Discussions By Condition: Medical Stories

is this cidp

Posted In: Medical Stories 0 Replies
  • Posted By: cha12404
  • March 21, 2008
  • 02:55 PM

approx. 35 yrs. ago big toe on right foot went numb back to big joint. remained this way for 30 yrs and thought probobly from injury. 5 years ago pins/needles/numbness progressed down right foot from big toe joint a few weeks after heavy lifting. when this reaches the halfway point the same starts in the left foot and both feet are affected pretty much the same after several months but probobly less than a year.i have a pretty bad back problem with grade 2 spondylolisthes, virtually no disc left at l5/s1 level along with similar disc problems at higher lumbar levels so i was convinced that this was probably the problem with the numbness because when i did a lot of walking the numbness got worse and did not get better so thought i was doing more permanent nerve damage . nvc/emg interperitation by one dr. says cidp indicating both demyliniation and axon damage. another dr. says there is no demylineation. symptoms are now above knee on rite side/above ankle on left. yesterday lower lip got fuzzy. am on neurontin. anti inflamitories seem to help for a few hours indicating that an inflamatory process is taking place. the dr. saying that it is cidp wanted me to do the ivig therapy but at the time i was in denial and actually afraid of possible complications with the treatment believing it had to be the back causing the problem . however after further self education i am now convinced that the back may contribute to the problem, but probably the cipd is a correct diagnosis althought my present neurologist does not agree indicating that the other diagnosis was because my feet were cold at the time of the test. also more recent symptoms are feeling cold a lot of the time, hands cold especially staying cold for a long time after handling something from the refrigerator, feet like ice at bedtime. was on statin meds for years and advised to stop them. at the time i was on i had significant pins needles across buttocks, they ran up my rite leg to the hip, loss of sensation in penis, had to look to see if urinating. after stopping statins these symptoms subsided to a certain level but now have progressed to my present condition. i have never used illegal drugs, no alcohol, am currently diabetic but i dont consider myself severe as my a1c's are 5's and 6's.have been subjected to paint thinners, welding fumes, and the like over my 70 years. blood work shows no lead or other metal or chemicals. at present time am once again experiencing penis cold and lack of sensation. i believe that the significantly rapid progression of the symptoms over the past few weeks sort of rules out diabetes complication. i have absolutely no diabetes or blood vessel disease in my eyes, no kidney disease. meds i take are zetia, glipizide, neurontin, aspirin, ibuprofin, htz for kidney stones, multi vit.,vit e, once again since i do get a little relief from the use of antiinflammatories for a few hours i believe an inflamatory process is happening. any help will be appreciated ,thank you

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