Discussions By Condition: Medical Stories

LEGIONNAIRES/LEGIONELLA anyone else?

Posted In: Medical Stories 2 Replies
  • Posted By: nancij123
  • December 31, 2010
  • 08:54 AM

Hi there! I happened to see this site and am hoping someone out there has a similiar story as mine. Back in July, I started feeling a little tired and had no other real symptoms at first and pretty much ignored it because I had been running and trying to just keep up with everything I was doing at the time. However, after about two or three days of being tired, I started to feel a slight fever and a little back pain that didnt really seem to bother me much. I got worried after the 4th day and decided to see a doc in a box (local emergency room walk in clinic here) -- where area emergencies are usually treated. I was seen right away and told that I had a high fever and needed to have an x-ray of the chest, etc. The nurse took the x-ray to the doctor who then came to me and started asking if I had been out of the country, if I have any type of clots in the lungs and some other questions... She then explained to me that my lungs were full and didnt go into it further but assured me I was too sick to be seen there and needed to be taken to the county hospital here where I live via ambulance... I was taken to the hospital and arrived quickly, was seen by the triage nurse and then the attending E.R. physician and had a pulse ox taken that read around 40 or so and gave the doctor the computer disc with my x-ray for her review. The doctor didnt say much except that the computer was down and she couldnt view the xray right then as she handed it back to me... She came back a little while later, prescribed me a few meds and sent me home. I went home and slept off and on during the night but felt worse the next am and returned to the hospital with with my husband who didnt realize how much worst it would be before it was all over... I again seen the triage nurse who asked me about my previous visit and asked why I had returned before she took the pulse ox again which read around 30 or something to that degree (not sure of exact digits)... She looked at me and said that there was no way that the reading she was getting was correct as I wouldnt be sitting there alive with her and that the machine must be broken. I explained to her that I got a similiar reading the night before and she seemed baffled but went and got another machine that read the same number. She called an emergency code and before I knew it, I was being taken to another floor to have my lungs suctioned and being intubated for what they thought was ARDS... I was in a coma for 8 days before I was told I had been infected with legionnaires disease and that I was not expected to make a recovery whatsoever as the physicians and caregivers said it was touch and go for the first 4 DAYS PRIOR TO MAKING A DIAGNOSIS DUE TO THE TIME IT TAKES TO ISOLATE THE BACTERIA... Im not sure as to the facts of the above but as I am told only about half the people who become infected will live as this is something that usually affects the elderly and or very sick with low or weak immune systems... In any case, I woke up after the 8 days of intubation and coma and had no ideal of what I had just been through. I am wondering if anyone here has ever had this and what the long term effects were for you. I was told by a pulmonary spec. that there was good chance of lung damage that would be consistent with about 20%... As the months here on the Eastern part of the country become below freezing, I do feel the effects! I have never had anything like this and have been pretty healthy all my life and am not elderly at 43... I have no clue as to how I pick this virus up and am still not fully recovered and am wondering if ever I will feel normal. I have had to be on blood pressure meds since and blame the doctor that didnt even look at the lung xray before sending me home the first time I came in. Had she checked the xray, she would have seen the lungs full at 80% and knew then I shouldve been admitted right away the first night. I am very very lucky I lived through the first night I was sent home and even luckier that I lived through the next 8 days and following two weeks of being hospitalized. The doctors and nurses saved my life and I am forever thankful. It was devastating to my family who had flewn in from all over the US and my younger children who watched as my chest rose with artificial breathing tubes and what not attached. Would love to hear from anyone out there who has been through this and am wondering where I GOT IT... I will probably never know that answer but will always avoid any grocery store veggie mist stands as I can only think of that as to a possible place of contracting legionnaires (sp?). THANKS FOR READING this and hoping for some possible replies. NANCI

