on.
    Anonymous 42789 Replies
    • November 30, 2006
    • 07:49 AM
    • 0
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  • thank you kitkat 2 for your post. that is a great idea about going to the headache center. do you know if there is any around the fresno area of hanford?
    Anonymous 42789 Replies
    • November 30, 2006
    • 07:54 AM
    • 0
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