Discussions By Condition: Medical Stories

Is it B12 deficiency?

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • August 16, 2010
  • 00:29 PM

Hi There,

I am new to this forum but am increasingly desperate and would be very grateful to share some of your considerable knowledge on this topic.

Basically I have been having symptoms of what I suspect may be B12 deficiency on and off for about four years now (extreme tiredness, sore tongue, diarrhoea, now moved on to numb hands and feet, memory loss, forgetting words and generally feeling like my brain isn't working properly). I tested 'low' for it twice in that time but it wasn't followed up as the mysteriously-long-term infections I had at those times cleared up, although I was put on B12 supplements for a few months.

Recently I began getting the most almighty headaches with visual disturbance, nausea, numb hands and feet and all the symptoms above.

GP did blood test for B12, etc, results of which I got today. B12 serum level is 130 - but my current GP considers anything from 100 to 900 ok, Ferritin is low, but within the normal range (didn't get a number for this). My previous GP considered the lower limit to be 300, so I am concerned...

I'm so frustrated - do you think that these levels could be accounting for my symptoms?

My doctor basically told me I have a virus, take supplements and come back in three months if you don't feel better, but I feel so rough every day that it is making it difficult for me to work, let alone have any quality of life. When I queried the neurological symptoms she said that could all be accounted for by tiredness and implied I was depressed...I feel like I've been fobbed off.

Any thoughts/advice would be very very welcome.

Many thanks

J

p.s. forgot to mention, over the years have been diagnosed with IBS, bipolar disorder, and had a series of infections that I couldn't get rid of - chest infection for nigh on ten months, etc.

Reply Flag this Discussion

2 Replies:

  • I would definitely get a second opinion. 130 is incredibly low. My deficiency was caught at 169, and I had already started getting numbness in my lower legs and feet. I would definitely see another doctor.Hi There,I am new to this forum but am increasingly desperate and would be very grateful to share some of your considerable knowledge on this topic. Basically I have been having symptoms of what I suspect may be B12 deficiency on and off for about four years now (extreme tiredness, sore tongue, diarrhoea, now moved on to numb hands and feet, memory loss, forgetting words and generally feeling like my brain isn't working properly). I tested 'low' for it twice in that time but it wasn't followed up as the mysteriously-long-term infections I had at those times cleared up, although I was put on B12 supplements for a few months. Recently I began getting the most almighty headaches with visual disturbance, nausea, numb hands and feet and all the symptoms above. GP did blood test for B12, etc, results of which I got today. B12 serum level is 130 - but my current GP considers anything from 100 to 900 ok, Ferritin is low, but within the normal range (didn't get a number for this). My previous GP considered the lower limit to be 300, so I am concerned...I'm so frustrated - do you think that these levels could be accounting for my symptoms?My doctor basically told me I have a virus, take supplements and come back in three months if you don't feel better, but I feel so rough every day that it is making it difficult for me to work, let alone have any quality of life. When I queried the neurological symptoms she said that could all be accounted for by tiredness and implied I was depressed...I feel like I've been fobbed off.Any thoughts/advice would be very very welcome.Many thanksJp.s. forgot to mention, over the years have been diagnosed with IBS, bipolar disorder, and had a series of infections that I couldn't get rid of - chest infection for nigh on ten months, etc.
    Anonymous 42789 Replies
    • August 24, 2010
    • 00:03 AM
    • 0
    Flag this Response
  • I would definitely get a second opinion. 130 is incredibly low. My deficiency was caught at 169, and I had already started getting numbness in my lower legs and feet. I would definitely see another doctor. I would consult a Hemotologist. Your B-12 is very low and you should probably be getting a shot once a month. There is a condition call Pernicious Anemia which is characterized by low B-12. B-12 is absorbed in the small intestine so you may have a problem in your small intestine or lack a protein called Intrinsic Factor which is needed to absorb B-12. I had all your symptoms and it really took finding the right doctor to make the diagnosis and get the proper help. Once you start getting B-12 shots you are going to feel a lot better.
    Anonymous 42789 Replies
    • August 24, 2010
    • 02:37 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.