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  • Hallo Nanci, i reading now your story. Its very scared, what happend to you.But why i write. Almost one year have i low fever, muscles pain, im tired and unable to concentrate.Diagnosis is a pontiac fever. Its a kind of legionella. I eat too much antobiotics drug, what gave me my doctor. And?? Nothing.I feel still the same. And my doc dont know, what he will make with me.Its horrible.Vojta
    Anonymous 42789 Replies
    • January 2, 2011
    • 08:40 PM
    • 0
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  • Hi there! I happened to see this site and am hoping someone out there has a similiar story as mine. Back in July, I started feeling a little tired and had no other real symptoms at first and pretty much ignored it because I had been running and trying to just keep up with everything I was doing at the time. However, after about two or three days of being tired, I started to feel a slight fever and a little back pain that didnt really seem to bother me much. I got worried after the 4th day and decided to see a doc in a box (local emergency room walk in clinic here) -- where area emergencies are usually treated. I was seen right away and told that I had a high fever and needed to have an x-ray of the chest, etc. The nurse took the x-ray to the doctor who then came to me and started asking if I had been out of the country, if I have any type of clots in the lungs and some other questions... She then explained to me that my lungs were full and didnt go into it further but assured me I was too sick to be seen there and needed to be taken to the county hospital here where I live via ambulance... I was taken to the hospital and arrived quickly, was seen by the triage nurse and then the attending E.R. physician and had a pulse ox taken that read around 40 or so and gave the doctor the computer disc with my x-ray for her review. The doctor didnt say much except that the computer was down and she couldnt view the xray right then as she handed it back to me... She came back a little while later, prescribed me a few meds and sent me home. I went home and slept off and on during the night but felt worse the next am and returned to the hospital with with my husband who didnt realize how much worst it would be before it was all over... I again seen the triage nurse who asked me about my previous visit and asked why I had returned before she took the pulse ox again which read around 30 or something to that degree (not sure of exact digits)... She looked at me and said that there was no way that the reading she was getting was correct as I wouldnt be sitting there alive with her and that the machine must be broken. I explained to her that I got a similiar reading the night before and she seemed baffled but went and got another machine that read the same number. She called an emergency code and before I knew it, I was being taken to another floor to have my lungs suctioned and being intubated for what they thought was ARDS... I was in a coma for 8 days before I was told I had been infected with legionnaires disease and that I was not expected to make a recovery whatsoever as the physicians and caregivers said it was touch and go for the first 4 DAYS PRIOR TO MAKING A DIAGNOSIS DUE TO THE TIME IT TAKES TO ISOLATE THE BACTERIA... Im not sure as to the facts of the above but as I am told only about half the people who become infected will live as this is something that usually affects the elderly and or very sick with low or weak immune systems... In any case, I woke up after the 8 days of intubation and coma and had no ideal of what I had just been through. I am wondering if anyone here has ever had this and what the long term effects were for you. I was told by a pulmonary spec. that there was good chance of lung damage that would be consistent with about 20%... As the months here on the Eastern part of the country become below freezing, I do feel the effects! I have never had anything like this and have been pretty healthy all my life and am not elderly at 43... I have no clue as to how I pick this virus up and am still not fully recovered and am wondering if ever I will feel normal. I have had to be on blood pressure meds since and blame the doctor that didnt even look at the lung xray before sending me home the first time I came in. Had she checked the xray, she would have seen the lungs full at 80% and knew then I shouldve been admitted right away the first night. I am very very lucky I lived through the first night I was sent home and even luckier that I lived through the next 8 days and following two weeks of being hospitalized. The doctors and nurses saved my life and I am forever thankful. It was devastating to my family who had flewn in from all over the US and my younger children who watched as my chest rose with artificial breathing tubes and what not attached. Would love to hear from anyone out there who has been through this and am wondering where I GOT IT... I will probably never know that answer but will always avoid any grocery store veggie mist stands as I can only think of that as to a possible place of contracting legionnaires (sp?). THANKS FOR READING this and hoping for some possible replies. NANCINanciI had Legionnaires two years ago; I was 47 years old. I had the same problem at you did; as the first doctor I saw at the hospital told me I had the flu and gave some pills and sent me home. It wasn't until a few day's later when I went to the emergency room when they discovered what I had; it was terrifying. I was admitted into the hospital and they stared pumping me with as much antibiotics in my veins as they could force in through the IV tube. They had to pack me in ice for a long time just to try to get the fever to come down; nothing else worked. It was the worst time of my life; I was so distraught I didn't even know where I was. After one week in the hospital and the loss of 30 lbs; I was sent home. I stayed in bed for three more weeks. My doctor told me that I must exercise to get over the constant feeling of fatigue and shortness of breath. I did what he said; I lifted weights, walked and started pushing myself. Now two years later I have made a complete physical recovery, I have gained my weight back and then some and am stronger than ever. The one major draw back is my memory; it seems that when I suffered the high fevers it damaged my memory part of my brain. To this day I can't seem to remember peoples names or directions. If someone tells me about a location that I have known for years I can't remember where it is. In fact I have to now rely on my wife to show me how to get to places we have been to several times like the local Mall or even the grocery store. I have read that this sometime happens to the brain when suffering through this type of disease. I just hope it doesn't get worse when I get older. There is a book out that is called (Protect Yourself from Legionnaires Disease) written by Matthew R Freije MD. It's the best resource for this disease to date; read the true stories inside; in fact my story is in there as well.Don't give up on exercise it will be hard but you will see that you will get better. If you don't try you will never get any better than you are now.God Bless.
    Anonymous 42789 Replies
    • February 18, 2011
    • 06:42 PM
    • 0
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