This is a long story but please bear with me as i feel i have to explain from the start.
Jan 2008 i got severe pain on my face at my ear and i was very hot.
The next morning i was covered in huge red itchy lumps all over me where my nerves are.
The spots came up and down. I went to my gp but my spots weren't there and he told me to go back when spots came back. He told me i had a neurological virus.The spots didnt come back for 4 weeks. i phoned NHS 24 and they told me i was fine, i was anything but.
So this went on for months and in August i felt a lump at my ear where there was pain and the pain was unbearable. I went to the gp, got a different one this time and told her i had unbearable pain at my ear and some of the nerves in my body. She told me she'd never heard of this, and sent me for blood tests which were clear and i was sent to ENT.
6 months later i went to ENT and was told i had a neuroma but nothing was ever mentioned about other nerve pain. Was sent for MRI and CT scans about my lump, they were clear. I was still suffering unbearable pain. The doctor at ENT ent me to the nurse at ENT and told me once my ear was cleaned out i would be fine. I was not.
Eventually the nurse told me i had extra cartillage at my ear due to constant ear infections and was pressing on my nerve but the virus had damaged my nerve and left me in agony.
I have been suffering for 2 years now with the worst pain imaginable in my nerves. Last Jan i went to gp and asked for something for the pain but nothing helped and all pills did was make me sick.
So pain is still there, it was mentioned i now have trigeminal neuralgia in my face, but docs say nothing aboutmy nerve pain in my body. And now my virus has returned, i have the lumps on the nerve line on my neck and have severe nerve pain on my neck just below my sore ear/face area. I feel desperatly tired and just ill.
Docs told me before they didn't know what it was and didn't bother so what do i do now and is there anything to help this pain.
Thanks for reading.