Discussions By Condition: Medical Stories

Little Girl in Pain

Posted In: Medical Stories 0 Replies
  • Posted By: sophiaXIV
  • June 27, 2009
  • 05:43 AM

I wish there could be a nicer title, but that's my story. It started when I was four. I would be in so much pain I cried and begged my mother (who was sick herself with lupus)for my "life pills"- pharmacy brand Tylenol. It was diagnosed as growing pains. Finally we got a dr to do an x-ray. My GP had no idea what to make of it. I travelled to the nearest big city- London, Ontario, to the southwestern ontario childrens hospital where I got a diagnosis- Severe Legg Calves Perthes disease. I spent the next year in a hoapital bed, in extreme pain despite being on pretty heavy painkillers. I've spent most of my childhood like this or in a wheelchair. Finally, after scans and operations and crutches, I was really good for awhile-11-12 was a pretty good year. Then I got much worse. I started high school at 12, but within a month I was using a cane, a walker and a wheelchair and on so much hydromorphone I had to stop going to school. I was supposed to have by hip replaced, but they discovered that the growth plates hadn't fused. They reaurfaced the joint, and all was good for a while. Then I started having severe pain again. This time it was nerve damage caused by fragments of dead bone. They gave me a longacting nerveblock and the pain is now bareble.(It'll hurt, but I have every intention of playing basketball next year!) Now I've been experiencing new symptoms, completely unrelatwd to my leg. I'm exhausted, lightheaded, I get nosebleeds, and I always feel like I'm just getting over the flu. The doctor thought I might have an infection, but the antibiotics didn't help. Oh well- I feel so awful I want to cry, but it's kinda the story of my life, eh?

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